What would it look like if we all worked together as one voice and made hydrocephalus a word that people know and are ultimately interested in curing?
“…the likelihood of fraternal twins being born with the same variation of hydrocephalus was extremely rare.” One dad shares his story and the inspiration behind raising awareness.
Living with hydrocephalus means living with headaches. In his latest post, Dan discusses headaches, weather changes, and the importance of knowing your body.
Sometimes a disability is not readily visible. A mom shares her experience advocating for her daughter with hydrocephalus to a stranger in a parking lot.
Join us for our advocacy webinar covering the Congressional appropriations process and what you can do to help protect medical research program funding.
Dr. Whitehead shows the benefits of patient involvement in the research planning and information dissemination of the CSF Shunt Entry Site trail.
Two bioengineering students out of Rice University are working on a device that can be used by patients for at-home diagnosis of CSF buildup for hydrocephalus patients.
We continually strive to provide the best support and education services, and most current, comprehensive information and resources to assist our community. Take a brief survey and help us develop programs and services to better fit your needs.
SAVE THE DATE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016! Our patient-centered conferences empower all of us to understand, seek out and put into place the care, programs and services that will meet our needs now and well into the future.
Our Patient Partner Committees provide the patient perspective throughout the duration of a research study, making sure the patient voice is at the table.
In this webinar, Dr. Yun Yung discusses his exciting new work focused on understanding and preventing post-hemorrhagic hydrocephalus. Recording now available!
Next webinar: Optimizing the timing of interventions in neonatal hydrocephalus and new research on how brain cells react and recover under pressure.