HA Blog
The Intrepid Traveler: My Trip to Machu Pichu, Peru
In the second entry of her travel journal, Gina Barbaro shares her journey to Machu Pichu and tips on travelling to high altitudes with hydrocephalus.
Looking Back…Moving Forward: Creating a Sense of Community
The Hydrocephalus Association continues our 30th anniversary interview series with Summer Minchew, our Charlotte, NC Support Group leader. She reflects on her role as a support group leader and moving the vision beyond the traditional support group framework aand into creating a hydrocephalus community.
Announcing Our 2013 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association is proud to announce our 2013 scholarship recipients.
HCRN Update: Biomarkers in Post Hemorrhagic Hydrocephalus
Dr. David Limbrick discusses his current research study which aims to develop a complementary tool to supplement the information from imaging in order to determine the best time to treat infants with post hemorrhagic hydrocephalus.
Looking Back…Moving Forward: A Mom with a Mission
As the Hydrocephalus Association continues its interview series in commemoration of their 30th anniversary, Amanda Garzon, HA’s Communications and Marketing Manager, opens up about mothering a child with hydrocephalus and shares her personal reflections on the association.
Stand and Deliver
Afraid or embarrassed to let others know you have hydrocephalus? Madeleine Darowiche shares her experience of telling her high school classmates about living with hydrocephalus.
Looking Back…Moving Forward: Houston, We Have Lift Off!
The Hydrocephalus Association 30th anniversary interview series continues with our Houston WALK Co-Chair, Margaret Powers as she shares her thoughts about the Hydrocephalus Association and starting and coordinating a WALK.
HA Established Investigator Publishes Research Findings on Congenital Hydrocephalus
James P. (Pat) McAllister, PhD, Director of Basic Hydrocephalus Research at the University of Utah and a Hydrocephalus Association Established Investigator grantee, has had his research findings related to congenital hydrocephalus published in the journal, Cell and Tissue Research.
Looking Back…Moving Forward: Dedicated to Human and Community Service
“Be yourself, and do not let hydrocephalus define who you are.” A quote from a graduating college senior as she reflects on the 30th anniversary of the Hydrocephalus Association in our interview series.
Behind the Recall: Codman Provides Details
The Hydrocephalus Association sits down with a vice president from Codman Neuro and two members of our Medical Advisory Board (MAB) to discuss the recent recall of CODMAN® CERTAS™ Programmable Valves, also known as shunts, and how it relates to patients. Please read and share the latest information on the recall.
Looking Back…Moving Forward: Adding a Touch of Pixie Dust
Tina Daniels, Hydrocephalus Association Support Group leader in Owasso, OK, shares her experiences living with hydrocephalus and her decision to lead a support group.
Codman Announces Voluntary Recall of CERTAS™ Programmable Valve
Codman announced yesterday that it has made a proactive decision to recall any CERTAS™ programmable valves still in stock at hospitals and medical facilities. According to Codman, this recall was not initiated as a result of reported problems with the shunt in patients.
Brushes with Mortality: 5 Lessons On Dealing with Hard Times
Rachel Katz, diagnosed with hydrocephalus at the age of 12, shares the transformational gift she received after her last shunt revision. Read her blog. Be inspired.
HCRN Update: Shunt Outcomes in Post Hemorrhagic Hydrocephalus
In a new Research Department blog series, HCRN Update, Ashly Westrick interviews Dr. Jay Wellons, principal HCRN investigator for the Shunt Outcomes in Post Hemorrhagic Hydrocephalus study.
Looking Back…Moving Forward: It Doesn’t Make Us Different…It Makes Us Stronger
Teens Take Charge Advisory Council member, Wyatt Barris, speaks out about living with hydrocephalus and being an advocate for the condition.
Looking Back…Moving Forward: From the NICU to Medical School
Jennifer Bechard sits down with Jamie Wright, our Support Group Leader in Houston, TX, as we continue our history series commemorating our 30th anniversary. Jamie was born six weeks prematurely, diagnosed with post-hemorrhagic hydrocephalus, and was shunted at 20 months old. She is now in her second year of medical school at the University of Texas Medical School at Houston, where she is in a combined MD/PhD program.
I Smile Because You Are My Sibling…
The relationship between siblings is complex and sometimes even…shall we say… strained, but there is a powerful, unbreakable bond that endures through the best and hardest of times. Teens Take Charge (TTC) Advisory Council Members, Harrison Silver and Alexis Rocciola, share a special message to their siblings in our National Siblings Day blog honoring a special group of loved ones in our lives – brothers and sisters.
Update on Health Care Research Funding: Hydrocephalus Association in Action
In the monthly CEO Blog, Dawn Mancuso discusses the many ways HA advocates for members of our community.
Looking Back…Moving Forward: It’s About Relationships
HA Board Member and former VP of Sales for Medtronic, Ralph Kistler, reflects back on his 20+ year relationship with the Hydrocephalus Association.
President Announces Funding for BRAIN Initiative
President Obama announced that he is proposing $100 million in federal research dollars toward a brain mapping initiative that will ultimately open the door to better treatment options for many brain conditions, including traumatic brain injuries, Alzheimer’s disease, and stroke.