In Memory Of Skylene, 10

“Skylene saved the lives of 5 individuals through organ donation. She was the most giving person. If she knew she gave this gift of life she would be so proud!” Read Skylene’s story, told by her mom.

SYS - Ft image Mary Sullivan

Mary, 57

I joined the Peace Corps and taught high school Math in Morocco and Kenya. My school in Kenya was at about 10,000 feet. I don’t know if the elevation attributed to the increase in symptoms or not, but within 6 months I experienced a variety of new symptoms.

Tracy, 38

We are not sure if I was born with hydrocephalus or when it actually developed, but my condition didn’t rear it’s ugly head until one morning when I was 23 years old that I woke up and drove to work.

Rafael, 27

Rafael is a PhD student in Learning, Design, and Technology. He is currently developing a narrative video game to discuss “hidden disabilities”, focusing on his own experience with hydrocephalus!

Abby, 22

In sharing my story, I hope to empower and inspire you to smile through your trials, whether they be with Hydrocephalus or any other challenges that you may face.

Cayden, 11 months

Besides the Chiari 2 malformation, there was no sign of hydrocephalus. At 38 weeks, our beautiful baby boy Cayden was born.

Deborah, 59

Knowledge is power and I believe it’s better to be educated than to go into something blindly. Particularly, brain surgery!

Diana Gray, MA

President and Chief Executive Officer

As the President and CEO, Diana’s primary responsibility is the leadership and overall management of all aspects of HA’s operations — governance, administration, finance, and programs.

Gabrielle, 25

My Hydrocephalus has played a role in shaping me into the person I am today and has changed my outlook on life. “Always play the best game with the cards you’ve been handed.”

Alexsis, 18

I was born 3 months early at just 28 weeks and I have had more brain surgery’s than birthday’s!

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