Advocacy
Get the Hydrocephalus Scoop on Capitol Hill for January 2024
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
The Hydrocephalus Scoop on Capitol Hill for December 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
The Hydrocephalus Scoop on Capitol Hill for November 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
The Hydrocephalus Scoop on Capitol Hill for October 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
The Hydrocephalus Scoop on Capitol Hill for September 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
The Hydrocephalus Scoop on Capitol Hill | August 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
The Hydrocephalus Scoop on Capital Hill for May 2023
Right now, Congress has two important tasks as it works to increase the country’s debt limit and also come to agreement on how much money will be spent in next year’s federal budget. Here’s the scoop on what’s happening on hydrocephalus issues.
Resources for Lawmakers
Are you having a meeting with an elected official that you would like to get involved with the mission of HA? Find resources, that you can leave with individuals at the end of your meeting or send via email as part of your follow-up.
The Hydrocephalus Scoop on Capitol Hill: Jan/Feb 2022 Update
It’s been a busy time in Congress. Find out what we’ve been up to on Capitol Hill!
Isabella Advocates for Children in Congress
Like many kids living with hydrocephalus, Isabella is a fighter. This year, she brought her fighting spirit to Congress advocating for better healthcare services for children!
Fighting for Hydrocephalus Funding in Congress. October Update
October has been a busy time for Congress, and the Hydrocephalus Association has been hard at work ensuring that we have a seat at the table. We have an exciting new bill introduced and an update on congressional funding for hydrocephalus research.
The Hydrocephalus Scoop on Capitol Hill – Sept/Oct 2021
The Hydrocephalus Association has been busy protecting hydrocephalus-related research dollars in Congress, and working with members Congress to recognize National Hydrocephalus Awareness Month.
Coalitions and Memberships
Coalitions and Memberships The Hydrocephalus Association collaborates with various organizations and coalitions on policy issues…
Tips on Writing Your Legislator
Keep your email or letter short and to the point. Use only enough facts to…
Tips on Calling Your Legislator
Before making a call, write out what you want to say. Know the issue. Be…
Tips for Meeting with Elected Officials
As many of you know from attending one of our Advocacy Days, a personal visit…
Our Advocacy Impact
We started our advocacy efforts in the late 1990s, representing the patient community at a handful of federally-hosted events. It was not until 2004 that we began to formalize an advocacy strategy when we put the wheels in motion for the first NIH sponsored workshop on hydrocephalus in September of 2005.
The Hydrocephalus Scoop on Capitol Hill | November 2019
Believe it or not, the impeachment debate isn’t the only thing happening in Washington, DC! Here’s a quick rundown.
The Hydrocephalus Scoop on Capitol Hill | August 2019
Hydrocephalus-related policy issues have been on the move in Congress. We thought we’d give you a quick rundown on what’s going on and how it impacts our community.
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