Posts Tagged ‘shunt revision’
Is an ETV an Option After Shunt Failure?
Is an ETV an option after shunt failure? A recent review of 15 studies reported on the effectiveness of endoscopic third ventriculostomy (ETV) after shunt failure in children. Dr. Jenna Koschnitzky, National Director of Research Programs, summarizes the findings.
Read MoreWe’re Partnering With The Mighty!
We’re thrilled to announce a new partnership with The Mighty where stories of individuals living with hydrocephalus will be featured.
Read MoreWhat Can’t You Live Without?
Read Genesis Espaillat first-person account of life with hydrocephalus, which she wrote in honor of September being Hydrocephalus Awareness month.
Read MoreHydrocephalus Mom Fights to Change Pennsylvania Truancy Law
The Mantheiy family is fighting to change truancy law in Pennsylvania for chronically ill children, like their son who has hydrocephalus.
Read MoreDevice Currently in Clinical Trials May Delay the Need for Emergency Shunt Surgery
ReFlow System by Alcyone Lifesciences, Inc., currently in clinical trials, may prevent the need for an immediate emergency shunt revision for patients with hydrocephalus.
Read MoreWhy I WALK to Raise Hydrocephalus Awareness
“…the likelihood of fraternal twins being born with the same variation of hydrocephalus was extremely rare.” One dad shares his story and the inspiration behind raising awareness.
Read MoreFDA Clears MRI-Compatible Shunt System by Medtronic
The Food and Drug Administration cleared Medtronic’s new StrataMR™ valve and shunt system for use in the United States.
Read MoreInspiring 26 Miles: A Posse of Penguins Take On the LA Marathon
Inspired by her cousin, Jessica, and her journey with hydrocephalus, Katie, along with other family members, set out to run the LA Marathon in Jessica’s honor.
Read MoreThat Feeling of Helplessness
One mom openly and honestly shares the many emotions that challenge parents of children living with hydrocephalus.
Read MoreMixed Emotions: Heartbreak
Jamie Wright, Houston Community Network leader, went to Haiti with a pediatric neurosurgery team from Children’s Memorial Hermann Hospital. This is her experience.
Read MoreHydrocephalus Community Loses a Trailblazer
It is with deep sadness we announce the passing of Noel Tulipan, MD, renowned neurosurgeon and trailblazer in fetal surgery repair for spina bifida.
Read MoreBuilding Our Life Together
In a heartwarming blog, Gayle openly shares the thoughts and emotions she experienced as she learned about the reality of loving a man with hydrocephalus .
Read MoreDiana Gray Announced as the New Chief Executive Officer
The Hydrocephalus Association (HA) is pleased to announce the appointment of Diana Gray as the new Chief Executive Officer (CEO).
Read MoreNew Discovery Makes Researchers Rethink CSF Absorption
The discovery of lymphatic vessels in the brain creates a new focus for researchers looking for non-invasive treatments for hydrocephalus.
Read MoreAnnouncing Our 2015 Hydrocephalus Association Scholarship Recipients!
We are pleased to announce our 2015 Hydrocephalus Association Scholarship Recipients!
Read MoreNavigating Social Interactions Growing Up with Hydrocephalus
In Dan’s new blog, he talks about growing up with a chronic medical condition and navigating social interactions with his school peers.
Read MoreRealizing I Had Hydrocephalus
Dan Kricke talks about the first time he realized he had hydrocephalus when he was 5 and the various emotions he had along the way to adulthood.
Read MoreTelling My Story
Meet Dan, a new guest blogger lending his voice to our adult hydrocephalus community. We are excited for Dan to share different aspects of his journey each month.
Read MoreEndoscopic Third Ventriculostomy (ETV) in Children: Prospective, Multicenter Results from the Hydrocephalus Clinical Research Network (HCRN)
What determines the success of an ETV for treating hydrocephalus? Dr. Kulkarni shares their initial findings gathered from across HCRN centers.
Read MoreOne Big Family
Life at 14 can be tough, but Jillian’s determined to live FULLY and overcome any challenge presented to her by hydrocephalus or just being a teen.
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