HA Blog
Looking Back…Moving Forward: With Laughter In His Heart
The Hydrocephalus Association continues it’s 30th anniversary interview series with Sam Marks, life-long HA member, as he shares his unique experience growing up with the Hydrocephalus Association and his advice for confronting life’s challenges.
Read MoreLooking Back…Moving Forward: Hydrocephalus Awareness, New York Style!
The Hydrocephalus Association continues its 30th anniversary history series with an interview with our Long Island WALK Chair, Mia Padron. Mia is determined to raise awareness for hydrocephalus, and it doesn’t stop with leading a WALK. New York celebrates Hydrocephalus Awareness Month because of this woman.
Read MoreHCRN Update: Shunt Infection Risk and Treatment in Children
Dr. Tamara Simon discusses her work as the Principal Investigator for the shunt infection registry for the Hydrocephalus Clinical Research Network. Her study aims to understand the risk factors associated with shunt infection and how shunt infections are being treated.
Read MoreLooking Back…Moving Forward: Telling Her Own Story
The Hydrocephalus Association continues its 30th anniversary interview series with Olivia Maccoux, a high school senior, who feels she has been given the opportunity to grow and help others struggling with the challenges of hydrocephalus.
Read MoreLooking Back…Moving Forward: The Need to Value Shunt Management
As the Hydrocephalus Association continues our 30th anniversary interview series, Ann Marie Flannery, M.D., shares her thoughts on young adults transitioning to adult neurological care and issues a call to action for society to value the management of shunts and the individuals living with them.
Read MoreLooking Back…Moving Forward: A Sister’s Love
Roxana Ramos became a Hydrocephalus Association Support Group leader to connect her brother to others that have hydrocephalus, only to realize family members benefit, as well. As we continue our interview series commemorating our 30th anniversary, we sit down with Roxana to talk about her motivation behind her volunteer position and the value her service brings to the hydrocephalus community.
Read MoreLooking Back…Moving Forward: A Journey of Support
Debby Buffa has raised two daughters with hydrocephalus and provided support to hundreds of families since the early 1980s. As the Hydrocephalus Association (HA) continues its 30th anniversary interview series, Debby shares her journey with HA over the last 30 years.
Read MoreMedical Device Development and Evolution: A Comparative Study
In this educational blog, Marvin Sussman, PhD, compares the evolution of the cardiac pacemaker and radiation oncology with that of the shunt to treat hydrocephalus over a 60 year period.
Read MoreLooking Back…Moving Forward: Rising to the Challenge
As we continue our interview series commemorating the 30th anniversary of the Hydrocephalus Association, we sit down with former Board of Directors member and lifelong hydrocephalus advocate Mark Geiger.
Read MoreYou, the Healthcare Wizard and Finding the Perfect Plan
If you’re new to buying healthcare, finding the perfect plan can be like trying to find the Wizard without having a yellow brick road to guide you to the Emerald City, especially when you’re living with a pre-existing condition like hydrocephalus.
Read MoreRaising Awareness about Hydrocephalus, One Stroke at a Time
Thomas, who was diagnosed with hydrocephalus as an infant, has become a successful competitive swimmer, finding balance and freedom in the pool.
Read MoreLooking Back…Moving Forward: With A Little Help From My Friends
In commemoration of the Hydrocephalus Association 30th anniversary, David Walters, Teens Take Charge member, shares his thoughts on the importance of our biannual conference and the impact of the Hydrocephalus Association (HA).
Read MoreLooking Back…Moving Forward: Celebrating 10 Years as a WALK Chair
As we continue our interview series in commemoration of the Hydrocephalus Association’s 30th anniversary, we sit down with Phyllis Rogers, who is in her 10th year chairing the Denver WALK, as she reflects on her drive to continue to chair the WALK and her hopes for the future of the Hydrocephalus Association.
Read MoreThe Intrepid Traveler: My Trip to Machu Pichu, Peru
In the second entry of her travel journal, Gina Barbaro shares her journey to Machu Pichu and tips on travelling to high altitudes with hydrocephalus.
Read MoreLooking Back…Moving Forward: Creating a Sense of Community
The Hydrocephalus Association continues our 30th anniversary interview series with Summer Minchew, our Charlotte, NC Support Group leader. She reflects on her role as a support group leader and moving the vision beyond the traditional support group framework aand into creating a hydrocephalus community.
Read More
Announcing Our 2013 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association is proud to announce our 2013 scholarship recipients.
Read MoreHCRN Update: Biomarkers in Post Hemorrhagic Hydrocephalus
Dr. David Limbrick discusses his current research study which aims to develop a complementary tool to supplement the information from imaging in order to determine the best time to treat infants with post hemorrhagic hydrocephalus.
Read MoreLooking Back…Moving Forward: A Mom with a Mission
As the Hydrocephalus Association continues its interview series in commemoration of their 30th anniversary, Amanda Garzon, HA’s Communications and Marketing Manager, opens up about mothering a child with hydrocephalus and shares her personal reflections on the association.
Read MoreLooking Back…Moving Forward: Houston, We Have Lift Off!
The Hydrocephalus Association 30th anniversary interview series continues with our Houston WALK Co-Chair, Margaret Powers as she shares her thoughts about the Hydrocephalus Association and starting and coordinating a WALK.
Read MoreHA Established Investigator Publishes Research Findings on Congenital Hydrocephalus
James P. (Pat) McAllister, PhD, Director of Basic Hydrocephalus Research at the University of Utah and a Hydrocephalus Association Established Investigator grantee, has had his research findings related to congenital hydrocephalus published in the journal, Cell and Tissue Research.
Read More