normal pressure hydrocephalus

water on the brain is normal pressure hydrocephalus

The Difficulties of Diagnosing Normal Pressure Hydrocephalus

Approximately 10% of those diagnosed with Alzheimer’s or dementia are living with Normal Pressure Hydrocephalus. Why is it so often mis- or undiagnosed?

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Health System Takes Steps to Educate Medical Professionals on Often Misdiagnosed Brain Condition

The Greenville Health System (GHS) Neurological Institute will host a symposium on normal pressure hydrocephalus (NPH), taking bold steps forward to raise awareness and knowledge about NPH to the medical professionals serving as the first line of defense for early and proper diagnosis.

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Lance Lee, PhD, Hydrocephalus Association Innovator Awardee

Announcing the 2015 Innovator Award Grantees

2015 Awardees focused on research to better understand why hydrocephalus develops and to identify therapies to prevent or reverse hydrocephalus.

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Gift of Life Hydrocephalus Research Campaign

The Gift of Life: 2015 Year End Research Campaign

Finding a cure for hydrocephalus will take our commitment, determination, and perseverance—the very things we demand of hydrocephalus patients every single day.

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14th National Conference on Hydrocephalus

LEARN MORE: National Conference on Hydrocephalus

LEARN MORE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016!

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Normal Pressure Hydrocephalus Chicago Med

Chicago Med Raises Awareness of Treatable Dementia

On November 24, 2015, NBC’s Chicago Med aired an episode which highlighted Normal Pressure Hydrocephalus (NPH), often referred to as a treatable dementia.

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GivingTuesday Hydrocephalus Association

Double your Gift of Hope

This #GivingTuesday, for every dollar you donate to the Hydrocephalus Association, a generous donor will match it up to $15,000!

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Hydrocephalus Conference

Book Your Hotel for Conference!

Housing is open for the National Conference on Hydrocephalus June 16-19 in Minneapolis, Minnesota. Book your hotel!

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Adult Hydrocephalus Clinical Research Network

Next Steps for the Adult Hydrocephalus Clinical Research Network

The Core Data Project of the Adult Hydrocephalus Clinical Research Network (AHCRN) has enrolled nearly 200 patients since in late 2014.

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Diana Gray HA CEO

Diana Gray Announced as the New Chief Executive Officer

The Hydrocephalus Association (HA) is pleased to announce the appointment of Diana Gray as the new Chief Executive Officer (CEO).

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Hydrocephalus Association Announces New Chief Executive Officer

The largest hydrocephalus patient advocacy organization, the Hydrocephalus Association (HA), selects Diana Gray as the new Chief Executive Officer (CEO) to lead an aggressive growth strategy.

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Hydrocephalus Action Network

It’s Time to Start Taking Action!

It’s time to start energizing our hydrocephalus grassroots network! Here are a few assignments for you to help make you a star advocate.

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New Mobile App is First to Allow Hydrocephalus Patients and Doctors to Manage Care Collectively

HydroAssist™ will allow hydrocephalus patients to record and access their full hydrocephalus treatment history on their smartphones and tablets.

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Annual Vision Dinner to Provide Funds to Find a Cure for Hydrocephalus

On October 15, the Hydrocephalus Association will hold its annual Vision Dinner to raise crucial funds to kick-start a breakthrough initiative aimed at curing hydrocephalus.

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Hydrocephalus Awareness Month 2015

Hydrocephalus Awareness Month Wrap Up!

Individuals from across the country, and even the world, joined HA in raising awareness and educating the public about hydrocephalus.

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Dr. Mark Hamilton, Adult Hydrocephalus Clinical Research Network

Upcoming Webinar: AHCRN Update

Join us for our next webinar on the Adult Hydrocephalus Clinical Research Network (AHCRN). Tune in to hear about progress after 1 year of patient enrollment.

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Saint Louis Science Center’s James S. McDonnell Planetarium Lighting for Hydrocephalus Awareness

St. Louis’ James S. McDonnell Planetarium Lit Teal for Hydrocephalus Awareness

Saint Louis Science Center’s James S. McDonnell Planetarium Lighting for Hydrocephalus Awareness will take place on September 18, 2015, at sunrise and sunset.

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Hydrocephalus Infographic

Hydrocephalus Awareness Infographic

Raise hydrocephalus awareness by sharing this infographic!

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Hydrocephalus Awareness Month Challenge

Turn the Country Hydrocephalus BLUE!

Our Hydrocephalus Awareness Month challenge? Let’s turn this country #hydrocephalus BLUE! Here’s how…

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Hydrocephalus Awareness Month 2015

Hydrocephalus Awareness Month 2015 is HERE!

September is Hydrocephalus Awareness Month! Here are 15 ways you can make an impact and raise awareness.

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Chicago Mayor Rahm Emanuel Proclaims September 9 Hydrocephalus Awareness Day

In honor of National Hydrocephalus Awareness Month, Mayor Rahm Emanuel proclaims September 9, Hydrocephalus Awareness Day in Chicago.

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water on the brain is normal pressure hydrocephalus

The Miami Herald Raises Awareness of Normal Pressure Hydrocephalus

When our traditional notions of aging can cloud our ability to ask questions early and often for our loved ones…

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Dawn Mancuso, CEO, Hydrocephalus Association

From the CEO: Planning with the End Result in Mind

Hydrocephalus Association CEO Dawn Mancuso shares the aggressive strategic plan adopted by the Board of Directors that will guide the work of HA over the next 5 years – our Roadmap to a Cure.

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Michelle Fernandez living with hydrocephalus

WNYT Albany Raises Hydrocephalus Awareness

Benita Zahn of WNYT-TV in Albany delivers a comprehensive news story on an incurable brain condition called hydrocephalus.

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Survey

How Can We Serve You Better?

We continually strive to provide the best support and education services, and most current, comprehensive information and resources to assist our community. Take a brief survey and help us develop programs and services to better fit your needs.

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American Academy of Neurology Annual Meeting

Happening NOW! American Academy of Neurology Annual Meeting in Washington DC

HA represents the patient voice at the American Academy of Neurology Annual Meeting in Washington DC.

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Greys Anatomy features Normal Pressure Hydrocephalus

Grey’s Anatomy Highlights Misdiagnosis of Normal Pressure Hydrocephalus

On Thursday, March 19, 2015, Grey’s Anatomy aired an episode which highlighted Normal Pressure Hydrocephalus and raised awareness of a “treatable dementia.”

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Research 101: Levels of Evidence in Hydrocephalus Clinical Research Studies

Clinical studies are often reported in the news, but how do you know if the study is strong? Dr. Koschnitzky describes how to interpret the results of a study.

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US News and World Report NPH Article

U.S. News & World Report Features Normal Pressure Hydrocephalus

Is it dementia or Normal Pressure Hydrocephalus. U.S. News & World Report reports on the importance of proper diagnosis of this treatable dementia.

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Dawn Mancuso, CEO, Hydrocephalus Association

Celebrating a BANNER Year!

With our eligibility to receive research funding through the CDMRP to launching our Adult Hydrocephalus Clinical Research Network, it has been a year of WINS.

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Rare Brain Condition Now Eligible for Department of Defense Research Dollars

The Hydrocephalus Association (HA) with its allies on Capitol Hill is celebrating this “first,” as hydrocephalus is named an eligible condition.

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Clay Matthews, Hydrocephalus Challenge

And the Hydrocephalus Challenge WINNERS are…

The Hydrocephalus Association would like to extend a huge THANK YOU to Clay Matthews and Alison Sweeney for their generous donations for Hydrocephalus Challenges.

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GIvingTuesday for hydrocephalus

Double Your Impact this #GivingTuesday!

This #GivingTuesday, for every dollar donated, a generous donor will match it up to $10,000! Your gift to HA will count twice as much – and mean twice as much!

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Hydrocephalus Research Webinar

Upcoming Webinar: Hope in Progress

Tune in to the Hydrocephalus Association’s next webinar to hear the latest on hydrocephalus research, AHCRN, and HA funded research.

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Boozle Bear, hydrocephalus bear

Meet Boozle Bear! An Educational Tool Handmade by Volunteers

Boozle bear, who has hydrocephalus, is an educational tool used to demonstrate how shunting works. Read about this amazing bear and how you can help make him!

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FoxNews Is it dementia?

FOX News Educates the Public on Normal Pressure Hydrocephalus

With it’s recent story on Normal Pressure Hydrocephalus, Fox News plays an important role in our continued efforts to educate the public and raise awareness about hydrocephalus and normal pressure hydrocephalus to a large national audience.

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Picture-perfect Day for Chattanooga Hydrocephalus WALK

Chattanooga’s LaTrice Currie, Anchor/Reporter for WRCB TV and Chattanooga Hydrocephalus Association WALK Celebrity Chair, reports on the picture-perfect day enjoyed by nearly 400 WALK participants at this year’s event. Click here to read the full article.

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Brown Family Hydrocephalus Vision Dinner

The Greenville News Shares One Couple’s “Vision”

Tomorrow evening Craig and Vicki Brown will host the 2nd annual Vision Dinner in New York City. The event is featured in an October 10, 2014, article in The Greenville News titled, “Drive Owner Hosts Rare Disease Fundraiser.”

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Hydrocephalus Association Board Member Hosts Vision Dinner

Liv Osby of Greenville News interviews Craig Brown, senior vice chair of the HA Board of Directors, who, with his wife Vicki, will host the Vision Dinner in New York City to increase public awareness, stimulate research, and spark physician interest in specializing in hydrocephalus. Craig and Vicki have a son and a nephew with hydrocephalus.

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Spread the word about hydrocephalus

Are YOU Up for the Challenge?

Do you want to raise awareness about hydrocephalus? THIS IS THE PERFECT OPPORTUNITY. Read how.

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