Advocacy

Hydrocephalus Scoop

Get the Hydrocephalus Scoop on Capitol Hill for June 2024

July 1, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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National Partnership for Pediatric to Adult Care Transition (NPPACT) Hosts First Congressional Event

June 27, 2024

The Hydrocephalus Association, alongside several other organizations, hosted a Capitol Hill Briefing to address the significant challenges young adults with pediatric-onset conditions face when transitioning to the adult healthcare system, highlighting the urgent need for improved continuity of care and systemic support.

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Patient Engagement: A Key Healthcare Priority

Patient Engagement: A Key Healthcare Priority

June 3, 2024

HA staff recently attended the National Health Council’s (NHC) Science of Patient Engagement Symposium. The event, hosted in Washington, D.C., brought together an array of patients and patient organizations to speak on the importance of patient-centered programs and policies within the American healthcare system.

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Hydrocephalus Scoop

Get the Hydrocephalus Scoop on Capitol Hill | May 2024

June 3, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Hydrocephalus Scoop

Get the Hydrocephalus Scoop on Capitol Hill for April 2024

May 7, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Hydrocephalus Scoop

Hydrocephalus Scoop on Capitol Hill for March 2024

April 8, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues. (March 2024)

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Congressional Briefing

Hydrocephalus Association Congressional Briefing on Capitol Hill

April 5, 2024

The Hydrocephalus Association recently partnered with the Defense Health Research Consortium (DHRC) to host a research-centered Congressional Briefing on Capitol Hill.

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Women in Medical Research

Hydrocephalus Association Highlights Revolutionary Women in Medical Research

March 13, 2024

Celebrate Influential Leaders during National Women’s History Month. Dr. Robinson & Dr. Jantzie are both revolutionary women making strides for hydrocephalus

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Hydrocephalus Scoop

Get the Hydrocephalus Scoop on Capitol Hill for February 2024

March 8, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Hydrocephalus Association Advocates for Rare Disease Week

Hydrocephalus Association Unites Advocates for 2024 Rare Disease Week

March 5, 2024

Members from the Hydrocephalus Association Action Network came to Washington, DC, to participate in the Everylife Foundation for Rare Disease’s Rare Disease Week, which took place from February 25-28, 2024.

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Hydrocephalus Scoop

Get the Hydrocephalus Scoop on Capitol Hill for January 2024

February 6, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Hydrocephalus Scoop

The Hydrocephalus Scoop on Capitol Hill for December 2023

January 2, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Hydrocephalus Scoop

The Hydrocephalus Scoop on Capitol Hill for November 2023

December 8, 2023

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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The Hydrocephalus Scoop on Capitol Hill for October 2023

October 31, 2023

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Hydrocephalus Scoop

The Hydrocephalus Scoop on Capitol Hill for September 2023

October 2, 2023

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Hydrocephalus Scoop

The Hydrocephalus Scoop on Capitol Hill | August 2023

August 31, 2023

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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The Hydrocephalus Scoop on Capital Hill for May 2023

June 1, 2023

Right now, Congress has two important tasks as it works to increase the country’s debt limit and also come to agreement on how much money will be spent in next year’s federal budget. Here’s the scoop on what’s happening on hydrocephalus issues.

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Resources for Lawmakers

August 29, 2022

Are you having a meeting with an elected official that you would like to get involved with the mission of HA? Find resources, that you can leave with individuals at the end of your meeting or send via email as part of your follow-up.

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The Hydrocephalus Scoop on Capitol Hill: Jan/Feb 2022 Update

February 7, 2022

It’s been a busy time in Congress. Find out what we’ve been up to on Capitol Hill!

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Isabella Advocates for Children in Congress

November 29, 2021

Like many kids living with hydrocephalus, Isabella is a fighter. This year, she brought her fighting spirit to Congress advocating for better healthcare services for children!

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