by David Moore
On a Saturday evening in Cape Cod, there are a myriad of activities one can do to entertain themselves. So why would anyone want to spend that evening learning about Hydrocephalus? Yet, that is exactly what 35 people did on the evening of July 31— joining Barrett O’Connor and her husband Paul Rogers for a lovely evening of cocktails and hors d’ oeuvres to raise awareness of, and raise funds for, hydrocephalus research.
Barrett, who is both a parent of a child with hydrocephalus and a member of our board of directors, is committed to raising funds to underwrite the expense of a Mentored Young Investigator grant. Her gathering was a wonderful success toward reaching that goal.
I was so impressed with the turn out and the guests’ genuine interest in learning more about hydrocephalus. And, as often happens, I learned through conversation that several of guests know of someone close to them with Hydrocephalus. It never ceases to amaze me how many lives are touched by hydrocephalus, yet the condition has yet to garner the attention it deserves.
It can be such a complicated and difficult condition to explain. But, guest speaker Dr. Joseph Madsen gave a detailed explanation of hydrocephalus in a manner that the guests could appreciate and comprehend.
HA’s CEO Laurene McKillop expressed her outrage that hydrocephalus does not receive the attention and funding it deserves, while detailing how we are changing that perspective.
The highlight of the evening was Barrett’s heartfelt presentation on raising a child with hydrocephalus and her commitment to funding research to improve treatments and, someday, find a cure. It was quite moving to see the crowd’s emotional reaction to her story.
It was a wonderful event that ended with a number of new friends and supporters of HA.