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Shunt versus ETV: Five year outcomes from the International Infant Hydrocephalus Study (IIHS)

September 6, 2018

The IIHS gathered data from more than 20 hospitals around the world, compared the effectiveness of shunts versus endoscopic third ventriculostomies (ETVs). This study started in 2005 and these are the five year outcomes.

Stanley White: From Aerospace Engineer to NPH Advocate

June 6, 2018

87-year-old retiree dedicates much of his time to raising awareness about NPH, particularly among medical providers.

New views on Postinfectious Hydrocephalus

June 1, 2018

A recent study published in Nature, Dr. Chay Kuo, out of Duke University, discovered a mechanism that may lead to the development of Postinfectious Hydrocephalus.

CSF Shunt Entry Site Trial

January 17, 2018

The CSF Shunt Entry Site Trial has reached the 75% mark in patient enrollment, that is 385 patients enrolled!

Tools To Help Patients With Hydrocephalus Make Informed Decisions About Their Health Care.

January 10, 2018

Dr. Thomas Beez and Dr. Hans-Jakob Steiger from the Heinrich-Heine-University in Düsseldorf, Germany have developed a new health care quality metric for shunt surgeries.

Preliminary results from the International Infant Hydrocephalus Study

October 24, 2017

There are two common treatment options available for infants that suffer from Aqueductal stenosis: implantation of a shunt or an endoscopic third ventriculostomy

Research 101: Brain Development

September 14, 2017

We are continuing our series on the role of cell junctions and the ventricular zone in the development of hydrocephalus.

The Power of Storytelling

September 14, 2017

Storytelling can be a powerful and influential advocacy tool in getting people to understand the breadth and depth of impact hydrocephalus has on individuals and families.Every person afflicted with Hydrocephalus has a story to tell.

Meet the HCRN Clinical Research Coordinators

September 6, 2017

The HCRN is fortunate to have a team of hard working, experienced coordinators who are responsible for study start up, running the study, and wrapping things up once a study ends.

How I Decided to have Shunt Surgery

September 5, 2017

Trish was diagnosed with NPH in 2015 and had shunt surgery then. Thanks to the surgery and several kinds of therapy, Trish is now back to doing what she loves, including a killer step aerobics class at her gym and singing with her husband in a community chorus

How Tai Chi Helped Get Me Nearly Back to Normal

August 30, 2017

When it comes to treating balance issues that attend Parkinson’s and other brain and balance disorders such as hydrocephalus and aging, there’s only so much medication can do.

Middle School Science Fair Features Hydrocephalus Booth

August 17, 2017

Raising awareness about the issue is the first step in finding treatment and prevention of hydrocephalus.

The Challenge of Diagnosing Shunt Dysfunction

August 16, 2017

Researchers aim to improve the way that physicians identify problems with a shunt implant.

A Look at New Shunt Technology

July 19, 2017

Biomedical engineers test a sensor that could help predict when a shunt revision is needed.

Cognitive Therapy for NPH Patients

May 18, 2017

If you have Normal Pressure Hydrocephalus (NPH) you might find Cognitive Therapy useful. Trish Bogucki explains what it consists of and shares some tips for others who might be in the same boat she was in.

A Letter of Love to My Son With Hydrocephalus

May 15, 2017

The day I was told you had hydrocephalus my heart felt like it was breaking, not because I felt there was anything wrong with you, but because I was afraid you would have to endure pain.