Last week the Adult Hydrocephalus Clinical Research Network (AHCRN) met in Salt Lake City, Utah to discuss the progress and next steps for the network. The group welcomed three new sites into the network, including the first European site. The new sites are the University of Bristol headed by Dr. Richard Edwards, Columbia University Medical Center headed by Dr. Guy McKhann, and NYU Langone Medical Center headed by Dr. Jeffrey Wisoff. With the addition of these three sites, the AHCRN now has eight clinical sites and a data coordinating center.
This meeting was focused on analysis of the first 500 people in the registry including comparisons between patient care groups. These groups are adults who were diagnosed and treated as children (transition), adults with congenital hydrocephalus who were not treated as children (congenital), adults who acquired hydrocephalus and were treated as adults (acquired), and adults suspected of having idiopathic Normal Pressure Hydrocephalus (iNPH). We will share the results of this analysis once they are published.
The group also discussed ongoing studies focused on the causes of shunt failure in adults and also the effectiveness of endoscopic third ventriculostomy (ETV) treatment in adults. The second day of the meeting was focused on training for an upcoming randomized controlled trial which will determine the effectiveness of shunting for iNPH patients.
The AHCRN is chaired by Dr. Mark Hamilton, Director of the Adult Hydrocephalus Program at the University of Calgary. He is joined by an exceptionally dedicated group of neurosurgeons, neurologists, and a neuropsychologist.