Posts Tagged ‘shunt’
Raising Awareness about Hydrocephalus, One Stroke at a Time
Thomas, who was diagnosed with hydrocephalus as an infant, has become a successful competitive swimmer, finding balance and freedom in the pool.
Read MoreLooking Back…Moving Forward: With A Little Help From My Friends
In commemoration of the Hydrocephalus Association 30th anniversary, David Walters, Teens Take Charge member, shares his thoughts on the importance of our biannual conference and the impact of the Hydrocephalus Association (HA).
Read MoreLooking Back…Moving Forward: Celebrating 10 Years as a WALK Chair
As we continue our interview series in commemoration of the Hydrocephalus Association’s 30th anniversary, we sit down with Phyllis Rogers, who is in her 10th year chairing the Denver WALK, as she reflects on her drive to continue to chair the WALK and her hopes for the future of the Hydrocephalus Association.
Read MoreLooking Back…Moving Forward: Creating a Sense of Community
The Hydrocephalus Association continues our 30th anniversary interview series with Summer Minchew, our Charlotte, NC Support Group leader. She reflects on her role as a support group leader and moving the vision beyond the traditional support group framework aand into creating a hydrocephalus community.
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Announcing Our 2013 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association is proud to announce our 2013 scholarship recipients.
Read MoreHCRN Update: Biomarkers in Post Hemorrhagic Hydrocephalus
Dr. David Limbrick discusses his current research study which aims to develop a complementary tool to supplement the information from imaging in order to determine the best time to treat infants with post hemorrhagic hydrocephalus.
Read MoreStand and Deliver
Afraid or embarrassed to let others know you have hydrocephalus? Madeleine Darowiche shares her experience of telling her high school classmates about living with hydrocephalus.
Read MoreBehind the Recall: Codman Provides Details
The Hydrocephalus Association sits down with a vice president from Codman Neuro and two members of our Medical Advisory Board (MAB) to discuss the recent recall of CODMAN® CERTAS™ Programmable Valves, also known as shunts, and how it relates to patients. Please read and share the latest information on the recall.
Read MoreLooking Back…Moving Forward: Adding a Touch of Pixie Dust
Tina Daniels, Hydrocephalus Association Support Group leader in Owasso, OK, shares her experiences living with hydrocephalus and her decision to lead a support group.
Read MoreBrushes with Mortality: 5 Lessons On Dealing with Hard Times
Rachel Katz, diagnosed with hydrocephalus at the age of 12, shares the transformational gift she received after her last shunt revision. Read her blog. Be inspired.
Read MoreHCRN Update: Shunt Outcomes in Post Hemorrhagic Hydrocephalus
In a new Research Department blog series, HCRN Update, Ashly Westrick interviews Dr. Jay Wellons, principal HCRN investigator for the Shunt Outcomes in Post Hemorrhagic Hydrocephalus study.
Read MoreLooking Back…Moving Forward: It Doesn’t Make Us Different…It Makes Us Stronger
Teens Take Charge Advisory Council member, Wyatt Barris, speaks out about living with hydrocephalus and being an advocate for the condition.
Read MoreI Smile Because You Are My Sibling…
The relationship between siblings is complex and sometimes even…shall we say… strained, but there is a powerful, unbreakable bond that endures through the best and hardest of times. Teens Take Charge (TTC) Advisory Council Members, Harrison Silver and Alexis Rocciola, share a special message to their siblings in our National Siblings Day blog honoring a special group of loved ones in our lives – brothers and sisters.
Read MoreLooking Back…Moving Forward: From the NICU to Medical School
Jennifer Bechard sits down with Jamie Wright, our Support Group Leader in Houston, TX, as we continue our history series commemorating our 30th anniversary. Jamie was born six weeks prematurely, diagnosed with post-hemorrhagic hydrocephalus, and was shunted at 20 months old. She is now in her second year of medical school at the University of Texas Medical School at Houston, where she is in a combined MD/PhD program.
Read MoreLooking Back…Moving Forward: Fresno Says YES to Our Hydrocephalus WALK
As part of our interview series commemorating our 30th anniversary, this week Randi Corey, our National Director of Special Events and Volunteer Support, sits down with Cheryl Merrell, our Hydrocephalus Association WALK Chair in Fresno, California, to talk about volunteering for HA, starting and chairing a HA WALK, and other thoughts about the organization.
Read MoreTeen Voices: Hydrocephalus has Changed My Life
I am amazed at how hydrocephalus has changed my life…but I would not change it. Here is my story. Within weeks of my birth the doctor expressed concerns about the amount of growth of my head. My parents were referred to a neurologist who diagnosed me with communicating hydrocephalus
Read MoreLooking Back…Moving Forward: One Vision Built on Determination
Hydrocephalus Association commemorates our 30th anniversary with a series of interviews with members of our community. These intimate and conversational pieces provide both educational content as well as a historical perspective on the heart behind the work of our association. This week we sit down with two of our founding members, Emily Fudge and Cynthia Solomon, to discuss the early days of forming the association, including their vision and their challenges.
Read MoreVoices from Our Community: Abby Shares Her Life Experiences With Hydrocephalus!
By: Abby Wood Hi! My name is Abby. I turned 12 years old at the…
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