HA is pleased to announce some of the brightest minds in the field who are generously offering their time, expertise and talent in planning the 15th National Conference on Hydrocephalus
Trish was diagnosed with NPH in 2015 and had shunt surgery then. Thanks to the surgery and several kinds of therapy, Trish is now back to doing what she loves, including a killer step aerobics class at her gym and singing with her husband in a community chorus
A recently published study attempts to shed light on the long term outcomes of untreated iNPH by examining mortality rates, risk of dementia, and symptom progression in individuals with ventricular enlargement.
If you have Normal Pressure Hydrocephalus (NPH) you might find Cognitive Therapy useful. Trish Bogucki explains what it consists of and shares some tips for others who might be in the same boat she was in.
HA is proud to fund the AHCRN as they move research from bench to bedside to find new treatments, preventions and cures for adults living with hydrocephalus and NPH.
Arthur DiPatri, MD, announced as the Medical Honoree of the Chicago Hydrocephalus Association WALK on Saturday, September 27, at the Lincoln Park South Rowing Lagoon.
The Greenville Health System (GHS) Neurological Institute will host a symposium on normal pressure hydrocephalus (NPH), taking bold steps forward to raise awareness and knowledge about NPH to the medical professionals serving as the first line of defense for early and proper diagnosis.
The Core Data Project of the Adult Hydrocephalus Clinical Research Network (AHCRN) has enrolled nearly 200 patients since in late 2014.
In honor of National Hydrocephalus Awareness Month, Mayor Rahm Emanuel proclaims September 9, Hydrocephalus Awareness Day in Chicago.
Hydrocephalus Association CEO Dawn Mancuso shares the aggressive strategic plan adopted by the Board of Directors that will guide the work of HA over the next 5 years – our Roadmap to a Cure.
Is it dementia or Normal Pressure Hydrocephalus. U.S. News & World Report reports on the importance of proper diagnosis of this treatable dementia.
By Jennifer Bechard Johnson, Education Manager There is something for everyone at our 13th National Conference on Hydrocephalus. We are happy to announce that this year’s conference will have a special track of programming dedicated to meeting the needs of the normal pressure hydrocephalus (NPH) population. Here is a preview of what our conference has to […]
The Hydrocephalus Association is commemorating the 50th anniversary of the recognition of normal pressure hydrocephalus (NPH) as a distinct medical syndrome through the journeys of members of our hydrocephalus community on the road to proper diagnosis and treatment of this life-altering condition.
In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?
March 10, 2014, marks the 50th anniversary of the recognition of NPH as a distinct medical condition, allowing countless people access to the treatment needed to return to active lifestyles after possibly years of living with misdiagnosed dementia. Join the Hydrocephalus Association as we commemorate this year.
The Hydrocephalus Association’s first webinar on Normal Pressure Hydrocephalus is now available online! “What if it isn’t Alzheimer’s or Parkinson’s?” held on Tuesday, September 10, 2013, with Dr. Michael A Williams, Medical Director, Sandra and Malcolm Berman Brain & Spine Institute, LifeBridge Health at Sinai Hospital of Baltimore, discussed how the diagnosis of Normal Pressure Hydrocephalus can be missed and how it can be made.
The Hydrocephalus Association is pleased to announce our 2013 Education and Support webinar series! In this first webinar, Dr. Michael Williams, Medical Director of the Sandra and Malcolm Berman Brain and Spine Institute at Sinai Hospital of Baltimore, will discuss how the diagnosis of normal pressure hydrocephalus can be missed, and how it can be made. Register today!
News 8 out of Connecticut reports that Dr. Adam Mednick has just published a book on Normal Pressure Hydrocephalus (NPH) and is making it a goal to educate other doctors so patients are properly screened and diagnosed.
Houston’s ABC affiliate KTRK reports on Ron Shillcutt, a Houston resident initially diagnosed with dementia and then found to have Normal Pressure Hydrocephalus (NPH).
As we look back and commemorate 30 years of supporting, educating, connecting and informing families, we ask where we would be without our volunteers. Our volunteer leaders across the country have helped weave the rich tapestry of our HA history. This week we sit down with our Virginia Support Group Leader, Annie Mason.
Medwire news reports on a research study that shows that an adjustable Strata valve shunt set at the highest setting and slowly calibrated down in a patient being treated for idiopathic normal pressure hydrocephalus (INPH) reduces the cases of subdural effusion and shows improvement in gait and/or cognitive function.
ABC News features a story about rock legend, Dick Wagner (lead guitarist for Alice Cooper, Aerosmith and KISS) and his journey with hydrocephalus. Wagner was treated at the Barrow Neurological Institute. After receiving a shunt, he was back on the road making music.
I was diagnosed with Normal Pressure Hydrocephalus (NPH) after over 15 years of experiencing a slow progression of seemingly inexplicable mental and physical decline. Thanks to the Hydrocephalus Association and my medical team, I was able to learn more about Normal Pressure Hydrocephalus and pursue treatment.
Parade Magazine features a story on normal pressure hydrocephalus (NPH) and the journey of Jimmy Nowell of Clifton, Texas to find a diagnosis and treatment. Dr’s Mark Luciano and Michael Williams of the HA Medical Advisory Board are interviewed for the article.
A new study from Kuopio University Hospital, Finland found that around half of patients with idiopathic normal pressure hydrocephalus (iNPH) will develop dementia, despite responding to shunting. Many patients had other contributing factors.
Joyce Schwartz shares her 23 year journey of searching for a diagnosis and then treatment for Normal Pressure Hydrocephalus (HA).
Fog is Lifted After 15 Years of Confusion and Misdiagnosis Milt Newman’s retirement was not living up to expectations due to a slow progression of seemingly inexplicable mental and physical decline. What no one knew was that Milt, then 73, was suffering from Normal Pressure Hydrocephalus (NPH), a treatable neurological disorder in which excess fluid […]