A Letter of Love to My Son With Hydrocephalus

My Sweet Davey,

At the time I’m writing this letter you are 2 years old. You have endured more in your 2 years than what seems most people do in a lifetime. You have survived seven brain surgeries and a horrible infection called bacterial meningitis. Davey, you are my hero and don’t you ever forget it.

The day I was told you had hydrocephalus you were almost 14 months old. My heart felt like it was breaking, not because I felt there was anything wrong with you, but because I was afraid you would have to endure pain. I would trade places with you in an instant if it meant you could be pain-free. Those aren’t just words for fluff — I mean them with every ounce of my being.

For all the years I live, I don’t think I’ll ever forget the day we almost lost you. It brings me to tears even now, almost a year later. Davey, I want you to know I will do everything in my power to make sure that never happens again. I will never allow another doctor or surgeon to ignore my concerns when I know something is wrong. I am so, so sorry.

The Mighty

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