Posts Tagged ‘Research’
The Phoenix Community Rallies for Hydrocephalus
President and CEO of Anuncia Medical, Inc., will join hundreds of families and medical professionals at the Phoenix WALK to End Hydrocephalus as they rally to raise awareness and critical funds for hydrocephalus.
Read MoreCommunity Rallies Together in Saying “No More Brain Surgery”
Patients, family members and local businesses will raise awareness and critical funds for a brain condition that has no cure and that affects more than 1 million Americans.
Read MoreAHCRN Awarded $14 Million NINDS Grant to Study Effectiveness of Shunt Treatment for idiopathic Normal Pressure Hydrocephalus
The AHCRN, one of three research networks HA funds, was awarded a $14 million federal grant to study the effectiveness of shunt treatment for NPH.
Read MoreIn the NICU: Preparing Families for Life with Hydrocephalus
A recent study explored how neonatal intensive care units (NICUs) can better prepare families that receive a diagnosis of posthemorrhagic hydrocephalus of prematurity (PHHP).
Read MoreTechnology Update: Neurallys developing Bluetooth enabled ICP monitor
French startup Neurallys is developing an implantable intracranial pressure (ICP) monitor for hydrocephalus. The device continuously measures, records and sends ICP data to a patient’s smartphone via a Bluetooth connection.
Read More2020 Innovator Award Series: Get to Know Dr. Stavros Taraviras
Learn about Dr. Stavros Taraviras, one of four scientists who received a Hydrocephalus Association 2020 Innovator Award. Dr. Taraviras is working to turn scar tissue back into ependymal cells as a novel therapeutic strategy for hydrocephalus.
Read MoreStudy Explores Quality of Life of Children with Hydrocephalus and Caregivers
A new study published in the Journal of Neurosurgery: Pediatrics assessed quality of life and mental wellbeing of both children with hydrocephalus and their caregivers.
Read MoreGet to Know Dr. Engin Deniz: HA 2019 Innovator Award Grantee
For our Meet the Innovator Award Grantees Blog Series, we interviewed Dr. Engin Deniz, one of four scientists who received a 2019 Innovator Award. Through his research, he hopes to determine how cilia, small hair like structures that move CSF, contribute to post-traumatic hydrocephalus.
Read MoreSponsored Research Events
The Hydrocephalus Association sponsors research conferences and workshops to bring together researchers, clinicians and academics…
Read MoreFour Scientists Awarded HA Grants to Deepen Our Understanding about Hydrocephalus
There is a lot we do not know about how hydrocephalus develops and how to best treat the condition across our many communities. Our 2019 Innovator Award recipients are looking to change that.
Read MoreYou spoke! We wrote!
In October 2017, 82 individuals responded to a question we posed on social media about how hydrocephalus impacts their daily life. Researchers at the University of Pittsburgh Medical Center analyzed their responses in a new paper.
Read MoreDoes the size of an Endoscopic Third Ventriculostomy (ETV) hole increase over time?
This study is the first to evaluate the size of the ETV hole using MR imaging over a period of time. This research is important because it shows us how useful MR imaging can be to neurosurgeons who want to evaluate an ETV.
Read MoreHA-Funded Researchers Awarded $2.3 Million Grant from the Department of Defense
HA-funded researchers were awarded funding through the Department of Defense (DoD) Congressionally Directed Medical Research Programs (CDMRP) to study acquired hydrocephalus, with a particular focus on hydrocephalus that develops after a brain injury.
Read MoreThe Subjective Experience of Patients Undergoing Shunt Surgery for Idiopathic NPH
A study from Yale School of Medicine looked at the personal experiences of people diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH).
Read More$3 Million Raised for Posthemorrhagic Hydrocephalus!
The 2018 Vision Dinner was held on Friday, Nov. 2 in New York City. Generously underwritten by Craig and Vicki Brown, benefactors of the Hydrocephalus Association, the evening seeks to raise national attention about hydrocephalus and raise funds to advance hydrocephalus research.
Read MoreAnnouncing the 2018 Discovery Science Award Grantees!
The award allows these scientists to expand their research on posthemorrhagic hydrocephalus (PHH).
Read MoreHydrocephalus research presented at the international Europhysiology Conference
Alexandra Hochstetler was one of our ten Young Investigator Travel Award winners at the 2018 HACONNECT. This past weekend, she presented her work at the Europhysiology Conference held in London, United Kingdom!
Read MoreShunt versus ETV: Five year outcomes from the International Infant Hydrocephalus Study (IIHS)
The IIHS gathered data from more than 20 hospitals around the world, compared the effectiveness of shunts versus endoscopic third ventriculostomies (ETVs). This study started in 2005 and these are the five year outcomes.
Read MoreStanley White: From Aerospace Engineer to NPH Advocate
87-year-old retiree dedicates much of his time to raising awareness about NPH, particularly among medical providers.
Read MoreNew views on Postinfectious Hydrocephalus
A recent study published in Nature, Dr. Chay Kuo, out of Duke University, discovered a mechanism that may lead to the development of Postinfectious Hydrocephalus.
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