Advocacy
Get the Hydrocephalus Scoop on Capitol Hill for June 2024
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreNational Partnership for Pediatric to Adult Care Transition (NPPACT) Hosts First Congressional Event
The Hydrocephalus Association, alongside several other organizations, hosted a Capitol Hill Briefing to address the significant challenges young adults with pediatric-onset conditions face when transitioning to the adult healthcare system, highlighting the urgent need for improved continuity of care and systemic support.
Read MorePatient Engagement: A Key Healthcare Priority
HA staff recently attended the National Health Council’s (NHC) Science of Patient Engagement Symposium. The event, hosted in Washington, D.C., brought together an array of patients and patient organizations to speak on the importance of patient-centered programs and policies within the American healthcare system.
Read MoreGet the Hydrocephalus Scoop on Capitol Hill | May 2024
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreGet the Hydrocephalus Scoop on Capitol Hill for April 2024
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreHydrocephalus Scoop on Capitol Hill for March 2024
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues. (March 2024)
Read MoreHydrocephalus Association Congressional Briefing on Capitol Hill
The Hydrocephalus Association recently partnered with the Defense Health Research Consortium (DHRC) to host a research-centered Congressional Briefing on Capitol Hill.
Read MoreHydrocephalus Association Highlights Revolutionary Women in Medical Research
Celebrate Influential Leaders during National Women’s History Month. Dr. Robinson & Dr. Jantzie are both revolutionary women making strides for hydrocephalus
Read MoreGet the Hydrocephalus Scoop on Capitol Hill for February 2024
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreHydrocephalus Association Unites Advocates for 2024 Rare Disease Week
Members from the Hydrocephalus Association Action Network came to Washington, DC, to participate in the Everylife Foundation for Rare Disease’s Rare Disease Week, which took place from February 25-28, 2024.
Read MoreGet the Hydrocephalus Scoop on Capitol Hill for January 2024
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreThe Hydrocephalus Scoop on Capitol Hill for December 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreThe Hydrocephalus Scoop on Capitol Hill for November 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreThe Hydrocephalus Scoop on Capitol Hill for October 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreThe Hydrocephalus Scoop on Capitol Hill for September 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreThe Hydrocephalus Scoop on Capitol Hill | August 2023
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreThe Hydrocephalus Scoop on Capital Hill for May 2023
Right now, Congress has two important tasks as it works to increase the country’s debt limit and also come to agreement on how much money will be spent in next year’s federal budget. Here’s the scoop on what’s happening on hydrocephalus issues.
Read MoreResources for Lawmakers
Are you having a meeting with an elected official that you would like to get involved with the mission of HA? Find resources, that you can leave with individuals at the end of your meeting or send via email as part of your follow-up.
Read MoreThe Hydrocephalus Scoop on Capitol Hill: Jan/Feb 2022 Update
It’s been a busy time in Congress. Find out what we’ve been up to on Capitol Hill!
Read MoreIsabella Advocates for Children in Congress
Like many kids living with hydrocephalus, Isabella is a fighter. This year, she brought her fighting spirit to Congress advocating for better healthcare services for children!
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