From the Association
Welcome New Board Member Deitra Matthews
The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA.…
Warm Welcome to HA’s Three New Board Members
Deitra Matthews, MPA CEO, The Ram Foundation Columbia, SC Meet Deitra …
Life-changing Impact at Hydrocephalus Conference
How do you put a life-changing experience into words? The 17th National Conference on Hydrocephalus, is now in the rearview mirror for everyone in attendance from across the country and internationally, but the memories and the connections will leave a lasting impact.
Remembering Dr. Taeun Chang
It is with great sadness that the Hydrocephalus Association announces the passing of our colleague…
WALK to End Hydrocephalus® Participant Privacy Policy
This privacy policy governs your use of the software application WALK to End Hydrocephalus® for mobile devices.
The Hydrocephalus Scoop on Capitol Hill: Jan/Feb 2022 Update
It’s been a busy time in Congress. Find out what we’ve been up to on Capitol Hill!
HA’s Medical Advisory Board Issues New Statements Regarding COVID-19
The Hydrocephalus Association (HA)’s Medical Advisory Board (MAB) recently issued two new consensus statements regarding COVID-19 for people living with hydrocephalus.
Celebrating the Life of Dr. Shirley McBay
The Hydrocephalus Association celebrates the life of Dr. Shirley McBay, who passed away in late November. Dr. McBay was the first Black person to receive a doctorate from the University of Georgia and was a pioneer in advocating for diversity in science and math education. She was diagnosed with diabetes and Normal Pressure Hydrocephalus.
2021 WALK to End Hydrocephalus Raises over $1.6 Million
Our WALK to End Hydrocephalus program had a successful year, raising over $1.6 million for HA’s research, support, education and advocacy efforts.
Isabella Advocates for Children in Congress
Like many kids living with hydrocephalus, Isabella is a fighter. This year, she brought her fighting spirit to Congress advocating for better healthcare services for children!
Announcing our 2021 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2021 Hydrocephalus Association Scholarship Recipients.
The Hydrocephalus Scoop on Capitol Hill – Sept/Oct 2021
The Hydrocephalus Association has been busy protecting hydrocephalus-related research dollars in Congress, and working with members Congress to recognize National Hydrocephalus Awareness Month.
Make Some Noise for Hydrocephalus Awareness Month!
September is Hydrocephalus Awareness Month (HAM), our chance to shine a light on hydrocephalus and how it impacts our community!
Non-Discrimination Policy
It is the policy of the Hydrocephalus Association that all grants and services provided by…
The Hydrocephalus Scoop on Capitol Hill March 2021
The cherry blossoms are blooming in Washington, DC, which is a sure sign that the new Congressional session is well underway. Let’s get you up to speed on what’s been happening on hydrocephalus policy issues so far.
Great.com Interviews Hydrocephalus Association About the Promising Search for New Treatments
Spirit Rosenberg from Great.com interviewed the Hydrocephalus Association as part of their ‘Great.com Talks With…’…
Diana Gray Named Chair of National Health Council Board
Diana Gray, HA President and CEO, was named Chairperson of the National Health Council (NHC) Board of Directors for 2021. She was elected to the role at the NHC’s annual membership meeting this week.
Announcing our 2020 Hydrocephalus Association Scholarship Recipients!
We’re pleased to announce the 2020 Hydrocephalus Association Scholarship Award Recipients. HA’s scholarship program was established in 1994 to provide financial assistance to capable and promising teens, young adults, and adults who live with the ongoing challenges and complexities of hydrocephalus.
HA Welcomes New National Director of Development
Linda Riley has joined the Hydrocephalus Association as the new National Director of Development. Linda brings more than 20 years of fundraising experience to this position.
The Hydrocephalus Scoop on Capitol Hill | November 2019
Believe it or not, the impeachment debate isn’t the only thing happening in Washington, DC! Here’s a quick rundown.