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  • What is Hydrocephalus
    • About Hydrocephalus
      • Hydrocephalus FAQs
      • What is Hydrocephalus
      • Normal Pressure Hydrocephalus (NPH)
      • Hydrocephalus in Pregnancy
      • Hydrocephalus in Infants and Children
      • Hydrocephalus in Adults
      • Entendiendo La Hidrocefalia
    • Types and Causes of Hydrocephalus
      • Discover the Types and Causes of Hydrocephalus
      • Acquired Hydrocephalus
      • Congenital Hydrocephalus
      • Communicating and Non-Communicating Hydrocephalus
      • Normal Pressure Hydrocephalus (NPH)
      • Hydrocephalus versus NPH
    • Newly Diagnosed – What’s Next?
      • Hydrocephalus FAQs
      • Next Steps
      • Get Support
      • Hydrocephalus Resource Library
  • Treatments
    • Treatments
      • Shunt Systems
      • ETV and ETV with CPC
      • Emerging Technology
    • Preparing or Surgery
      • What to Expect with Hydrocephalus Shunt Surgery
      • What to Expect With ETV Surgery
    • Treatment Complications
      • Complications of Shunt Systems
      • Shunt Malfunctions FAQs
      • ETV Complications
  • Research
    • About Our Research
      • About Our Research
      • Clinical Research Networks
      • Research Priorities
        • Community Research Priorities
        • Neuropsychology & Cognition Priorities
        • Non-Invasive Therapies Priorities
      • Research We Fund
    • For Researchers
      • For Researchers
      • For Undergraduates
      • Funding Opportunities
      • Research Portal: HANDS
    • Get Involved in Research
      • Get Involved in Research
      • Join the Hydrocephalus Patient Registry
      • Join a Clinical Trial
      • Interested in Brain Donation?
  • Daily Life
    • For Parents
      • Resources For Parents
      • As Your Child Grows
      • Navigating Your Care
      • Related Health Conditions
      • School
      • Stories from Parents
    • For Teens to Young Adults
      • Resources For Teens and Young Adults
      • Transitioning from Pediatric to Adult Care
      • High School
      • College
      • Transitioning to Independence
      • Hydrocephalus Stories
    • For Adults
      • Resources for Adults
      • Managing Day-to-Day Challenges
      • Healthy Living
      • Navigating Your Care
      • Related Health Conditions
      • Stories from Adults
    • For NPH
      • Resources For NPH
      • Navigating Your Care
      • Related Health Conditions
      • NPH and Rehabilitation Services
      • Healthy Living: NPH
      • Ask the Expert: NPH Video Series
      • NPH Stories
  • Help & Support
    • Resources
      • Hydrocephalus Resources
      • Find a Doctor
      • New! Hydrocephalus Resource Library
      • Community Resources
      • Mobile App: HydroAssist
        • About HydroAssist® Mobile Application
        • HydroAssist® Development Team
        • HydroAssist® Technical Support
        • HydroAssist® Privacy Policy
        • HydroAssist® Terms of Use
      • Ask the Expert: Video Series
      • Hydrocephalus Podcasts
    • Get Support
      • Helpline
      • Peer Support: HydrocephalusCONNECT
      • Support Groups
      • Pen Pal Program: Ages 7-12
    • Programs and Services
      • Webinars
      • National Conference: HA CONNECT
      • Local Educational Events
      • RAISE Resilience Program
      • Summer Camp
    • Scholarship Program
      • About Scholarship Funding
      • Scholarship Recipients
  • Get Involved
    • Give
      • Planned Giving
      • Shop and Support
      • Become a Corporate Sponsor
      • Workplace Giving
      • Make a Stock Donation
    • Ways to Fundraise
      • WALK to End Hydrocephalus
      • Find a WALK Near You
      • Endurance Program
      • Games4Brains Program
    • Participate
      • Become a Volunteer
      • Help Raise Awareness
      • Find a Local Event
    • Advocate
      • Advocate With Us
      • Our Advocacy Strategy
      • Congressional Caucus
      • Advocacy Toolkit
      • Advocacy Action Center

  • What is Hydrocephalus
        • About Hydrocephalus

        • What is Hydrocephalus
          • Hydrocephalus FAQs
          • Normal Pressure Hydrocephalus (NPH)
          • Hydrocephalus in Pregnancy
          • Hydrocephalus in Infants and Children
          • Hydrocephalus in Adults
          • Entendiendo La Hidrocefalia
        • Types and Causes

        • Discover the Types and Causes of Hydrocephalus
          • Acquired Hydrocephalus
          • Congenital Hydrocephalus
          • Communicating and Non-Communicating Hydrocephalus
          • Normal Pressure Hydrocephalus (NPH)
          • Hydrocephalus versus NPH
        • Newly Diagnosed - What's Next?

        • Next Steps
          • Get Support
          • Hydrocephalus FAQs
          • Hydrocephalus Resource Library
  • Treatments
        • TREATMENTS

        • Shunt Systems
          • ETV and ETV with CPC
          • Emerging Technology
        • Preparing for Surgery

        • What to Expect with Hydrocephalus Shunt Surgery
          • What to Expect With ETV Surgery
        • Treatment Complications

        • Complications of Shunt Systems
          • Shunt Malfunctions FAQs
          • ETV Complications
  • Research
        • About Our Research

        • About Our Research
          • Clinical Research Networks
          • Research Priorities
            • Community Research Priorities
            • Neuropsychology & Cognition Priorities
            • Non-Invasive Therapies Priorities
          • Research We Fund
        • For Researchers

        • For Researchers
          • For Undergraduates
          • Funding Opportunities
          • Research Portal: HANDS
        • Get Involved In Research

        • Get Involved in Research
          • Join the Hydrocephalus Patient Registry
          • Join a Clinical Trial
          • Interested in Brain Donation?
  • Daily Life
        • For Parents

        • Resources For Parents
          • As Your Child Grows
          • Navigating Your Care
          • Related Health Conditions
          • School
          • HA Stories from Parents
        • For Teens to Young Adults

        • Resources for Teens and Young Adults
          • Transitioning from Pediatric to Adult Care
          • High School
          • College
          • Transitioning to Independence
          • Hydrocephalus Stories
        • For Adults

        • Resources for Adults
          • Healthy Living
          • Managing Day-to-Day Challenges
          • Navigating Your Care
          • Related Health Conditions
          • Hydrocephalus Stories
        • For NPH

        • Resources for NPH
          • Navigating Your Care
          • Related Health Conditions
          • NPH and Rehabilitation Services
          • Healthy Living: NPH
          • Ask the Expert: NPH Video Series
          • NPH Stories
  • Help & Support
        • Resources

        • Hydrocephalus Resources
          • Find a Doctor
          • NEW! Hydrocephalus Resource Library
          • Community Resources
          • Mobile App: HydroAssist®
            • About HydroAssist®
            • HydroAssist® Technical Support
            • HydroAssist® Development Team
            • HydroAssist® Privacy Policy
            • HydroAssist® Terms of Use
          • Video Series: Ask the Expert
          • Hydrocephalus Podcasts
        • Get Support

        • Get Support
          • Helpline
          • Peer Support: HydrocephalusCONNECT
          • Support Group
          • Pen Pal Program: Ages 7-12
        • Programs & Services

        • Programs and Services
          • Webinars
          • National Conference: HA CONNECT
          • Local Educational Events
          • RAISE Resilience Program
          • Summer Camp
        • Scholarship Programs

        • Scholarship Program
          • About Scholarship Funding
          • Scholarship Recipients
  • Get Involved
        • Give

        • Give
          • Planned Giving
          • Shop and Support
          • Become a Corporate Sponsor
          • Workplace Giving/Matching Gifts
          • Make a Stock Donation
        • Fundraise

        • Ways to Fundraise
          • WALK to End Hydrocephalus
          • Endurance Program
          • Games4Brains Program
        • Participate

        • Participate
          • Become a Volunteer
          • Help Raise Awareness
          • Find a Local Event
        • Advocate

        • Advocate
          • Advocate With Us
          • Our Advocacy Strategy
          • Congressional Hydrocephalus Caucus
          • Advocacy Toolkit
          • Advocacy Action Center

Related Conditions

  • HA Blog
    • Educators
    • Employment
    • Healthy Living and Well-Being
    • Life with Hydrocephalus
    • Related Conditions
    • Relationships
    • School (K-12)
    • Transitioning to Adult Healthcare
  • In the News
  • From the Association
  • Hydrocephalus Research Updates
  • Press Releases
  • Personal Stories
    • I am a parent
    • I have hydrocephalus
    • I have NPH
×
  • HA Blog
    • Educators
    • Employment
    • Healthy Living and Well-Being
    • Life with Hydrocephalus
    • Related Conditions
    • Relationships
    • School (K-12)
    • Transitioning to Adult Healthcare
  • In the News
  • From the Association
  • Hydrocephalus Research Updates
  • Press Releases
  • Personal Stories
    • I am a parent
    • I have hydrocephalus
    • I have NPH
New Website Blogs 300x240 3

Making Life Happen: Living Life with Spina Bifida and Hydrocephalus

October 25, 2012

Meet Luke Russell, a freshman at the University of Wisconsin-Whitewater who plans to major in marine biology with either a second major or a minor in psychology. He has spina bifida and hydrocephalus.

Read More about Making Life Happen: Living Life with Spina Bifida and Hydrocephalus
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The mission of the Hydrocephalus Association is to find a cure for hydrocephalus and improve the lives of those impacted by the condition. We will accomplish this by collaborating with patients, caregivers, researchers, and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and ultimately cure hydrocephalus.

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