x-linked hydrocephalus

Generalizability in Research Studies

Research 101: Generalizability

The concept of Generalizability in research studies is especially important for individuals living with hydrocephalus because there are so many different causes.

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x chromosome

Finding Our Way with L1CAM

The causes of hydrocephalus are varied, but one with a clear genetic linkage is X-linked hydrocephalus, a genetic disorder that occurs in about 1 of 30,000 births.

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Hydrocephalus Video Blog Parents

Through a Mother’s Eyes: Three Children, Two with Hydrocephalus

In this video blog episode, Debby shares her daughters’ diagnoses of hydrocephalus and briefly discusses their journey and the various causes of hydrocephalus, including genetics.

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