normal pressure hydrocephalus
At our 13th National Conference on Hydrocephalus in Portland, OR, July 9-11, 2014, we gathered to re-establish our sense of community and educate ourselves about hydrocephalus. Take a peek at our conference highlights!
Amanda Seeley, Neurosurgery Nurse Practitioner, Gillette Children’s Hospital, and co-chair of our Twin Cities Hydrocephalus Association WALK held at the Mall of America, provides an informative question and answer blog about hydrocephalus. The blog highlights photos from our annual WALK.
Standing alongside our Long Island Hydrocephalus Association WALK co-chairs, Mia Padron and Jackie Davidson, NY State Senator John Flanagan designates September as Hydrocephalus Awareness Month.
The Smyrna, DE, community is rallying to raise awareness for hydrocephalus and the funds needed to support critical research into better treatment options and a cure for hydrocephalus.
Codman Neuro, part of DePuy Synthes Companies of Johnson & Johnson, are providing the funding behind the new Bertil Romner Memorial Hydrocephalus Research Prize, a grant to support further research into Normal Pressure Hydrocephalus.
The Cross Timbers Gazette features Megan Redfearn and her daughter, Emma, and highlight Megan’s work to support families through leading the Hydrocephalus Association Dallas Community Network and co-chairing the inaugural DFW Hydrocephalus Association 5K WALK on September 27, 2014.
300 top neuroscientists gathered to meet on and discuss a full range of CSF disorders affecting both children and adults, primarily focused on hydrocephalus.
September is HYDROCEPHALUS AWARENESS MONTH! To celebrate the 30 days of September, here are 30 ways you can help raise awareness. We hope we hear you raise your voice!
Reporter Peter King with Newsday interviews Dr. Norman Relkin about Normal Pressure Hydrocephalus and the difficulties with discerning between it and Alzheimer’s.
The Times of India reports that GaitRite is being used to detect normal pressure hydrocephalus in suspected patients by analyzing an individual’s gait for one of the telltale signs of shuffling common in NPH patients.
The Apple Gold Group, a franchisee of Applebee’s Neighborhood Grill and Bar, is hosting a fundraiser to support the 2nd annual Hydrocephalus Association of Columbia WALK. The CEO of Apple Gold Group encourages the Columbia, South Carolina community to support the cause.
Working with the Frisco Parks and Recreation Department, Frisco Commons was selected for the site of the inaugural 2014 Dallas/Fort Worth Hydrocephalus Association WALK which will take place on September 27, 2014.
It is with a heavy heart that we share the news of the passing of Dick Wagner from respiratory failure following a cardiac procedure two weeks earlier. He was a rock legend, a gentleman living with NPH and advocating for awareness, and a friend of HA. “On behalf of the board of directors and staff […]
It is with a heavy heart that we share the news of the passing of Dick Wagner from respiratory failure following a cardiac procedure two weeks earlier. He was a rock legend, a gentleman living with NPH and advocating for awareness, and a friend of HA.
Dr. Daniele Rigamonte, director of the Department of Neurosurgery’s stereotactic radiosurgery at Johns Hopkins, shares his vast knowledge of Normal Pressure Hydrocephalus in a newly published book, “Adult Hydrocephalus.” In the book he sites a 2007 study he led that highlights the potential national cost savings to proper timely diagnosis of NPH by the medical community.
WCCB Charlotte features the 2nd Annual Greater Charlotte Hydrocephalus Association WALK which will take place on September 13, 2014, at the Elizabeth Park, Little Sugar Creek Greenway.
50 years after his father first recognized and treated normal pressure hydrocephalus, Dr. Carlos Hakim is partnering with the Hydrocephalus Association and other clinicians on a mission to advocate for screening and proper diagnosis of the estimated 375,000 Americans suffering with this treatable form of dementia.
Normal pressure hydrocephalus (NPH) is an accumulation of cerebrospinal fluid (CSF) that causes the ventricles in the brain to become enlarged, sometimes with little or no increase in intracranial pressure (ICP).
At the Hydrocephalus Association’s biennial national conference, interpersonal connection sessions allow attendees, like the Rocciola family, to meet lifelong friends who share their journey with hydrocephalus – other moms, dads, siblings, and peers.
In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso shares insights into our recent Research Workshop, “Biomarkers in Hydrocephalus,” held in St. Louis, MO, in late April, which brought together over 30 of the world’s leading experts in biomarkers.
Researchers presenting at the 2014 International Stroke Conference found patients with intraventricular hemorrhage after intracerebral hemorrhage have an increased risk for developing two of the three classic normal pressure hydrocephalus symptoms.
By Jennifer Bechard Johnson, Education Manager There is something for everyone at our 13th National Conference on Hydrocephalus. We are happy to announce that this year’s conference will have a special track of programming dedicated to meeting the needs of the normal pressure hydrocephalus (NPH) population. Here is a preview of what our conference has to […]
The Australian government chose not appropriate $200,000 for a national registry of shunt operations in the Australia federal budget, despite honoring a commitment from the previous Labor government for a $150,000 start-up grant to the Neurosurgical Society of Australasia.
The Hydrocephalus Association is the nation’s largest and most widely respected organization dedicated to hydrocephalus … and you are part of our success. As we prepare to make 2014 a year of unprecedented accomplishments, please help us by renewing your membership support.
The Hydrocephalus Association is excited to announce our collaboration with the Hydrocephalus Clinical Research Network (HCRN) on research projects important to the hydrocephalus community. We would like your input on which areas of hydrocephalus interest you most, and what you would like to be researched. Take our survey!
The April 2014 issue of the AARP Bulletin featured an article that highlights normal pressure hydrocephalus as a condition that mimics dementia, helping raise awareness about an often undiagnosed or misdiagnosed treatable neurological condition that affects up to 700,000 persons in the United States alone.
In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?
March 10, 2014, marks the 50th anniversary of the recognition of NPH as a distinct medical condition, allowing countless people access to the treatment needed to return to active lifestyles after possibly years of living with misdiagnosed dementia. Join the Hydrocephalus Association as we commemorate this year.
Fox 10 News Phoenix airs a powerful interview with famous rock musician Dick Wagner about his long road to receiving the proper diagnosis of Normal Pressure Hydrocephalus.
In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso shares the results of our Stakeholder Survey eliciting input from our members on the state of HA and direction for the future of the association.
Some attendees of the Hydrocephalus Association’s 13th National Conference on Hydrocephalus will be driving only a short distance, while many of us will be flying in from all around the country. See what Portland, OR, has to offer as you plan your trip.
The Adult Hydrocephalus Clinical Research Network Planning Committee finalizes the policies and procedures for collecting data from adult hydrocephalus patients at its 6 clinical centers and reviews protocols for its first clinical study.
The Hydrocephalus Association patient-centered National Conference empowers all of us with the tools and connections to address the medical, educational and social complexities of living with hydrocephalus. Join us in Portland, Oregon, July 9-11, 2014!
Join the Hydrocephalus Association on Monday, March 3, 2014, at 7:00 p.m. EST for our next webinar, “Research Update: Delivering on a Promise,” exploring the latest advances in hydrocephalus research and showcasing several exciting studies being conducted to better understand the basic science of hydrocephalus and clinical protocols for treating patients.