2014 Conference – Parent Track Highlights

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Hydrocephalus Association National Conference on HydrocephalusOur National Conference on Hydrocephalus offers parents an opportunity to connect with other parents, speak directly with experts on various topics about raising a child with hydrocephalus – social, emotional, educational, financial, and medical – and watch their children interact with other children living with hydrocephalus. Whether you have an infant or a graduating high school senior, we have created a track of programming to meet your needs. Here is a preview of what this year’s conference has to offer parents.
Session: Learning Disabilities & Neuropsych Testing (The role of Neuropsychology in assessing and managing learning challenges)
Medical advances have expanded the lifespan of individuals with conditions such as obstructive hydrocephalus well into adulthood. While historically considered a medical population, individuals with histories of hydrocephalus are now living longer and are increasingly transitioning into adult health care systems. Neuropsychological consultation and rehabilitation can be an important part of this health care transition, particularly for individuals with cognitive difficulties. This presentation will review neuropsychological findings associated with hydrocephalus in childhood and adolescence, and will provide practical strategies for addressing some of the associated problems commonly experienced in academic, vocational, and social functioning. A specific emphasis will be placed upon the challenges faced by youth with histories of hydrocephalus as they move into the roles and responsibilities of adulthood.
Presenter: Susanne Duvall, PhD

Session: Endocrinology: Precocious Puberty and Other Issues
This session will focus on pubertal development in children with hydrocephalus and what to do when the normal timing of puberty is altered. The session will include discussions of the normal pubertal milestones as well as treatment options when puberty occurs too early or too late.
Bruce Boston, MD, Professor of Pediatric Endocrinology at Oregon Health & Science University and Chief of the Division of Pediatric Endocrinology at Doernbecher Children’s Hospital.

Session: Bringing You Protected Tomorrows: Your Journey Through an Eight Step Special Needs Planning Program
As family members of a person with a medical disability, we so often tend to view life in light of the challenges presented to us. Some topics of discussion include: how to create a map of the future, how to prepare legally and financially, how to incorporate and maximize government benefits, how to prepare for transition, and how to communicate your Special Needs Trust and Estate Planning to your family.
Presenter: Mary Anne Ehlert, CFP®, President and Founder of Protected Tomorrows.

Session: ETV/CPC
Presenter: Lissa Baird, MD

Session: ABC’s of IEP
Co-presenter: Andrew Zabel, PhD, ABPP, Pediatric Neuropsychologist and Research Scientist, Kennedy Krieger Institute; Clinical Director of the Department of Neuropsychology and Associate Professor of Psychiatry and Behavioral Sciences, Johns Hopkins School of Medicine.
Co-presenter: Amanda Garzon, Director of Communications and Marketing of the Hydrocephalus Association, and mom to a daughter with hydrocephalus

Session: Ask the Expert: Families with Young Children Living with Hydrocephalus
Presenter: Lissa Baird, MD

Session: Ask the Expert: Parents of Children with Complex Hydrocephalus and/or Multiple Shunts
Richard Ellenbogen, MD,  Professor and Chairman, Department of Neurological Surgery, University of Washington School of Medicine; Residency and Fellowship Director, UW Medicine Department of Neurological Surgery; Chief, Neurological Surgery, Harborview Medical Center

Session: Ask the Expert: Families of Teens
Nathan R. Selden, MD, PhD, Campagna Chair of Pediatric Neurosurgery, Vice Chair of Education, and Residency Program Director, Oregon Health & Science University (OHSU); President-Elect, Congress of Neurological Surgeons (CNS); Chair, ACGME Milestones Group, Neurological Surgery; CoRE Chair, Society of Neurological Surgery (SNS).

… and many more plenary, breakout, and general sessions. Join us at conference!


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