As a young adult, does my voice count? Can I make a difference in the hydrocephalus community? How do I get started? The answer is simple, you CAN make a difference. You can make an impact on legislation, help us increase public awareness and educate your peers. Want to learn how? Listen to our latest webinar recording for youth.
On January 7th the Hydrocephalus Association (HA) held the first webinar of the New Year for their Support and Education webinar Series, Finding Your Voice: Advocacy Training for Youth Impacted by Hydrocephalus. CEO, Dawn Mancuso, MAM, CAE, FASAE and Teens Take Charge (TTC) Advisory Council member, Wyatt Barris, provided attendees with an informative and engaging webinar focused on how to begin political and social advocacy to the teen and young adult community.
Dawn provided a general overview of advocacy, presented numerous ways youth can become involved, and outlined the rationale for our messages to government officials. Additionally, she outlined the ‘”how to” accomplish a successful visit to governmental officials, what to say, what to bring, and how to follow-up. Wyatt shared his personal experiences with hydrocephalus, efforts in raising awareness and advocating for himself and the hydrocephalus community. When asked what advocacy activities he enjoyed the most, Wyatt shared, “Educating my classmates was a great start to increasing awareness and a way to motivate young people who may want to get involved in advocacy.“
He encouraged other young adults to not be intimidated. He shared how he overcame his fear and anxiety of public speaking by focusing on the urgent need for greater public awareness and more funding for research.
Wyatt shared candidly, “Although it can be intimidating to speak in front of a group or to a staff person at your representative’s office, you have a great story to share and now you have tools/resources to make it happen.” He noted that there is power in being able to share your own story, and how that personal message can have an impact. Admitting that it was not easy, he still urged all teens and young adults to get engaged, especially with the help of the tools and support that are available through HA.
Listen to the full recording: Finding Your Voice: Advocacy Training for Youth Impacted by Hydrocephalus
Handouts and resources
- Advocacy and Social Media
- Congressional Meetings Debriefing Form
- Advocacy Toolkit
- Hydrocephalus Action Network
For more information on our Support and Education Webinar Series, click here.
This Webinar Series is made possible through the generosity of our industry partners The Batterman Foundation, Medtronic, Aesculap and Sophysa who we thank for supporting this important program!