Research Blog

So Many Reasons To Be Grateful

Olivia Maccoux shares her story and leads this year’s holiday drive to support the critical research work of the Hydrocephalus Association.

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NIH Nonprofit Forum 2016

Nonprofit and Government Leaders Unite Around Medical Research

Dr. Jenna Koschnitzky, Hydrocephalus Association Director of Research Programs, speaks at the 2016 NIH NINDS Nonprofit Forum.

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Premature Baby Posthemorragic hydrocephalus

HA Convenes the First International Workshop on Posthemorrhagic Hydrocephalus

Workshop on Posthemorrhagic Hydrocephalus (PHH) proves the potential for researchers to alter the course of the development of hydrocephalus and its long-term outcomes.

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Hydrocephalus Clinical Research Network

Hydrocephalus Clinical Research Network Adds Five New Centers

The Hydrocephalus Clinical Research Network (HCRN) adds five new research institutes to the network.

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Cerebral Palsy Awareness

Cerebral Palsy Benefits from Hydrocephalus Research

On National Cerebral Palsy Awareness Day, the Hydrocephalus Association is proud to support the Cerebral Palsy Research Network.

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National Hydrocephalus Conference

Conference Registration is OPEN!

Registration for our 14th National Conference on Hydrocephalus is OPEN! Join us in Minneapolis, Minnesota, June 16 – 19, 2016.

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Doctor holding a brain shunt

ISHCSF Highlights HCRN Studies on Shunt Failure and Infection

ISHCSF newsletter highlights Hydrocephalus Clinical Research Network (HCRN) studies around hydrocephalus shunt infection rates and risk factors.

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Lance Lee, PhD, Hydrocephalus Association Innovator Awardee

Announcing the 2015 Innovator Award Grantees

2015 Awardees focused on research to better understand why hydrocephalus develops and to identify therapies to prevent or reverse hydrocephalus.

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Hydrocephalus Association Resident’s Prize Award

One way the Hydrocephalus Association promotes research and leadership in hydrocephalus is through our annual Resident’s Prize. This prize is awarded each year to the most promising hydrocephalus-related research paper presented by a neurosurgical resident at the Pediatric Section meeting of the American Association of Neurological Surgeons/Congress of Neurological Surgeons (AANS/CNS). The prize is designed […]

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Hydrocephalus Vision Dinner Craig and Vicki Brown

Vision Dinner Aims to Accelerate Hydrocephalus Research

The Third Annual Vision Dinner successfully raised $500K to launch the Hydrocephalus Association Network for Discovery Science (HANDS).

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Adult Hydrocephalus Clinical Research Network

Next Steps for the Adult Hydrocephalus Clinical Research Network

The Core Data Project of the Adult Hydrocephalus Clinical Research Network (AHCRN) has enrolled nearly 200 patients since in late 2014.

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Diana Gray HA CEO

Diana Gray Announced as the New Chief Executive Officer

The Hydrocephalus Association (HA) is pleased to announce the appointment of Diana Gray as the new Chief Executive Officer (CEO).

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NINDS Nonprofit Forum Hydrocephalus Registry

Partnering with Government to Shape Disease Research

HA played a key role at the annual NINDS Nonprofit Forum, which provides an opportunity for nonprofit leaders to engage in dialogue with NINDS staff.

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lymphatic vessels in the brain

New Discovery Makes Researchers Rethink CSF Absorption

The discovery of lymphatic vessels in the brain creates a new focus for researches looking for non-invasive treatments for hydrocephalus.

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x chromosome

Finding Our Way with L1CAM

The causes of hydrocephalus are varied, but one with a clear genetic linkage is X-linked hydrocephalus, a genetic disorder that occurs in about 1 of 30,000 births.

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Shunt to treat hydrocephalus on glass model skull

INPUT NEEDED on Device to Detect CSF Build Up at Home

Two bioengineering students out of Rice University are working on a device that can be used by patients for at-home diagnosis of CSF buildup for hydrocephalus patients.

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Hydrocephalus Research

Scientific Networks are Changing the Research Landscape

Together the HA-funded HCRN, AHCRN and HANDS are changing how hydrocephalus research is conducted and accelerating research progress.

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Cell growth in shunt

Research into Shunt Obstruction Earns Award from SRHSB

Dr. Carolyn Harris awarded the first annual Gift of Knowledge by the SRHSB for research into hydrocephalus shunt obstruction.

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Hydrocephalus Research Grant

Hydrocephalus Association Announces a New Grant Opportunity

Innovator Awards on understanding disease mechanisms and the identification and preclinical testing of therapies to prevent or reverse hydrocephalus. Apply here!

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Hydrocephalus Research Webinar Recording Available

The Next Generation of Hydrocephalus Researchers Webinar Recording NOW AVAILABLE

In this webinar, Dr. Yun Yung discusses his exciting new work focused on understanding and preventing post-hemorrhagic hydrocephalus. Recording now available!

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Hydrocephalus Research Webinar

Upcoming Webinar: The Next Generation of Hydrocephalus Researchers Part II

Next webinar: Optimizing the timing of interventions in neonatal hydrocephalus and new research on how brain cells react and recover under pressure.

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Dr. John R. Kestle and Dawn Mancuso

HA Board Member Receives Distinguished Award in Neuroscience

Dr. John R.W. Kestle is awarded the Robert H. Pudenz Award for Excellence in CSF Physiology by Medtronic

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American Academy of Neurology Annual Meeting

Happening NOW! American Academy of Neurology Annual Meeting in Washington DC

HA represents the patient voice at the American Academy of Neurology Annual Meeting in Washington DC.

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Hydrocephalus Clinical Research Network

Hydrocephalus Clinical Research Network Meets in Toronto

Principal investigators from the Hydrocephalus Clinical Research Network (HCRN) are meeting today and tomorrow at the Hospital for Sick Children in Toronto, Ontario.

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Pediatric Hydrocephalus study on shunt entry points

HCRN Study Begins Enrolling Pediatric Patients

The Hydrocephalus Clinical Research Network begins enrolling patients in a new study that examines the best placement for a shunt in infants and children.

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HCRN Researcher Dr. Jay Wellons Demonstrates Importance of Multi-Center Studies

How do surgeons make decisions? How do they stand by those decisions and evaluate themselves? The HCRN set out to answer these questions in their study.

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Hydrocephalus Association Webinar Banner

Upcoming Webinar: The Next Generation of Hydrocephalus Researchers

Join us for our next webinar on the latest hydrocephalus research with two former HA-sponsored Mentored Young Investigators.

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Shunt to treat hydrocephalus on glass model skull

Predicting the Need for a Shunt after a Brain Bleed

Diagnosing the need for a shunt early after someone has had a brain bleed could prevent additional neurological deterioration, study finds.

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Clinical Trial Randomization

Research 101: An Explanation of Clinical Trials Design

Dr. Koschnitzky continues our Science Facts blog series with an explanation of the various clinical trial designs we find in hydrocephalus research.

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Image of brain with labels

Research UPDATE: Using the Newest Technology to Understand Hydrocephalus

How do the cells of an infant’s developing brain react to the pressures of hydrocephalus? Our former MYI recipient, Dr. Eskandari’s, goal is to find out.

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Reconstructed white matter fiber tracts of the brain, brainstem, and spinal cord. View through the mid-sagittal plane.

Grey is the new White? Not in the brain!

This Science Facts blog explains the difference between white and grey matter in the brain. Helping you untangle complex concepts and language in research studies!

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Dawn Mancuso, CEO, Hydrocephalus Association

Celebrating a BANNER Year!

With our eligibility to receive research funding through the CDMRP to launching our Adult Hydrocephalus Clinical Research Network, it has been a year of WINS.

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Hydrocephalus Association Resident’s Prize Award

One way the Hydrocephalus Association promotes research and leadership in hydrocephalus is through our annual Resident’s Prize. This prize is awarded each year to the most promising hydrocephalus-related research paper presented by a neurosurgical resident at the Pediatric Section meeting of the. The prize is designed to encourage young doctors to focus their research efforts […]

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Hydrocephalus Physician's Directory

Is Your Doctor In Our Directory?

Do you have a neurosurgeon, neurologist, or neuropsychologist that you LOVE? Invite your doctor to join the Hydrocephalus Association’s Physician Directory!

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Neuroscience Nurse

Mary Decker Mentorship Award: Call for Nominations

Nominate a dedicated Neuroscience Nurse with demonstrated excellence in neurosurgery, specifically with hydrocephalus, for the Mary Decker Mentorship Award!

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Pediatric Hydrocephalus

Pediatric Hydrocephalus Guidelines on Treatment and Management

Guidelines on the treatment and management of pediatric hydrocephalus have been published, with input from HA and members of our Medical Advisory Board.

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Hydrocephalus Research Webinar

Upcoming Webinar: Hope in Progress

Tune in to the Hydrocephalus Association’s next webinar to hear the latest on hydrocephalus research, AHCRN, and HA funded research.

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Dawn Mancuso, CEO, Hydrocephalus Association

A Season for Thanks

In the spirit of the Thanksgiving season, Hydrocephalus Association CEO Dawn Mancuso shares her heartfelt appreciation to our highly dedicated and committed volunteers.

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Residents Prize in Hydrocephalus

Hydrocephalus Association Resident Prize Award

Hydrocephalus Association announces Resident Prize Awardee Jennifer Strahle, MD. for her research paper presented at the AANS/CNS Pediatric Section meeting.

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Board meeting of the Hydrocephalus Association

The Board of Directors Welcomes New Members

The HA Board of Directors meets to set strategic initiatives for 2015, bid farewell to two long-standing members and welcome five new members to serve.

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