Hydrocephalus is relentless.
So are we.

Congenital hydrocephalus has been challenging yet we are resilient and hope that through research we will continue to not fight alone.

— Neury, Parent

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September is

Hydrocephalus

Awareness Month

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FRIDAY, NOVEMBER 10

Anaheim, California

Celebrating the Hydrocephalus Association's 40th Anniversary

HONORING OUR LEGACY AND SHAPING THE FUTURE

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Let’s Navigate this together

Trusted resources to help you on your journey.

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Recently Diagnosed?

Have you or a loved one recently been diagnosed with hydrocephalus?

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Tools for Daily Life

Learn how to manage the day to day symptoms and challenges you might encounter on your journey with hydrocephalus.

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Get Support

We're here to help! Find the support you need and talk to people who know what you're going through.

Driving Research Forward

Improving lives now and funding the breakthrough research of tomorrow.

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$13.8 Million

Invested in research
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$73 Million

Additional Federal Grants Awarded
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12

Preclinical Drug Therapies

Make An Impact

We come together in so many ways — all of us driven by a passion to find a cure and improve the lives of those impacted by hydrocephalus. Whether you participate in a WALK to End Hydrocephalus or join our advocacy efforts, you’re making a difference!

Community

Our community of patients and caregivers is there for you so you can connect, share life experiences, and find hope.

Research

Researchers need input from people living with hydrocephalus in order to ask the right questions and develop treatments.

Advocate

The best advocates are patients, family members, medical caregivers, and others who are directly affected by the condition.

Shop

Raise awareness about hydrocephalus and look great doing it!

Connect With Us

When you're ready, let's take the next step together. Stay informed with our monthly newsletter! We'll share inspiring stories, and information about our programs, events, and research.

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