Hydrocephalus Blog & Resources
Research UPDATE: Exploring Alternative Treatments
In our third installment of the Mentored Young Investigator (MYI) blog series, we showcase 2009…
Looking Back…Moving Forward: With Laughter In His Heart
The Hydrocephalus Association continues it’s 30th anniversary interview series with Sam Marks, life-long HA member, as he shares his unique experience growing up with the Hydrocephalus Association and his advice for confronting life’s challenges.
Looking Back…Moving Forward: Hydrocephalus Awareness, New York Style!
The Hydrocephalus Association continues its 30th anniversary history series with an interview with our Long Island WALK Chair, Mia Padron. Mia is determined to raise awareness for hydrocephalus, and it doesn’t stop with leading a WALK. New York celebrates Hydrocephalus Awareness Month because of this woman.
HCRN Update: Shunt Infection Risk and Treatment in Children
Dr. Tamara Simon discusses her work as the Principal Investigator for the shunt infection registry for the Hydrocephalus Clinical Research Network. Her study aims to understand the risk factors associated with shunt infection and how shunt infections are being treated.
Looking Back…Moving Forward: Telling Her Own Story
The Hydrocephalus Association continues its 30th anniversary interview series with Olivia Maccoux, a high school senior, who feels she has been given the opportunity to grow and help others struggling with the challenges of hydrocephalus.
Looking Back…Moving Forward: The Need to Value Shunt Management
As the Hydrocephalus Association continues our 30th anniversary interview series, Ann Marie Flannery, M.D., shares her thoughts on young adults transitioning to adult neurological care and issues a call to action for society to value the management of shunts and the individuals living with them.
Looking Back…Moving Forward: A Sister’s Love
Roxana Ramos became a Hydrocephalus Association Support Group leader to connect her brother to others that have hydrocephalus, only to realize family members benefit, as well. As we continue our interview series commemorating our 30th anniversary, we sit down with Roxana to talk about her motivation behind her volunteer position and the value her service brings to the hydrocephalus community.
Looking Back…Moving Forward: A Journey of Support
Debby Buffa has raised two daughters with hydrocephalus and provided support to hundreds of families since the early 1980s. As the Hydrocephalus Association (HA) continues its 30th anniversary interview series, Debby shares her journey with HA over the last 30 years.
Medical Device Development and Evolution: A Comparative Study
In this educational blog, Marvin Sussman, PhD, compares the evolution of the cardiac pacemaker and radiation oncology with that of the shunt to treat hydrocephalus over a 60 year period.
Looking Back…Moving Forward: Rising to the Challenge
As we continue our interview series commemorating the 30th anniversary of the Hydrocephalus Association, we sit down with former Board of Directors member and lifelong hydrocephalus advocate Mark Geiger.
You, the Healthcare Wizard and Finding the Perfect Plan
If you’re new to buying healthcare, finding the perfect plan can be like trying to find the Wizard without having a yellow brick road to guide you to the Emerald City, especially when you’re living with a pre-existing condition like hydrocephalus.
Raising Awareness about Hydrocephalus, One Stroke at a Time
Thomas, who was diagnosed with hydrocephalus as an infant, has become a successful competitive swimmer, finding balance and freedom in the pool.