Press Releases 2018

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Tampa Family Walks to Find a Cure for Son’s Incurable Brain Disorder

Jetsen Edison Davis is not even two years old but he’s already endured three brain surgeries. Jetsen has hydrocephalus, a chronic neurological condition that has no cure and can only be treated with brain surgery. His condition has meant multiple hospital stays and some frightening moments for his family. While hydrocephalus affects over 1 million Americans, there is little public knowledge about this brain disorder and not enough research dollars. That’s why the Davis family will join hundreds of local families and businesses at the Hydrocephalus Association (HA) St. Petersburg/Tampa Bay WALK to End Hydrocephalus on Saturday, Nov. 3 at Elva Rouse Park in St. Petersburg.

October 22, 2018


Columbia Families Unite to Find a Cure for the Leading Cause of Brain Surgery in Children

Wyatt Jeffrey Gable is not even a year old, but he’s already endured eight brain surgeries. The 10-month-old was born with hydrocephalus, a chronic neurological condition that has no cure and can only be treated with brain surgery. His parents, Austin and Brooke Gable, are determined to find a cure for their son’s condition, which despite affecting over 1 million Americans, gets little public attention and not enough research dollars. That’s why they’re joining hundreds of local families at the Columbia WALK to End Hydrocephalus on Sept. 29 at the Villages at Sandhill.

September 19, 2018


Congress Declares September Hydrocephalus Awareness Month

Olivia Maccoux, a college senior from Minneapolis, MN, Jennifer Bechard, a 30-year-old from Detroit, MI, and five-year-old Abagail McCall from Washington, DC all have one thing in common. Each of them has celebrated more brain surgeries than birthdays. That’s because they have hydrocephalus, a chronic brain condition that has no cure and can only be treated with brain surgery. While hydrocephalus affects over 1 million Americans, there is little public knowledge about this brain disorder and not enough research dollars. That’s why, this month 24 states and cities across the country have joined Congress in declaring September Hydrocephalus Awareness Month.

September 10, 2018


DC Family Walks to Find a Cure for Daughter’s Incurable Brain Disorder

Melissa Kopolow McCall and Matt McCall never knew the meaning of courage until their daughter Abagail was born. Despite having had 12 brain surgeries before turning five, Abagail brings joy to everyone she meets. Abagail has hydrocephalus, a chronic neurological condition that has no cure and can only be treated with brain surgery. Her condition has meant multiple hospital stays and a host of other health issues. While hydrocephalus affects over 1 million Americans, there is little public knowledge about this brain disorder and not enough research dollars. That’s why the McCall’s will join hundreds of local families and businesses at the Hydrocephalus Association (HA) National Capital WALK to End Hydrocephalus on Saturday, Sept. 15 at the Lincoln Memorial.

September 6, 2018


LA Kings, Little Women: LA Star Terra Jole, and other Celebrities Unite for 5K WALK/Run to Find a Cure for Hydrocephalus

Terra Jole, star of the hit Lifetime show, Little Women: LA and Terra’s Little Family; has one big thing in common with the LA Kings – they want to find a cure for hydrocephalus, a chronic neurological condition that has no cure and can only be treated with brain surgery. That’s why they’ll join thousands of local families at the Hydrocephalus Association Los Angeles WALK to End Hydrocephalus on Saturday Sept. 8 at Redondo Beach, CA. The WALK to End Hydrocephalus is held concurrently with the LA Kings Beach Cities 5K/10K to kick off their 2018 season and to help support the work of the Hydrocephalus Association.

September 5, 2018


Racing for a Cure! NYC Dad Builds Race Car to Help Find a Cure for Son’s Incurable Brain Disease

“Your son has a life-threatening condition and is going to need emergency brain surgery to manage it.” Those words will be forever etched into Bennett Wilson’s memory. It was the moment he was told his six-month-old son Dean had hydrocephalus, an incurable neurological condition that can only be treated with brain surgery. After learning that Dean would need multiple brain surgeries to manage his condition, Bennett decided to turn his son’s love of race cars into a hydrocephalus fundraising endeavor. So, with the help of his friends, the Brooklyn-based dad converted his family’s minivan into an endurance race car dubbed “Dean the Machine”. The car will make its debut at the 24 Hours of LeMons Race, Aug. 11-12 in Thompson, CT, and will raise awareness and funds for the Hydrocephalus Association.

August 9, 2018


Hydrocephalus Association Says #NOMOREBS, Brain Surgery Should Not Be Only Treatment Option for 1 Million Americans Living with Hydrocephalus

Imagine being 19 months old and already having had 10 brain surgeries or 21 years old and having had over 140 brain surgeries. For the over 1 million Americans living with hydrocephalus, a chronic, life-threatening condition marked by excess accumulation of cerebrospinal fluid on the brain, this is their reality because the only treatment available is brain surgery. To bring attention to the limited treatment options, the Hydrocephalus Association launched #NOMOREBS – No More Brain Surgeries – an aggressive awareness campaign that aims to raise $20 million by 2020 to accelerate research and expand education and support services for this chronic neurological condition. The campaign highlights the shocking number of brain surgeries patients must undergo during their lifetime due to hydrocephalus.

July 31, 2018


Hydrocephalus Association National Conference Offers Hope and Connections for 1 Million Americans Living with Incurable Brain Disease 

More than 600 patients and families impacted by hydrocephalus, a chronic neurological condition for which there is no cure, will join leading medical professionals and researchers in Orange County, CA June 28-30 for HACONNECT, the Hydrocephalus Association’s 15th National Conference on Hydrocephalus.

June 22, 2018


New White Paper Identifies Key Areas for Future Research to Help Reduce Posthemorrhagic Hydrocephalus 

A new white paper identifies important areas for research and intervention to help reduce the occurrence and effects of posthemorrhagic hydrocephalus (PHH), the most prevalent form of pediatric hydrocephalus in the United States.

April 3, 2018


HA President and CEO Diana Gray Elected to National Health Council Board

Diana Gray, President and CEO of the Hydrocephalus Association (HA), was recently elected to the National Health Council’s Board of Directors.

March 30, 2018


Tracy Morgan Brings Comedy to L.A. for “In Stitches: A Night of Laughs” on April 27

Actor and comedian Tracy Morgan will headline In Stitches, a Night of Laughs, an evening of comedy and cocktails to raise awareness and funds to find a cure for hydrocephalus.

March 29, 2018


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