Announcing our NEW Website!

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Hydrocephalus Association WebsiteDuring this month of Hydrocephalus Awareness, we are are proud to announce the launch of our newly redesigned website! This new website is a celebration of our beautiful and diverse community. This diversity is reflected in the photos of our community throughout the site as well as in the educational topics we cover and the resources we provide. What’s new on our website?

  • Under KNOWLEDGE you will find a new layout for accessing detailed information on hydrocephalus and normal pressure hydrocephalus. This section contains important information on signs and symptoms of hydrocephalus, treatment options, complications to be aware of, and many links to informative publications and resources.
  • Because hydrocephalus affects people at different ages and stages, we have developed COMMUNITY PORTALS so that you can find information relevant to your journey with hydrocephalus. These are forever growing and changing areas because THEY ARE YOURS. We will continue to develop content in these portals based on the feedback you provide us. Whether you are a caregiver, a parent of someone with hydrocephalus, a teenager, adult or older adult with hydrocephalus, don’t hold back! All ideas are welcome. Email ideas to
  • Within each portal is a section called TRENDING TOPICS that are intended to feature short articles on questions, challenges, and topics that you deal with on a routine basis. These topics come to us through your support calls, Facebook posts, tweets, and emails. However, many of you have offered up suggested topic ideas you would like us to cover.  Our Staff is currently working with professionals in the field and/or our medical advisory board to develop articles addressing those topics. What are some examples? “Is there a link between heat sensitivity and hydrocephalus?” “Choosing the right college.” “Magnetic Fields and Shunts” What do you need information on? Tell us and let’s start some trending topics! Email with your ideas.

As you explore the site, you’ll find new information and some old information that you might not have seen before! Make sure you visit the Research section to learn more about our research agenda and progress. Under Get Involved you’ll find our WALK and Advocacy pages. Check them out and sign up for our Advocacy Day on September 18th, join a WALK near you, or learn about other ways you can get involved with our association.

Our website is now mobile-friendly, giving you a better experience on your smartphone and tablet. So please explore and give us your feedback. The site is a work in progress and we will be adding new features, adding new sections, and working with you to create a space for you to connect, learn, and get involved.



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