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ETV-CPC for the treatment of infants with hydrocephalus: Predicting Success

July 2, 2019

The Hydrocephalus Clinical Research Network (HCRN) conducted a study to determine which babies under two years old with hydrocephalus have the best chance of success with an ETV-CPC procedure. In her blog, Dr. Jenna Koschnitzky, National Director of Research Programs, explains why the findings of this study are important when determining if a baby under two years old should receive a shunt or undergo the ETV-CPC procedure.

The Subjective Experience of Patients Undergoing Shunt Surgery for Idiopathic NPH

December 6, 2018

A study from Yale School of Medicine looked at the personal experiences of people diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH).

Shunt versus ETV: Five year outcomes from the International Infant Hydrocephalus Study (IIHS)

September 6, 2018

The IIHS gathered data from more than 20 hospitals around the world, compared the effectiveness of shunts versus endoscopic third ventriculostomies (ETVs). This study started in 2005 and these are the five year outcomes.

CSF Shunt Entry Site Trial

January 17, 2018

The CSF Shunt Entry Site Trial has reached the 75% mark in patient enrollment, that is 385 patients enrolled!

Tools To Help Patients With Hydrocephalus Make Informed Decisions About Their Health Care.

January 10, 2018

Dr. Thomas Beez and Dr. Hans-Jakob Steiger from the Heinrich-Heine-University in Düsseldorf, Germany have developed a new health care quality metric for shunt surgeries.

Meet the HCRN Clinical Research Coordinators

September 6, 2017

The HCRN is fortunate to have a team of hard working, experienced coordinators who are responsible for study start up, running the study, and wrapping things up once a study ends.

New Insights into Normal Pressure Hydrocephalus (NPH)

July 6, 2017

A recently published study attempts to shed light on the long term outcomes of untreated iNPH by examining mortality rates, risk of dementia, and symptom progression in individuals with ventricular enlargement.

New Study Seeks to Improve Outcomes After a Brain Bleed

June 21, 2017

Germinal matrix hemorrhage (GMH) is a brain bleed that occurs in approximately 3.5 per 1000 live births and remains a leading cause of mortality and lifelong morbidity in premature infants.

Risk Factors For Posthemorrhagic Hydrocephalus

November 14, 2016

Learn about how Dr. Hannah Tully is uncovering risk and protective factors associated with the development of PHH, and the results of a large retrospective study she recently presented.