Australian Government Denies Hydrocephalus Registry

SUFFERERS of at least one life-threatening condition did not have to wait for the federal Budget to hear bad news.

Eurobodalla families learned this week $200,000 per year was too much to ask from either the NSW or federal government to fund a national register of shunt operations for people suffering hydrocephalus.

The notoriously unstable procedure is all too familiar to the Brown family, of Malua Bay, and the Coppin family, of Moruya.

Both Kerrianne Brown and Jane Coppin have watched life-saving shunts – designed to drain excess fluid from their daughters’ brains – fail.

They believe money spent on a registry now would reduce the millions of dollars spent each year in replacing failed shunts and the resulting collateral damage.

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