2014 Conference – Adult Track Highlights

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Hydrocephalus Association National Conference on HydrocephalusBy Jennifer Bechard Johnson, Education Manager

Our National Conference on Hydrocephalus offers adult attendees an opportunity to find the information, resources, and support they need to live confidently with their condition. Whether you’re recently diagnosed or someone who’s been living with the condition for many years, we have created a track of programming to meet your needs. Here is a preview of what this year’s conference has to offer you and your loved ones.

Session: Employment and Hydrocephalus
This session will address questions such as: “How much information do I share and who do I share it with?” and “What should I tell my supervisor, co-workers, and people who work for me?” This session will also discuss rights and reasonable accommodations under the Americans with Disabilities Act (ADA) for people with hydrocephalus who are working or looking for work.
Presenter: Clifton Scott

Session: Coping with Hospital Stays
Being admitted to the hospital can be a challenging experience. Ideas for making the hospital stay less scary will be presented from the Neurosurgical Team’s perspective. Tips for coping and feeling more in control will be presented. Bring your questions!
Presenter: Donna Wallace, MS, RN, CPNP

Session: Pregnancy and Hydrocephalus
It is critical for women of child-bearing age who are living with hydrocephalus to seek specialized medical advice if they become pregnant. Careful preconception counseling and management by a team of obstetricians, geneticists, neurosurgeons, and neurologists will enable these patients to accomplish a successful pregnancy. This session will address the risks and benefits of various management options for shunt dependent pregnant women, including prenatal testing and delivery of the baby.
Co-presenter: Mark Luciano, MD, PhD, FACS, Head of Congenital and Pediatric Neurosurgery and Co-Director of the Pediatric Neurology Center at Cleveland Clinic.
Co-presenter: Brian Shaffer, MD
Co-presenter: Stephanie Vogh

Session: Ask the Expert – Adults Who Were Treated in Childhood, Including First Generation
Presenter: Mark Hamilton, MDCM, FRCSC, FAANS, Professor of Neurosurgery at the University of Calgary and the Director of the University of Calgary Adult Hydrocephalus Program.

Session: Ask the Expert – Adults Diagnosed in Young and Middle Age (SHYMA)
Presenter: Mark Luciano, MD, PhD, FACS, Head of Congenital and Pediatric Neurosurgery and Co-Director of the Pediatric Neurology Center at Cleveland Clinic.

Session: SHYMA VS LOVA – What Does This Mean?
Presenter: Mark Luciano, MD, PhD, FACS, Head of Congenital and Pediatric Neurosurgery and Co-Director of the Pediatric Neurology Center at Cleveland Clinic.

Session: To Share or not Share?
Talking to family, friends, and peers about living with hydrocephalus isn’t easy. What to share? What not to share? How to share it?  These and other questions are addressed in this workshop.

… and many more plenary, breakout, and general sessions. Join us at conference!

 

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