Life with Hydrocephalus
Hydrocephalus and Sleep
Sarah has a passion for improving her and other’s sleep quality. Having suffered from sleep deprivation and feeling the effects across her entire life, she realized the importance of optimizing her sleep.
Physical Therapy Tips for NPH Patients
By the time Trish was diagnosed with NPH and had shunt surgery, she had lost her ability to walk unaided, so her neurosurgeon gave her a prescription for physical therapy.
Cognitive Therapy for NPH Patients
If you have Normal Pressure Hydrocephalus (NPH) you might find Cognitive Therapy useful. Trish Bogucki explains what it consists of and shares some tips for others who might be in the same boat she was in.
En Garde! The Sport of Fencing and Hydrocephalus
Jonathan, who lives with spina bifida and hydrocephalus, shares discovering fencing as a form of exercise and competition.
What Can’t You Live Without?
Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.
Navigating Social Interactions Growing Up with Hydrocephalus
In Dan’s new blog, he talks about growing up with a chronic medical condition and navigating social interactions with his school peers.
From 0 to 60: Driving and Hydrocephalus
For teenagers, learning to drive and getting a license is an important rite of passage. Having hydrocephalus adds a layer of complexity to the learning process.
Never Give Up
Ariel Yong follows up on the topic of our recent video blog by Debby Buffa about kids with hydrocephalus playing sports by talking about the lessons she learned as an athlete.
Teen Voices: Hydrocephalus has Changed My Life
I am amazed at how hydrocephalus has changed my life…but I would not change it. Here is my story. Within weeks of my birth the doctor expressed concerns about the amount of growth of my head. My parents were referred to a neurologist who diagnosed me with communicating hydrocephalus
A Mother’s Love
A Mother’s Love, Andrea By Alexandrea, diagnosed at 6 weeks (who is non-verbal) written by…
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