HA Blog
To Share or Not to Share Your Condition on a First Date?
Our guest blogger talks about the thrill of the first date and whether or not to bring up living with hydrocephalus.
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Solving for X
Ariel Yong, guest blogger for the Hydrocephalus Association Teens Take Charge program, shares her journey with math and her ultimate accomplishment of graduating from college with a degree in mathematics.
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In Memoriam: Cynthia E. Solomon
The Hydrocephalus Association is saddened to share the passing of an icon in the hydrocephalus community and one of our co-founders – Cynthia E. Solomon. She dedicated her life to helping others. She will be greatly missed.
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Voices from Our Community: Dr. Harold Conn’s Decade of NPH Misdiagnosis
The Hydrocephalus Association is commemorating the 50th anniversary of the recognition of normal pressure hydrocephalus (NPH) as a distinct medical syndrome through the journeys of members of our hydrocephalus community on the road to proper diagnosis and treatment of this life-altering condition.
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Congratulations 2013-2014 Brian Christopher Newcomer Reaching for Racquets Tennis Scholarship Recipients!
The Hydrocephalus Association is so pleased to announce the 2013-2014 Brian Christopher Newcomer Reaching for Racquets Tennis Scholarship Recipients!
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Mary Decker Mentorship Award Recipient Announced
The Hydrocephalus Association is proud to announce Cathy Cartwright as this year’s Mary Decker Mentorship Award recipient for her tremendous passion, caregiving, and nurturing of children with hydrocephalus
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One Person CAN Change the World
In Megan Redfearn’s installment of her blog series, Emma Lee and Me, Megan talks about the strength of her daughter and the impact it has had on her and…well…the world!
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AARP Bulletin Features Normal Pressure Hydrocephalus
The April 2014 issue of the AARP Bulletin featured an article that highlights normal pressure hydrocephalus as a condition that mimics dementia, helping raise awareness about an often undiagnosed or misdiagnosed treatable neurological condition that affects up to 700,000 persons in the United States alone.
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Never Give Up
Ariel Yong follows up on the topic of our recent video blog by Debby Buffa about kids with hydrocephalus playing sports by talking about the lessons she learned as an athlete.
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Bringing Normal Pressure Hydrocephalus Out of Obscurity
In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?
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Hydro Queen
Karly Rodriguez wrote this powerful and honest poem one month prior to her ETV procedure, after being diagnosed with hydrocephalus in 2012.
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Breaking the ICE
We have a NEW guest blogger for the Hydrocephalus Association Teens Take Charge program. Meet Henry and join the conversation on Twitter. Use #TeensTC.
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50th Anniversary of the Recognition of Normal Pressure Hydrocephalus
March 10, 2014, marks the 50th anniversary of the recognition of NPH as a distinct medical condition, allowing countless people access to the treatment needed to return to active lifestyles after possibly years of living with misdiagnosed dementia.
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HA and the Rudi Schulte Research Institute Announce a New Research Venture
The Hydrocephalus Association and the Rudi Schulte Research Institute (RSRI) announce a joint research venture with Dr. Mark Wagshul.
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Looking Back…Moving Forward: A Most Precious Gift
As the Hydrocephalus Association wraps up its interview series commemorating our 30th anniversary, we sit down with Russell Fudge, a founding member of HA.
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Looking Back…Moving Forward: Facing the Future with Fierce Determination and Optimism
As the Hydrocephalus Association continues it’s 30th anniversary commemoration, Elijah Lawrence shares his college essay, a reflection the values and gifts he lives every day of his life.
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Medical Advisory Board Member on Research Team to Investigate Long-Term Outcomes of TBI
Dr. Richard Ellenbogen, a UW neurosurgeon and a member of the Hydrocephalus Association Medical Advisory Board, will serve as a principal investigator on a two-year, $2.4 million study looking into the long-term implications of damage to the brain caused by TBI, funded by Seattle Seahawks owner and Microsoft Co-founder, Paul Allen.
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Looking Back…Moving Forward: Mentoring the Future Voice of Hydrocephalus
Jennifer Bechard, the Hydrocephalus Association’s Teens Take Charge mentor and Education and Support Manager, shares her views on growing up with hydrocephalus and mentoring the future voice of hydrocephalus through her work with the teen and young adult community.
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Looking Back…Moving Forward: A Trusted Source for Information
As the Hydrocephalus Association continues its interview series commemorating our 30th anniversary, Tammy Knight shares the value of support and trusted information for parents and individuals.
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Personifying Determination: Gabby Giffords
Former Congresswoman Gabrielle Giffords, who acquired hydrocephalus after the tragic incident which took place in 2011, shares a personal message to the hydrocephalus community.
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