Life with Hydrocephalus
Sevi: A Story of Hope and Brotherly Love
When Sevi was first diagnosed with hydrocephalus, Tiana and Pete Chavez remember feeling terrified. But their fear quickly turned into a desire to help other children in need.
Wyatt: Meeting Adversity with Joy
Wyatt Foster was born with Spina Bifida and hydrocephalus and has already endured six surgeries before turning 3. Despite that, Wyatt brings joy to everyone he meets and pushes himself to achieve his milestones.
Finding Life’s Purpose Through Hydrocephalus
James “JT” Thompson developed hydrocephalus as a teen. Little did he know that his experience would help him find his purpose in life.
Surviving College with the Ups and Downs of Hydrocephalus
College is an exciting time but can be challenging when you’re living with hydrocephalus. Here are some tips to survive college while managing the ups and downs of hydrocephalus.
Extracurricular Activities and Hobbies: The Positive Effect They Have for Individuals with Disabilities
People with disabilities can benefit greatly by taking part in hobbies and extracurricular activities. Here are some tips to help you identify the activity that’s right for you.
My Incredible Experience at Camp Head Strong
I spent six days and five nights as a counselor at Camp Head Strong, the very first camp for kids with hydrocephalus. This was the second year of the camp, and judging by everyone’s excitement, I think it was the most successful camp of all!
Balance Therapy Tips for NPH Patients
A few months ago, I noticed that my balance was deteriorating so I mentioned it to my GP at my annual physical. He immediately ordered a CT scan and more Physical Therapy.
Exercise Tips for NPH patients
Trish recommends finding an activity to help you challenge both your mind and body and have fun while doing it! Read more about her exercise tips for NPH patients.
Interview with Olivia Bell, Cognitive Therapist – Part 2
This part of the interview touches on neuropsychology, debunking some misunderstandings about cognitive therapy (CT), some advice Olivia had for NPH patients and spreading the word about CT.
Interview with Olivia Bell, Cognitive Therapist – Part 1
This is the first part of Trish’s interview with cognitive therapist Olivia Bell. It covers who benefits from CT, how to find a therapist, and how to get the most out of the therapy appointments.
How I Decided to have Shunt Surgery
Trish was diagnosed with NPH in 2015 and had shunt surgery then. Thanks to the surgery and several kinds of therapy, Trish is now back to doing what she loves, including a killer step aerobics class at her gym and singing with her husband in a community chorus
Hydrocephalus and Sleep
Sarah has a passion for improving her and other’s sleep quality. Having suffered from sleep deprivation and feeling the effects across her entire life, she realized the importance of optimizing her sleep.
Physical Therapy Tips for NPH Patients
By the time Trish was diagnosed with NPH and had shunt surgery, she had lost her ability to walk unaided, so her neurosurgeon gave her a prescription for physical therapy.
Cognitive Therapy for NPH Patients
If you have Normal Pressure Hydrocephalus (NPH) you might find Cognitive Therapy useful. Trish Bogucki explains what it consists of and shares some tips for others who might be in the same boat she was in.
En Garde! The Sport of Fencing and Hydrocephalus
Jonathan, who lives with spina bifida and hydrocephalus, shares discovering fencing as a form of exercise and competition.
What Can’t You Live Without?
Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.
Overcoming Bullying through a Passion for Sports
Bryant found sports to help him get through being bullied because of his hydrocephalus. He challenges us to each find our own passion and let it grow our individual confidence and resilience.
Navigating Social Interactions Growing Up with Hydrocephalus
In Dan’s new blog, he talks about growing up with a chronic medical condition and navigating social interactions with his school peers.
From 0 to 60: Driving and Hydrocephalus
For teenagers, learning to drive and getting a license is an important rite of passage. Having hydrocephalus adds a layer of complexity to the learning process.
Never Give Up
Ariel Yong follows up on the topic of our recent video blog by Debby Buffa about kids with hydrocephalus playing sports by talking about the lessons she learned as an athlete.