HA Blog
Looking Back…Moving Forward: One Vision Built on Determination
Hydrocephalus Association commemorates our 30th anniversary with a series of interviews with members of our community. These intimate and conversational pieces provide both educational content as well as a historical perspective on the heart behind the work of our association. This week we sit down with two of our founding members, Emily Fudge and Cynthia Solomon, to discuss the early days of forming the association, including their vision and their challenges.
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Hydrocephalus Association at 30
In 1983, a small group of parents of children with hydrocephalus living in the San Francisco Bay area came together seeking community and support. Thirty years ago could this group of determined and committed individuals have imagined that the Hydrocephalus Association would become the nation’s largest and most widely respected advocacy group dedicated to hydrocephalus?
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Teen Voices: Taking on High School with No Regrets
Starting high school can be tough, especially when you are dealing with a medical condition such as hydrocephalus. Madeleine shares her advice for taking on high school.
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A Mother’s Love
A Mother’s Love, Andrea By Alexandrea, diagnosed at 6 weeks (who is non-verbal) written by…
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Is There a Cure for My Dementia?
Today’s article in Parade Magazine, What If Grandpa Doesn’t Really Have Alzheimer’s?, plays an important role in our quest to educate the public about the form of hydrocephalus called Normal Pressure Hydrocephalus or NPH. While the condition was identified over 50 years ago, there is little research into the condition, which so far is the only known reversible form of dementia but it is often mistaken for Alzheimer’s or Parkinson’s Disease.
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Announcing our Hydrocephalus Association TTC Scholarship Recipients!
The Hydrocephalus Association Teens Take Charge program trains teenagers and young adults (and their siblings), who are affected by hydrocephalus, to take charge of the condition and become self-advocates with both health professionals and with their legislators. Through a generous grant from the Medtronic Foundation, the Hydrocephalus Association is able to award five scholarships, in the amount of $1,000, to teens and young adults (ages 17 to 25) who are affected by hydrocephalus.
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Making Life Happen: Living Life with Spina Bifida and Hydrocephalus
Meet Luke Russell, a freshman at the University of Wisconsin-Whitewater who plans to major in marine biology with either a second major or a minor in psychology. He has spina bifida and hydrocephalus.
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Voices from Our Community: David Walters Shares his Hydrocephalus Story
David Walters was diagnosed with hydrocephalus at 2 weeks old and has had one shunt revision. He is an active teenager and member of the Hydrocephalus Association Teens Take Charge program. Read his story.
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Voices from Our Community: Joyce Schwartz Spreads Her Message about Normal Pressure Hydrocephalus
Joyce Schwartz shares her 23 year journey of searching for a diagnosis and then treatment for Normal Pressure Hydrocephalus (HA).
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Voices from Our Community: Milton Newman Shares His Story of NPH
Fog is Lifted After 15 Years of Confusion and Misdiagnosis Milt Newman’s retirement was not…
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Voices from Our Community: Abby Shares Her Life Experiences With Hydrocephalus!
By: Abby Wood Hi! My name is Abby. I turned 12 years old at the…
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Announcing our 2012 Hydrocephalus Association Scholarship Recipients!
We are pleased to announce the 2012 Hydrocephalus Association Scholarship Recipients. The scholarship program marks…
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Congress Discusses Hydrocephalus and our Military
by Paul Gross, HA Chairman of the Board of Directors Yesterday, hydrocephalus was a hot…
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Hydrocephalus Association’s Resident’s Prize: Dr. Ashley G. Tian
One way the Hydrocephalus Association promotes research and leadership in hydrocephalus is through our annual Resident’s Prize.
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HA Funds Research, Announces New Research Grants
HA is pleased to announce two recipients of the Hydrocephalus Association’s grant program focusing on…
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There are a Million Hydrocephalus Stories; This is the Story of Tracy
Head Above Water By Tracy Taback Today, I am a healthy 31-year-old woman who just…
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Announcing our 2011 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2011 Hydrocephalus Association Scholarship Recipients.
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There are a Million Hydrocephalus Stories; This is the Story of Hannah
by HA Member Susan Andersen Moore Our daughter Hannah has a programmable VP shunt for…
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Workplace Communication Tips for People Living with Disabilities
Just because you have a disability doesn’t mean you can’t be successful in the workplace. It’s important to know your rights and to have good communication skills.
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