HA Blog
Medical Device Development and Evolution: A Comparative Study
In this educational blog, Marvin Sussman, PhD, compares the evolution of the cardiac pacemaker and radiation oncology with that of the shunt to treat hydrocephalus over a 60 year period.
Looking Back…Moving Forward: Rising to the Challenge
As we continue our interview series commemorating the 30th anniversary of the Hydrocephalus Association, we sit down with former Board of Directors member and lifelong hydrocephalus advocate Mark Geiger.
You, the Healthcare Wizard and Finding the Perfect Plan
If you’re new to buying healthcare, finding the perfect plan can be like trying to find the Wizard without having a yellow brick road to guide you to the Emerald City, especially when you’re living with a pre-existing condition like hydrocephalus.
Raising Awareness about Hydrocephalus, One Stroke at a Time
Thomas, who was diagnosed with hydrocephalus as an infant, has become a successful competitive swimmer, finding balance and freedom in the pool.
Looking Back…Moving Forward: With A Little Help From My Friends
In commemoration of the Hydrocephalus Association 30th anniversary, David Walters, Teens Take Charge member, shares his thoughts on the importance of our biannual conference and the impact of the Hydrocephalus Association (HA).
Looking Back…Moving Forward: Celebrating 10 Years as a WALK Chair
As we continue our interview series in commemoration of the Hydrocephalus Association’s 30th anniversary, we sit down with Phyllis Rogers, who is in her 10th year chairing the Denver WALK, as she reflects on her drive to continue to chair the WALK and her hopes for the future of the Hydrocephalus Association.
The Intrepid Traveler: My Trip to Machu Pichu, Peru
In the second entry of her travel journal, Gina Barbaro shares her journey to Machu Pichu and tips on travelling to high altitudes with hydrocephalus.
Looking Back…Moving Forward: Creating a Sense of Community
The Hydrocephalus Association continues our 30th anniversary interview series with Summer Minchew, our Charlotte, NC Support Group leader. She reflects on her role as a support group leader and moving the vision beyond the traditional support group framework aand into creating a hydrocephalus community.
Announcing Our 2013 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association is proud to announce our 2013 scholarship recipients.
HCRN Update: Biomarkers in Post Hemorrhagic Hydrocephalus
Dr. David Limbrick discusses his current research study which aims to develop a complementary tool to supplement the information from imaging in order to determine the best time to treat infants with post hemorrhagic hydrocephalus.
Looking Back…Moving Forward: A Mom with a Mission
As the Hydrocephalus Association continues its interview series in commemoration of their 30th anniversary, Amanda Garzon, HA’s Communications and Marketing Manager, opens up about mothering a child with hydrocephalus and shares her personal reflections on the association.
Stand and Deliver
Afraid or embarrassed to let others know you have hydrocephalus? Madeleine Darowiche shares her experience of telling her high school classmates about living with hydrocephalus.
Looking Back…Moving Forward: Houston, We Have Lift Off!
The Hydrocephalus Association 30th anniversary interview series continues with our Houston WALK Co-Chair, Margaret Powers as she shares her thoughts about the Hydrocephalus Association and starting and coordinating a WALK.
HA Established Investigator Publishes Research Findings on Congenital Hydrocephalus
James P. (Pat) McAllister, PhD, Director of Basic Hydrocephalus Research at the University of Utah and a Hydrocephalus Association Established Investigator grantee, has had his research findings related to congenital hydrocephalus published in the journal, Cell and Tissue Research.
Looking Back…Moving Forward: Dedicated to Human and Community Service
“Be yourself, and do not let hydrocephalus define who you are.” A quote from a graduating college senior as she reflects on the 30th anniversary of the Hydrocephalus Association in our interview series.
Behind the Recall: Codman Provides Details
The Hydrocephalus Association sits down with a vice president from Codman Neuro and two members of our Medical Advisory Board (MAB) to discuss the recent recall of CODMAN® CERTAS™ Programmable Valves, also known as shunts, and how it relates to patients. Please read and share the latest information on the recall.
Looking Back…Moving Forward: Adding a Touch of Pixie Dust
Tina Daniels, Hydrocephalus Association Support Group leader in Owasso, OK, shares her experiences living with hydrocephalus and her decision to lead a support group.
Codman Announces Voluntary Recall of CERTAS™ Programmable Valve
Codman announced yesterday that it has made a proactive decision to recall any CERTAS™ programmable valves still in stock at hospitals and medical facilities. According to Codman, this recall was not initiated as a result of reported problems with the shunt in patients.
Brushes with Mortality: 5 Lessons On Dealing with Hard Times
Rachel Katz, diagnosed with hydrocephalus at the age of 12, shares the transformational gift she received after her last shunt revision. Read her blog. Be inspired.
HCRN Update: Shunt Outcomes in Post Hemorrhagic Hydrocephalus
In a new Research Department blog series, HCRN Update, Ashly Westrick interviews Dr. Jay Wellons, principal HCRN investigator for the Shunt Outcomes in Post Hemorrhagic Hydrocephalus study.