HA Blog

Raising Awareness about Hydrocephalus, One Stroke at a Time

July 30, 2013

Thomas, who was diagnosed with hydrocephalus as an infant, has become a successful competitive swimmer, finding balance and freedom in the pool.

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Looking Back…Moving Forward: With A Little Help From My Friends

July 24, 2013

In commemoration of the Hydrocephalus Association 30th anniversary, David Walters, Teens Take Charge member, shares his thoughts on the importance of our biannual conference and the impact of the Hydrocephalus Association (HA).

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Looking Back…Moving Forward: Celebrating 10 Years as a WALK Chair

July 18, 2013

As we continue our interview series in commemoration of the Hydrocephalus Association’s 30th anniversary, we sit down with Phyllis Rogers, who is in her 10th year chairing the Denver WALK, as she reflects on her drive to continue to chair the WALK and her hopes for the future of the Hydrocephalus Association.

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The Intrepid Traveler: My Trip to Machu Pichu, Peru

July 11, 2013

In the second entry of her travel journal, Gina Barbaro shares her journey to Machu Pichu and tips on travelling to high altitudes with hydrocephalus.

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Looking Back…Moving Forward: Creating a Sense of Community

July 3, 2013

The Hydrocephalus Association continues our 30th anniversary interview series with Summer Minchew, our Charlotte, NC Support Group leader. She reflects on her role as a support group leader and moving the vision beyond the traditional support group framework aand into creating a hydrocephalus community.

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scholarship, hydrocephalus

Announcing Our 2013 Hydrocephalus Association Scholarship Recipients!

July 2, 2013

The Hydrocephalus Association is proud to announce our 2013 scholarship recipients.

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HCRN Update: Biomarkers in Post Hemorrhagic Hydrocephalus

June 25, 2013

Dr. David Limbrick discusses his current research study which aims to develop a complementary tool to supplement the information from imaging in order to determine the best time to treat infants with post hemorrhagic hydrocephalus.

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Looking Back…Moving Forward: A Mom with a Mission

June 19, 2013

As the Hydrocephalus Association continues its interview series in commemoration of their 30th anniversary, Amanda Garzon, HA’s Communications and Marketing Manager, opens up about mothering a child with hydrocephalus and shares her personal reflections on the association.

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Looking Back…Moving Forward: Houston, We Have Lift Off!

June 12, 2013

The Hydrocephalus Association 30th anniversary interview series continues with our Houston WALK Co-Chair, Margaret Powers as she shares her thoughts about the Hydrocephalus Association and starting and coordinating a WALK.

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HA Established Investigator Publishes Research Findings on Congenital Hydrocephalus

June 6, 2013

James P. (Pat) McAllister, PhD, Director of Basic Hydrocephalus Research at the University of Utah and a Hydrocephalus Association Established Investigator grantee, has had his research findings related to congenital hydrocephalus published in the journal, Cell and Tissue Research.

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Looking Back…Moving Forward: Dedicated to Human and Community Service

June 5, 2013

“Be yourself, and do not let hydrocephalus define who you are.” A quote from a graduating college senior as she reflects on the 30th anniversary of the Hydrocephalus Association in our interview series.

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Behind the Recall: Codman Provides Details

May 28, 2013

The Hydrocephalus Association sits down with a vice president from Codman Neuro and two members of our Medical Advisory Board (MAB) to discuss the recent recall of CODMAN® CERTAS™ Programmable Valves, also known as shunts, and how it relates to patients. Please read and share the latest information on the recall.

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Looking Back…Moving Forward: Adding a Touch of Pixie Dust

May 22, 2013

Tina Daniels, Hydrocephalus Association Support Group leader in Owasso, OK, shares her experiences living with hydrocephalus and her decision to lead a support group.

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Codman Announces Voluntary Recall of CERTAS™ Programmable Valve

May 18, 2013

Codman announced yesterday that it has made a proactive decision to recall any CERTAS™ programmable valves still in stock at hospitals and medical facilities. According to Codman, this recall was not initiated as a result of reported problems with the shunt in patients.

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Brushes with Mortality: 5 Lessons On Dealing with Hard Times

May 17, 2013

Rachel Katz, diagnosed with hydrocephalus at the age of 12, shares the transformational gift she received after her last shunt revision. Read her blog. Be inspired.

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HCRN Update: Shunt Outcomes in Post Hemorrhagic Hydrocephalus

April 18, 2013

In a new Research Department blog series, HCRN Update, Ashly Westrick interviews Dr. Jay Wellons, principal HCRN investigator for the Shunt Outcomes in Post Hemorrhagic Hydrocephalus study.

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Looking Back…Moving Forward: It Doesn’t Make Us Different…It Makes Us Stronger

April 17, 2013

Teens Take Charge Advisory Council member, Wyatt Barris, speaks out about living with hydrocephalus and being an advocate for the condition.

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Looking Back…Moving Forward: From the NICU to Medical School

April 10, 2013

Jennifer Bechard sits down with Jamie Wright, our Support Group Leader in Houston, TX, as we continue our history series commemorating our 30th anniversary. Jamie was born six weeks prematurely, diagnosed with post-hemorrhagic hydrocephalus, and was shunted at 20 months old. She is now in her second year of medical school at the University of Texas Medical School at Houston, where she is in a combined MD/PhD program.

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I Smile Because You Are My Sibling…

April 10, 2013

The relationship between siblings is complex and sometimes even…shall we say… strained, but there is a powerful, unbreakable bond that endures through the best and hardest of times. Teens Take Charge (TTC) Advisory Council Members, Harrison Silver and Alexis Rocciola, share a special message to their siblings in our National Siblings Day blog honoring a special group of loved ones in our lives – brothers and sisters.

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Update on Health Care Research Funding: Hydrocephalus Association in Action

April 9, 2013

In the monthly CEO Blog, Dawn Mancuso discusses the many ways HA advocates for members of our community.

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