Videos

A Reason for Hope

Over 1 million Americans are living with an incurable condition that can only be treated with brain surgery. It’s called hydrocephalus and it’s caused by a build-up of fluid that puts pressure on the brain. Anyone can get hydrocephalus at any time. “A Reason for Hope” features three vignettes of hydrocephalus, illustrating the different populations affected, diagnoses, and treatment responses.


A Million Reasons Strong

Hydrocephalus affects 1-2 in every 1000 children born in the U.S. yet it is under-researched and under-funded. Please help us change this by finding a cure.


What is NPH?

Often referred to as a treatable form of dementia, NPH is actually a chronic neurological disorder where an accumulation of cerebrospinal fluid (CSF) causes the fluid-filled ventricles in the brain to gradually enlarge, sometimes with little or no increase in intracranial pressure. While NPH can occur in adults of any age, it disproportionately appears in older individuals, and is accompanied by some or all of a triad of symptoms that include gait disturbances, dementia, and impaired bladder control. Left untreated, NPH can cause an individual to degenerate into what appears to be dementia and is often misdiagnosed as Alzheimer’s or Parkinson’s diseases, or remains undiagnosed because symptoms are thought to be part of the aging process. It is estimated that 5-10% of the 35.6 million people worldwide diagnosed with dementia actually have NPH, leaving close to 1.8 million individuals suffering with a condition that could be successfully treated.


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