Search results for: community voices
Voices from Our Community: Dr. Harold Conn’s Decade of NPH Misdiagnosis
The Hydrocephalus Association is commemorating the 50th anniversary of the recognition of normal pressure hydrocephalus (NPH) as a distinct medical syndrome through the journeys of members of our hydrocephalus community on the road to proper diagnosis and treatment of this life-altering condition.
Read MoreVoices from Our Community: David Walters Shares his Hydrocephalus Story
David Walters was diagnosed with hydrocephalus at 2 weeks old and has had one shunt revision. He is an active teenager and member of the Hydrocephalus Association Teens Take Charge program. Read his story.
Read MoreLooking Back…Moving Forward: One Vision Built on Determination
Hydrocephalus Association commemorates our 30th anniversary with a series of interviews with members of our community. These intimate and conversational pieces provide both educational content as well as a historical perspective on the heart behind the work of our association. This week we sit down with two of our founding members, Emily Fudge and Cynthia Solomon, to discuss the early days of forming the association, including their vision and their challenges.
Read MoreVoices from Our Community: Joyce Schwartz Spreads Her Message about Normal Pressure Hydrocephalus
Joyce Schwartz shares her 23 year journey of searching for a diagnosis and then treatment for Normal Pressure Hydrocephalus (HA).
Read MoreVoices from Our Community: Milton Newman Shares His Story of NPH
Fog is Lifted After 15 Years of Confusion and Misdiagnosis Milt Newman’s retirement was not…
Read MoreVoices from Our Community: Abby Shares Her Life Experiences With Hydrocephalus!
By: Abby Wood Hi! My name is Abby. I turned 12 years old at the…
Read MoreHydrocephalus Awareness Month 2023
Take control. Flip the script. In your own words, your own story. Sign Up for…
Read MoreWelcome New Board Member Deitra Matthews
The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA.…
Read MoreLooking Back…Moving Forward: With A Little Help From My Friends
In commemoration of the Hydrocephalus Association 30th anniversary, David Walters, Teens Take Charge member, shares his thoughts on the importance of our biannual conference and the impact of the Hydrocephalus Association (HA).
Read MoreAdvocate
Advocate The Hydrocephalus Association is the leading voice for the hydrocephalus community on Capitol Hill,…
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