Research Blog

Hydrocephalus Research Webinar

Upcoming Webinar: Hope in Progress

Tune in to the Hydrocephalus Association’s next webinar to hear the latest on hydrocephalus research, AHCRN, and HA funded research.

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Dawn Mancuso, CEO, Hydrocephalus Association

A Season for Thanks

In the spirit of the Thanksgiving season, Hydrocephalus Association CEO Dawn Mancuso shares her heartfelt appreciation to our highly dedicated and committed volunteers.

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Residents Prize in Hydrocephalus

Hydrocephalus Association Resident Prize Award

Hydrocephalus Association announces Resident Prize Awardee Jennifer Strahle, MD. for her research paper presented at the AANS/CNS Pediatric Section meeting.

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Board meeting of the Hydrocephalus Association

The Board of Directors Welcomes New Members

The HA Board of Directors meets to set strategic initiatives for 2015, bid farewell to two long-standing members and welcome five new members to serve.

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Brain Shunt to Treat Hydrocephalus

HCRN-HA Partnership Results in $1.8 Million Hydrocephalus Research Grant

PCORI is awarding a $1.8 million grant in support of a HCRN-proposed randomized control trial to determine the most effective entry site for placing a shunt.

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Nasal Spray for Hydrocephalus

Through the NOSE! Non-invasive Modulation of CSF Absorption

A proof of concept paper shows that drugs delivered through a nasal spray could one day provide a non-surgical way to manage hydrocephalus.

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Dr. Timothy Vogel Joins the Robert H. Pudenz Lectureship at Conference

Timothy Vogel, MD, will join the Robert H. Pudenz Lectureship scientific research panel at the Hydrocephalus Association’s 13th National Conference on Hydrocephalus, July 9-11, 2014, in Portland, Oregon.

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Mary Decker Mentorship Award Recipient Announced

The Hydrocephalus Association is proud to announce Cathy Cartwright as this year’s Mary Decker Mentorship Award recipient for her tremendous passion, caregiving, and nurturing of children with hydrocephalus

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Hydrocephalus Conference Scientific Keynote: Dr. Stephen A. Back

Dr. Stephen A. Back will deliver the scientific keynote address on his work on the development of strategies to promote regeneration and repair of injury to the brain at the Hydrocephalus Association’s 13th National Conference on Hydrocephalus, July 9-11, 2014, Portland, Oregon. Join us!

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HCRN PI’s offer point and counterpoint of shunting and ETV/CPC

Counterbalancing articles in AANS Neurosurgeon about changes in the treatment of hydrocephalus and the impact of new procedures going forward make for interesting reading about the evolution of hydrocephalus treatment.

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HCRN PI’s offer point and counterpoint of shunting and ETV/CPC

By Paul Gross, Past Chair of the Board of Directors, Co-Chair of the Research Committee Reposted with permission from the HCRN Blog HCRN Chairman John Kestle and HCRN investigator Jay Riva-Cambrin were published in AANS Neurosurgeon this month in counterbalancing articles about changes in treatment of hydrocephalus and the impact of new procedures going forward. Dr. Riva-Cambrin discusses […]

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Dr. John Kestle to Return to Primary Children’s Hospital in June 2014

Dr. John Kestle is returning to Primary Children’s Hospital as a pediatric neurosurgeon and Vice Chair of Clinical Research, for the University of Utah Department of Neurosurgery.

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50th Anniversary of the Recognition of Normal Pressure Hydrocephalus

March 10, 2014, marks the 50th anniversary of the recognition of NPH as a distinct medical condition, allowing countless people access to the treatment needed to return to active lifestyles after possibly years of living with misdiagnosed dementia. Join the Hydrocephalus Association as we commemorate this year.

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Innovative Analysis of Publicly-Funded Hydrocephalus Research

A recently published study analyzes hydrocephalus research funding from NIH over 10 years and concludes that more researchers are needed in the field as well as alternative funding sources if we are to move the hydrocephalus research agenda forward.

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Innovative Analysis of Publicly-Funded Hydrocephalus Research

By Paul Gross, Past Chair of the Board of Directors, Co-Chair of the Research Committee Reposted with permission from the HCRN Blog A review of the history of public funding of hydrocephalus research funded by the National Institutes of Health (NIH) was recently published in theJournal of Neurosurgery: Pediatrics.   The review is the result of the collaboration between Hydrocephalus Clinical […]

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Update on the Adult Hydrocephalus Clinical Research Network

The Adult Hydrocephalus Clinical Research Network Planning Committee finalizes the policies and procedures for collecting data from adult hydrocephalus patients at its 6 clinical centers and reviews protocols for its first clinical study.

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Upcoming Research Webinar: Delivering on a Promise

Join the Hydrocephalus Association on Monday, March 3, 2014, at 7:00 p.m. EST for our next webinar, “Research Update: Delivering on a Promise,” exploring the latest advances in hydrocephalus research and showcasing several exciting studies being conducted to better understand the basic science of hydrocephalus and clinical protocols for treating patients.

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HA and the Rudi Schulte Research Institute Announce a New Research Venture

The Hydrocephalus Association and the Rudi Schulte Research Institute (RSRI) announce a joint research venture with Dr. Mark Wagshul which proposes the use of magnetic resonance elastography (MRE) to determine the role brain compliance plays in pediatric hydrocephalus.

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Meet the Medical Chairs of the 13th National Conference on Hydrocephalus

The Hydrocephalus Association is pleased to announce the Medical Chairs of the 13th National Conference on Hydrocephalus – Drs. Nathan Selden, Marion “Jack” Walker, and Michael A. Williams.

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Research UPDATE: Gerber Foundation Grant to Support HCRN Study

The Gerber Foundation recently awarded Dr. Chevis Shannon, Research Assistant Professor & Director of the Pediatric Neurosurgery Clinical Research Initiative at Vanderbilt University, and HCRN investigator, a grant to evaluate the impact of post hemorrhagic hydrocephalus (PHH) on neurodevelopmental outcomes in premature infants.

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Research UPDATE: Gerber Foundation Grant to Support HCRN Study

  From the HCRN Blog The Gerber Foundation recently awarded Dr. Chevis Shannon, Research Assistant Professor & Director of the Pediatric Neurosurgery Clinical Research Initiative at Vanderbilt University, and HCRN investigator, a grant to evaluate the impact of post hemorrhagic hydrocephalus (PHH) on neurodevelopmental outcomes in premature infants. Her study entitled “Understanding the Impact of Post Hemorrhagic Hydrocephalus on Neurodevelopmental Outcomes in Premature Infants,” […]

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Research UPDATE: A Clue to Better Understand and Treat Hydrocephalus

Dr. Tamara Simon and her research team out of Seattle Children’s Hospital have uncovered a host of pathogens never before associated with shunt infections in the CSF of eight children, which could lead to new understandings on treating and preventing shunt infections.

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CALL TO ACTION: PCORI Seeking Members for Advisory Panels

The Patient-Centered Outcomes Research Institute (PCORI) has announced openings on four Advisory Panels: Clinical Trails, Rare Disease, Assessment of Prevention, Diagnosis, and Treatment Options, and Improving Healthcare Systems.

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HCRN at the Pediatric Section Meeting

Summary of the presentations by HCRN investigators at the recent AANS/CNS Section on Pediatric Neurological Surgery held in Toronto, December 3-6, 2013.

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Research UPDATE: HCRN Semi-Annual Investigator Meeting Summary

Summary of the Hydrocephalus Clinical Research Network (HCRN) investigators and coordinators’ Fall meeting, November 7- 8, in Salt Lake City.

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Medical Advisory Board Member on Research Team to Investigate Long-Term Outcomes of TBI

Dr. Richard Ellenbogen, a UW neurosurgeon and a member of the Hydrocephalus Association Medical Advisory Board, will serve as a principal investigator on a two-year, $2.4 million study looking into the long-term implications of damage to the brain caused by TBI, funded by Seattle Seahawks owner and Microsoft Co-founder, Paul Allen.

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Managing Children by a Simple Touch of the Hand

Can the touch of a hand to the head, an assessment tool thought to be time-honored and true for assessing pressure in the brain of an infant, also be consistent across physicians? Dr. John Wellons summarizes the findings of this recent study from the Hydrocephalus Clinical Research Network.

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Are we looking for innovation or revolution?

In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso explores how a simple paradigm shift in thinking presented at a recent conference at Children’s Hospital of Alabama, might cause a revolutionary change in the rate of progress for research around hydrocephalus.

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Research UPDATE: Preventing Hydrocephalus in Premature Infants

In a study published in the journal Brain, researchers find that the infusion of a naturally occurring protein can prevent the development of hydrocephalus after an intraventricular hemorrhage. The results show great promise in the work to develop a preventive therapy for the development of hydrocephalus, particularly in one of our most fragile populations, premature infants.

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Looking Back…Moving Forward: Advancing the Research Mission

As the Hydrocephalus Association continues it’s 30th anniversary commemoration, David Browdy, Board Member and Chair of the Research Committee, reminisces about the history of the association and shares a vision for the future.

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Adult Hydrocephalus and the Development of a Research Network

Adult Hydrocephalus and the Development of a Research Network

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Research UPDATE: Low Dose CT Scans in Children

Seattle Children’s adopts a low dose CT scan strategy as a diagnostic tool for evaluating shunt malfunction in children with hydrocephalus.

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Study Seeking Participants on the Clinical, Anatomic and Genetic features of Pediatric Hydrocephalus

Researchers at Seattle Children’s Hospital seek to enroll participants in a study on the clinical, anatomic and genetic features of hydrocephalus.

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NIH Approves High Priority Research Within BRAIN Initiative

Hydrocephalus Association Research Programs Manager, Ashly Westrick, provides an update on the NIH BRAIN Working Group, who presented their preliminary report identifying research priorities to the Advisory Committee to the Director.

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Use of Limited Sequence CT Scans in Pediatric Hydrocephalus

It is not uncommon for children with hydrocephalus to undergo numerous CT scans throughout their life, raising the concern about the effects of the radiation exposure for the future. Edward Ahn, MD, and colleagues at Johns Hopkins Hospital suggest the use of limited-sequence head CT scans for children with hydrocephalus to limit the amount of radiation they receive during CT scans.

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A Seat at the Table: NINDS Nonprofit Forum 2013

The Hydrocephalus Association brings the voice of the hydrocephalus community to the NIH NINDS 2013 Nonprofit Forum, held September 10 and 11, 2013, at the NIH Campus in Bethesda, Maryland.

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Insight into the Hydrocephalic Brain Using Diffusion Tensor Imaging

The Hydrocephalus Association aims to help our community understand the latest findings coming out of the hydrocephalus research community. In this blog, we summarize a study about Diffusion Tensor Imaging (DTI) and pediatric hydrocephalus.

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Research UPDATE: Exploring Alternative Treatments

In our third installment of the Mentored Young Investigator (MYI) blog series, we showcase 2009 MYI recipient, Joon Shim, Ph.D.  At the time of the award, Dr. Shim was a postdoctoral fellow at Boston Children’s Hospital. He is now a Research Assistant Professor at Indiana University.  He received an MYI grant for his study, “The […]

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IOM Releases Partnering with Patients Workshop Proceedings

In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso summarizes the proceedings from the public workshop of the Institute of Medicine, “Partnering with Patients to Drive Shared Decisions, Better Value, and Care Improvement.”

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HCRN Update: Shunt Infection Risk and Treatment in Children

Dr. Tamara Simon discusses her work as the Principal Investigator for the shunt infection registry for the Hydrocephalus Clinical Research Network. Her study aims to understand the risk factors associated with shunt infection and how shunt infections are being treated.

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