2014 Conference Update – Teen Track Highlights

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Hydrocephalus Association National Conference on HydrocephalusBy Jennifer Bechard Johnson, Education Manager

The Hydrocephalus Association’s National Conference on Hydrocephalus is an opportunity for teenagers to connect with their peers, to learn, and to become confident self-advocates. Here is a sneak peek of our new track of programming for teenagers.

Session: Ask the Expert – For Pre-teens and Teens
Teens with hydrocephalus and their families face many changes during adolescence, including small ventricles and possible elimination of shunts, as well as common teenage concerns such as sports, social issues, driving, and sexuality. By the end of this session, participants will be able to identify high-risk behavior for teens with shunts and understand relevant literature regarding the topic, anticipate the needs of the adolescent in social development, identify resources and support in the community, and understand and anticipate medical changes and needs.
Presenter: Jay Riva-Cambrin, MD, Assistant Professor in the Department of Neurosurgery and Program Director for the Pediatric Neurosurgery Fellowship Program, University of Utah and Primary Children’s Medical Center.

Session: Transition of Care
Transition from pediatric to adult-centered care is the objective for every child. This session will discuss the process from both the patient’s and medical professional’s prospective and present strategies to prepare the child and the parent for the transition.
Co-presenter: Mark Hamilton, MDCM, FRCSC, FAANS, Professor of Neurosurgery at the University of Calgary and the Director of the University of Calgary Adult Hydrocephalus Program.
Co-presenter:  Petra Klinge, MD, PhD, Associate Professor of Neurosurgery, The Warren Alpert School of Brown University
Co-presenter: Donna Wallace‬, MS, RN, CPNP

Session: Sharing and Socializing
An interactive session for teens only.
Presenter: Laurie Yablon, RN, MS, CPNP

Session: Preparing for College
Presenter: Melanie Gangle, MS, CRC, Coordinator, Office for Students with Disabilities, University Health Center.

Session: Speak Up: Owning Your Condition
Teens helping teens understand and explain their condition to others.

… and many more plenary, breakout, and general sessions. Join us at conference!


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