Hydrocephalus Blog & Resources
Research UPDATE: Preventing Hydrocephalus in Premature Infants
In a study published in the journal Brain, researchers find that the infusion of a naturally occurring protein can prevent the development of hydrocephalus after an intraventricular hemorrhage. The results show great promise in the work to develop a preventive therapy for the development of hydrocephalus, particularly in one of our most fragile populations, premature infants.
Looking Back…Moving Forward: Advancing the Research Mission
As the Hydrocephalus Association continues it’s 30th anniversary commemoration, David Browdy, Board Member and Chair of the Research Committee, reminisces about the history of the association and shares a vision for the future.
Wanted: Partners in the Journey
Hydrocephalus Association CEO Dawn Mancuso shares her excitement and gratitude for a special event held for the Hydrocephalus Association in New York City on October 10, 2013, that moves the association mission closer to raising greater awareness of hydrocephalus and, ultimately, finding a cure.
Looking Back…Moving Forward: Leading the Charge to WALK to End Hydrocephalus
What started as a walk across the Bay Bridge has grown into the Hydrocephalus Association (HA) WALK program, hosting 32 WALKS across the country to raise awareness for hydrocephalus. This week we interview Randi Corey, Director of Special Events, who shares her vision for the future of the association.
Happening NOW: First Annual Vision Dinner in New York City
The Hydrocephalus Association’s First Annual Vision Dinner, “A Time for Awareness; The Hope for a Cure,” unites politicians, neurosurgeons, scientists, advocates, and business leaders to raise the public profile of hydrocephalus and to share the current research initiatives and successes around the condition.
Looking Back…Moving Forward: Spina Bifida and Hydrocephalus Do Not Define Me
October is Spina Bifida Awareness Month. Nicole Small reflects on living with both spina bifida and hydrocephalus since birth, as the Hydrocephalus Association continues our interview series commemorating our 30th anniversary.
The Art of Getting Covered
This article was written for individuals newly entering the healthcare system, particularly our growing group…
Looking Back…Moving Forward: Moments that Matter
As the Hydrocephalus Association continues its 30th anniversary interview series, Jennifer Balthuis, our Minnesota Community Network leader, shares the moments that have touched her the most while leading the MN Support Group.
Insight into the Hydrocephalic Brain Using Diffusion Tensor Imaging
The Hydrocephalus Association aims to help our community understand the latest findings coming out of the hydrocephalus research community. In this blog, we summarize a study about Diffusion Tensor Imaging (DTI) and pediatric hydrocephalus.
Looking Back…Moving Forward: There Has to be a Better Way
As the Hydrocephalus Association continues its history series commemorating our 30th anniversary, Barrett O’Connor, chair of the HA board of directors, shares a personal message to the hydrocephalus community.
Announcing our 2013 Hydrocephalus Association TTC Scholarship Recipients!
Congratulations to our 2013 Hydrocephalus Association Teens Take Charge (TTC) Scholarship Recipients! Our TTC scholarship program is made possible through the generous support of the Medtronic Foundation.
HA Accepted into the 2013 COMBINED FEDERAL CAMPAIGN
The Hydrocephalus Association has qualified for inclusion in the Combined Federal Campaign, the federal government’s workplace giving program. If you are a federal employee you can designate your contribution to the Hydrocephalus Association (HA) with code #10066.