normal pressure hydrocephalus

National Hydrocephalus Conference 2014

13th National Conference on Hydrocephalus: Highlights

At our 13th National Conference on Hydrocephalus in Portland, OR, July 9-11, 2014, we gathered to re-establish our sense of community and educate ourselves about hydrocephalus. Take a peek at our conference highlights!

CONTINUE READING
Hydrocephalus Teens Take Charge Blogger

Crossing the Finish Line

During WALK season and hydrocephalus awareness month, guest blogger Ariel Yong shares a lesson in teamwork learned in her most recent competition – the Spartan Race.

CONTINUE READING

Q&A on Hydrocephalus from Gillette Children’s Hospital

Amanda Seeley, Neurosurgery Nurse Practitioner, Gillette Children’s Hospital, and co-chair of our Twin Cities Hydrocephalus Association WALK held at the Mall of America, provides an informative question and answer blog about hydrocephalus. The blog highlights photos from our annual WALK.

CONTINUE READING

Senator John Flanagan Designates September Hydrocephalus Awareness Month in New York

Standing alongside our Long Island Hydrocephalus Association WALK co-chairs, Mia Padron and Jackie Davidson, NY State Senator John Flanagan designates September as Hydrocephalus Awareness Month.

CONTINUE READING

Delaware Community Rallies to Raise Awareness

The Smyrna, DE, community is rallying to raise awareness for hydrocephalus and the funds needed to support critical research into better treatment options and a cure for hydrocephalus.

CONTINUE READING
Nasal Spray for Hydrocephalus

Through the NOSE! Non-invasive Modulation of CSF Absorption

A proof of concept paper shows that drugs delivered through a nasal spray could one day provide a non-surgical way to manage hydrocephalus.

CONTINUE READING

Codman Neuro Inaugurates Hydrocephalus Research Prize at ISHCSF

Codman Neuro, part of DePuy Synthes Companies of Johnson & Johnson, are providing the funding behind the new Bertil Romner Memorial Hydrocephalus Research Prize, a grant to support further research into Normal Pressure Hydrocephalus.

CONTINUE READING

Texas Mother-daughter Duo Raises Hydrocephalus Awareness

The Cross Timbers Gazette features Megan Redfearn and her daughter, Emma, and highlight Megan’s work to support families through leading the Hydrocephalus Association Dallas Community Network and co-chairing the inaugural DFW Hydrocephalus Association 5K WALK on September 27, 2014.

CONTINUE READING

Bristol is Meeting Ground for 300 Top Neuroscientists

300 top neuroscientists gathered to meet on and discuss a full range of CSF disorders affecting both children and adults, primarily focused on hydrocephalus.

CONTINUE READING
Hydrocephalus Awareness Month 2014

Hydrocephalus Awareness MATTERS!

September is HYDROCEPHALUS AWARENESS MONTH! To celebrate the 30 days of September, here are 30 ways you can help raise awareness. We hope we hear you raise your voice!

CONTINUE READING
Hydrocephalus Association Website

Announcing our NEW Website!

During this month of Hydrocephalus Awareness, we are are proud to announce the launch of our newly redesigned website! See what’s new…

CONTINUE READING

Newsday Features Normal Pressure Hydrocephalus

Reporter Peter King with Newsday interviews Dr. Norman Relkin about Normal Pressure Hydrocephalus and the difficulties with discerning between it and Alzheimer’s.

CONTINUE READING

Portable Device May Aid in Diagnosis of Normal Pressure Hydrocephalus

The Times of India reports that GaitRite is being used to detect normal pressure hydrocephalus in suspected patients by analyzing an individual’s gait for one of the telltale signs of shuffling common in NPH patients.

CONTINUE READING

Apple Gold Group Joins with HA to Raise Funds for Hydrocephalus

The Apple Gold Group, a franchisee of Applebee’s Neighborhood Grill and Bar, is hosting a fundraiser to support the 2nd annual Hydrocephalus Association of Columbia WALK. The CEO of Apple Gold Group encourages the Columbia, South Carolina community to support the cause.

CONTINUE READING

Frisco Commons Park Partners with the Inaugural Hydrocephalus Association WALK in Dallas, TX

Working with the Frisco Parks and Recreation Department, Frisco Commons was selected for the site of the inaugural 2014 Dallas/Fort Worth Hydrocephalus Association WALK which will take place on September 27, 2014.

CONTINUE READING
Dick Wagner at Detroit Hydrocephalus Association WALK

A Sad Farewell to a Rock Legend and HA Advocate: Dick Wagner

It is with a heavy heart that we share the news of the passing of Dick Wagner from respiratory failure following a cardiac procedure two weeks earlier. He was a rock legend, a gentleman living with NPH and advocating for awareness, and a friend of HA. “On behalf of the board of directors and staff […]

CONTINUE READING
Dick Wagner at the Hydrocephalus Association Detroit WALK 2013

A Sad Farewell to a Rock Legend and HA Advocate: Dick Wagner

It is with a heavy heart that we share the news of the passing of Dick Wagner from respiratory failure following a cardiac procedure two weeks earlier. He was a rock legend, a gentleman living with NPH and advocating for awareness, and a friend of HA.

CONTINUE READING

New Book on NPH Sights Considerable Savings with Proper Diagnosis

Dr. Daniele Rigamonte, director of the Department of Neurosurgery’s stereotactic radiosurgery at Johns Hopkins, shares his vast knowledge of Normal Pressure Hydrocephalus in a newly published book, “Adult Hydrocephalus.” In the book he sites a 2007 study he led that highlights the potential national cost savings to proper timely diagnosis of NPH by the medical community.

CONTINUE READING

Charlotte HA WALK Featured on WCCB Charlotte

WCCB Charlotte features the 2nd Annual Greater Charlotte Hydrocephalus Association WALK which will take place on September 13, 2014, at the Elizabeth Park, Little Sugar Creek Greenway.

CONTINUE READING

Experts in Brain Function Decry Lack of Care for Treatable Dementia Patients

50 years after his father first recognized and treated normal pressure hydrocephalus, Dr. Carlos Hakim is partnering with the Hydrocephalus Association and other clinicians on a mission to advocate for screening and proper diagnosis of the estimated 375,000 Americans suffering with this treatable form of dementia.

CONTINUE READING
National Hydrocephalus Conference 2014

HOT Conference Deal!

Register for the Hydrocephalus Association’s 13th National Conference on Hydrocephalus and be entered for a chance to win 4 full conference registrations to our 2016 Conference!

CONTINUE READING
water on the brain is normal pressure hydrocephalus

Normal Pressure Hydrocephalus

Normal pressure hydrocephalus (NPH) is an accumulation of cerebrospinal fluid (CSF) that causes the ventricles in the brain to become enlarged, sometimes with little or no increase in intracranial pressure (ICP).

CONTINUE READING

Interpersonal Connection…You Really DO Get It.

At the Hydrocephalus Association’s biennial national conference, interpersonal connection sessions allow attendees, like the Rocciola family, to meet lifelong friends who share their journey with hydrocephalus – other moms, dads, siblings, and peers.

CONTINUE READING
Dawn Mancuso, CEO, Hydrocephalus Association

From the CEO: Sowing the Seeds of Exploration into Hydrocephalus

In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso shares insights into our recent Research Workshop, “Biomarkers in Hydrocephalus,” held in St. Louis, MO, in late April, which brought together over 30 of the world’s leading experts in biomarkers.

CONTINUE READING

NPH-type Symptoms Found after Intraventricular Hemorrhage

Researchers presenting at the 2014 International Stroke Conference found patients with intraventricular hemorrhage after intracerebral hemorrhage have an increased risk for developing two of the three classic normal pressure hydrocephalus symptoms.

CONTINUE READING
National Hydrocephalus Conference 2014

2014 Conference Update – NPH Track Highlights

By Jennifer Bechard Johnson, Education Manager There is something for everyone at our 13th National Conference on Hydrocephalus. We are happy to announce that this year’s conference will have a special track of programming dedicated to meeting the needs of the normal pressure hydrocephalus (NPH) population. Here is a preview of what our conference has to […]

CONTINUE READING

Australian Government Denies Hydrocephalus Registry

The Australian government chose not appropriate $200,000 for a national registry of shunt operations in the Australia federal budget, despite honoring a commitment from the previous Labor government for a $150,000 start-up grant to the Neurosurgical Society of Australasia.

CONTINUE READING
National Hydrocephalus Conference 2014

2014 Conference Update – Preliminary Schedule Now Available!

The Hydrocephalus Association staff is happy to announce the release of our preliminary schedule for our upcoming 13th National Conference on Hydrocephalus, Community. Clarity. Cure., July 9-11, 2014, in Portland, OR.

CONTINUE READING
Power of the Hydrocephalus Movement

The Power of a Movement

The Hydrocephalus Association is the nation’s largest and most widely respected organization dedicated to hydrocephalus … and you are part of our success. As we prepare to make 2014 a year of unprecedented accomplishments, please help us by renewing your membership support.

CONTINUE READING
Hydrocephalus Research

Help us determine the direction of hydrocephalus research!

The Hydrocephalus Association is excited to announce our collaboration with the Hydrocephalus Clinical Research Network (HCRN) on research projects important to the hydrocephalus community. We would like your input on which areas of hydrocephalus interest you most, and what you would like to be researched. Take our survey!

CONTINUE READING

AARP Bulletin Features Normal Pressure Hydrocephalus

The April 2014 issue of the AARP Bulletin featured an article that highlights normal pressure hydrocephalus as a condition that mimics dementia, helping raise awareness about an often undiagnosed or misdiagnosed treatable neurological condition that affects up to 700,000 persons in the United States alone.

CONTINUE READING

Conference is only 3 short months away!

Join us in Portland, Oregon, July 9-11, 2014, for our 13th National Conference on Hydrocephalus hosted by the Hydrocephalus Association.

CONTINUE READING

Bringing Normal Pressure Hydrocephalus Out of Obscurity

In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?

CONTINUE READING

50th Anniversary of the Recognition of Normal Pressure Hydrocephalus

March 10, 2014, marks the 50th anniversary of the recognition of NPH as a distinct medical condition, allowing countless people access to the treatment needed to return to active lifestyles after possibly years of living with misdiagnosed dementia. Join the Hydrocephalus Association as we commemorate this year.

CONTINUE READING

Musician Dick Wagner Shares the Long Road to Diagnosis of Normal Pressure Hydrocephalus

Fox 10 News Phoenix airs a powerful interview with famous rock musician Dick Wagner about his long road to receiving the proper diagnosis of Normal Pressure Hydrocephalus.

CONTINUE READING

The Results of a Strong Partnership

In her monthly blog, Hydrocephalus Association CEO Dawn Mancuso shares the results of our Stakeholder Survey eliciting input from our members on the state of HA and direction for the future of the association.

CONTINUE READING

Get to Know Our Conference Host City – Portland, Oregon

Some attendees of the Hydrocephalus Association’s 13th National Conference on Hydrocephalus will be driving only a short distance, while many of us will be flying in from all around the country. See what Portland, OR, has to offer as you plan your trip.

CONTINUE READING

Update on the Adult Hydrocephalus Clinical Research Network

The Adult Hydrocephalus Clinical Research Network Planning Committee finalizes the policies and procedures for collecting data from adult hydrocephalus patients at its 6 clinical centers and reviews protocols for its first clinical study.

CONTINUE READING

13th National Conference on Hydrocephalus: Community. Clarity. Cure.

The Hydrocephalus Association patient-centered National Conference empowers all of us with the tools and connections to address the medical, educational and social complexities of living with hydrocephalus. Join us in Portland, Oregon, July 9-11, 2014!

CONTINUE READING

Upcoming Research Webinar: Delivering on a Promise

Join the Hydrocephalus Association on Monday, March 3, 2014, at 7:00 p.m. EST for our next webinar, “Research Update: Delivering on a Promise,” exploring the latest advances in hydrocephalus research and showcasing several exciting studies being conducted to better understand the basic science of hydrocephalus and clinical protocols for treating patients.

CONTINUE READING
Change this in Theme Options
Change this in Theme Options