Posts Tagged ‘shunt’
Living Hydro: One Family’s Journey
Our Charlotte Hydrocephalus WALK Chair shares her daughter’s journey with hydrocephalus.
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College Bound? Tips on the College Application Process
Dara Tannariello offers advice on how to tackle the college application process and shares insight from her personal experience.
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Learning to Date Me
Bryant, our new guest blogger, shares openly about the unconditional support of his fiancee and resilience of their relationship as he lives with hydrocephalus.
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One Big Family
Life at 14 can be tough, but Jillian’s determined to live FULLY and overcome any challenge presented to her by hydrocephalus or just being a teen.
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Announcing our 2014 Hydrocephalus Association Teens Take Charge Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2014 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
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Voices from Our Community: Dr. Harold Conn’s Decade of NPH Misdiagnosis
The Hydrocephalus Association is commemorating the 50th anniversary of the recognition of normal pressure hydrocephalus (NPH) as a distinct medical syndrome through the journeys of members of our hydrocephalus community on the road to proper diagnosis and treatment of this life-altering condition.
Read MoreAARP Bulletin Features Normal Pressure Hydrocephalus
The April 2014 issue of the AARP Bulletin featured an article that highlights normal pressure hydrocephalus as a condition that mimics dementia, helping raise awareness about an often undiagnosed or misdiagnosed treatable neurological condition that affects up to 700,000 persons in the United States alone.
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Never Give Up
Ariel Yong follows up on the topic of our recent video blog by Debby Buffa about kids with hydrocephalus playing sports by talking about the lessons she learned as an athlete.
Read MoreBringing Normal Pressure Hydrocephalus Out of Obscurity
In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?
Read MoreLooking Back…Moving Forward: A Most Precious Gift
As the Hydrocephalus Association wraps up its interview series commemorating our 30th anniversary, we sit down with Russell Fudge, a founding member of HA.
Read MoreLooking Back…Moving Forward: Facing the Future with Fierce Determination and Optimism
As the Hydrocephalus Association continues it’s 30th anniversary commemoration, Elijah Lawrence shares his college essay, a reflection the values and gifts he lives every day of his life.
Read MoreLooking Back…Moving Forward: Mentoring the Future Voice of Hydrocephalus
Jennifer Bechard, the Hydrocephalus Association’s Teens Take Charge mentor and Education and Support Manager, shares her views on growing up with hydrocephalus and mentoring the future voice of hydrocephalus through her work with the teen and young adult community.
Read MorePersonifying Determination: Gabby Giffords
Former Congresswoman Gabrielle Giffords, who acquired hydrocephalus after the tragic incident which took place in 2011, shares a personal message to the hydrocephalus community.
Read MoreLooking Back…Moving Forward: Building Bridges Between Pediatric and Adult Hydrocephalus
As the Hydrocephalus Association continues our 30th year anniversary commemoration, Dr. Marion “Jack” Walker, pediatric neurosurgeon, Primary Children’s Medical Center, Salt Lake City, Utah, reflects on his 37 years of service to the hydrocephalus community.
Read MoreLooking Back…Moving Forward: Advancing the Research Mission
As the Hydrocephalus Association continues it’s 30th anniversary commemoration, David Browdy, Board Member and Chair of the Research Committee, reminisces about the history of the association and shares a vision for the future.
Read MoreWanted: Partners in the Journey
Hydrocephalus Association CEO Dawn Mancuso shares her excitement and gratitude for a special event held for the Hydrocephalus Association in New York City on October 10, 2013, that moves the association mission closer to raising greater awareness of hydrocephalus and, ultimately, finding a cure.
Read MoreHappening NOW: First Annual Vision Dinner in New York City
The Hydrocephalus Association’s First Annual Vision Dinner, “A Time for Awareness; The Hope for a Cure,” unites politicians, neurosurgeons, scientists, advocates, and business leaders to raise the public profile of hydrocephalus and to share the current research initiatives and successes around the condition.
Read MoreLooking Back…Moving Forward: The Need to Value Shunt Management
As the Hydrocephalus Association continues our 30th anniversary interview series, Ann Marie Flannery, M.D., shares her thoughts on young adults transitioning to adult neurological care and issues a call to action for society to value the management of shunts and the individuals living with them.
Read MoreLooking Back…Moving Forward: A Sister’s Love
Roxana Ramos became a Hydrocephalus Association Support Group leader to connect her brother to others that have hydrocephalus, only to realize family members benefit, as well. As we continue our interview series commemorating our 30th anniversary, we sit down with Roxana to talk about her motivation behind her volunteer position and the value her service brings to the hydrocephalus community.
Read MoreMedical Device Development and Evolution: A Comparative Study
In this educational blog, Marvin Sussman, PhD, compares the evolution of the cardiac pacemaker and radiation oncology with that of the shunt to treat hydrocephalus over a 60 year period.
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