Life with Hydrocephalus

Hydrocephalus and Sleep

July 10, 2017

Sarah has a passion for improving her and other’s sleep quality. Having suffered from sleep deprivation and feeling the effects across her entire life, she realized the importance of optimizing her sleep.

Physical Therapy Tips for NPH Patients

July 4, 2017

By the time Trish was diagnosed with NPH and had shunt surgery, she had lost her ability to walk unaided, so her neurosurgeon gave her a prescription for physical therapy.

Cognitive Therapy for NPH Patients

May 18, 2017

If you have Normal Pressure Hydrocephalus (NPH) you might find Cognitive Therapy useful. Trish Bogucki explains what it consists of and shares some tips for others who might be in the same boat she was in.

En Garde! The Sport of Fencing and Hydrocephalus

April 12, 2017

Jonathan, who lives with spina bifida and hydrocephalus, shares discovering fencing as a form of exercise and competition.

What Can’t You Live Without?

November 15, 2016

Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.

Overcoming Bullying through a Passion for Sports

February 8, 2016

Bryant found sports to help him get through being bullied because of his hydrocephalus. He challenges us to each find our own passion and let it grow our individual confidence and resilience.

Navigating Social Interactions Growing Up with Hydrocephalus

August 12, 2015

In Dan’s new blog, he talks about growing up with a chronic medical condition and navigating social interactions with his school peers.

From 0 to 60: Driving and Hydrocephalus

January 28, 2015

For teenagers, learning to drive and getting a license is an important rite of passage. Having hydrocephalus adds a layer of complexity to the learning process.

Never Give Up

April 15, 2014

Ariel Yong follows up on the topic of our recent video blog by Debby Buffa about kids with hydrocephalus playing sports by talking about the lessons she learned as an athlete.

Stand and Deliver

June 18, 2013

Afraid or embarrassed to let others know you have hydrocephalus? Madeleine Darowiche shares her experience of telling her high school classmates about living with hydrocephalus.

Teen Voices: Hydrocephalus has Changed My Life

February 28, 2013

I am amazed at how hydrocephalus has changed my life…but I would not change it. Here is my story. Within weeks of my birth the doctor expressed concerns about the amount of growth of my head. My parents were referred to a neurologist who diagnosed me with communicating hydrocephalus

A Mother’s Love

December 13, 2012

A Mother’s Love, Andrea By Alexandrea, diagnosed at 6 weeks (who is non-verbal) written by…

Making Life Happen: Living Life with Spina Bifida and Hydrocephalus

October 25, 2012

Meet Luke Russell, a freshman at the University of Wisconsin-Whitewater who plans to major in marine biology with either a second major or a minor in psychology. He has spina bifida and hydrocephalus.