Posts Tagged ‘spina bifida’
Middle School Science Fair Features Hydrocephalus Booth
Raising awareness about the issue is the first step in finding treatment and prevention of hydrocephalus.
Read MoreEn Garde! The Sport of Fencing and Hydrocephalus
Jonathan, who lives with spina bifida and hydrocephalus, shares discovering fencing as a form of exercise and competition.
Read MoreNeural Tube Defects (NTD)
Learn about the genetics of neural tube defects, which can lead to hydrocephalus.
Read MoreThe Challenges of Transitioning to Adult Care
HA has long been aware of inequality in care for children and adults with hydrocephalus, and we are taking steps to bridge the gap.
Read MoreWhy I WALK to Raise Hydrocephalus Awareness
“…the likelihood of fraternal twins being born with the same variation of hydrocephalus was extremely rare.” One dad shares his story and the inspiration behind raising awareness.
Read MoreHydrocephalus Community Loses a Trailblazer
It is with deep sadness we announce the passing of Noel Tulipan, MD, renowned neurosurgeon and trailblazer in fetal surgery repair for spina bifida.
Read MoreAnnouncing Our 2015 Hydrocephalus Association Scholarship Recipients!
We are pleased to announce our 2015 Hydrocephalus Association Scholarship Recipients!
Read MoreLooking Back…Moving Forward: Spina Bifida and Hydrocephalus Do Not Define Me
October is Spina Bifida Awareness Month. Nicole Small reflects on living with both spina bifida and hydrocephalus since birth, as the Hydrocephalus Association continues our interview series commemorating our 30th anniversary.
Read MoreLooking Back…Moving Forward: One Vision Built on Determination
Hydrocephalus Association commemorates our 30th anniversary with a series of interviews with members of our community. These intimate and conversational pieces provide both educational content as well as a historical perspective on the heart behind the work of our association. This week we sit down with two of our founding members, Emily Fudge and Cynthia Solomon, to discuss the early days of forming the association, including their vision and their challenges.
Read MoreMaking Life Happen: Living Life with Spina Bifida and Hydrocephalus
Meet Luke Russell, a freshman at the University of Wisconsin-Whitewater who plans to major in marine biology with either a second major or a minor in psychology. He has spina bifida and hydrocephalus.
Read MoreThere are a Million Hydrocephalus Stories; This is the Story of Hannah
by HA Member Susan Andersen Moore Our daughter Hannah has a programmable VP shunt for…
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