SAVE THE DATE: The 13th National Conference on Hydrocephalus will take place in Portland, OR, on July 9-11, 2014!
The goal of our conferences is to provide tools and connections to address the medical, educational and social complexities of living with hydrocephalus and to provide the opportunity for an enjoyable get together!
There will also be plenty of interactive sessions, the cornerstone educational seminars by our team of medical professionals and researchers with time for Q&A, the ever popular hands-on brain anatomy and physiology lab, and the dinner and dance with talent show. Read more
By: Karima Roumila, MPH
Ever wondered if that memory loss, bladder incontinence or gait problem could be something other than Alzheimer’s or Parkinson’s? Did you know that about 375,000 older Americans have Normal Pressure Hydrocephalus (NPH) and it is one of the few causes of dementia that can be controlled or reversed with treatment?
During Hydrocephalus Awareness Month, we launched our webinar series. Our first webinar titled, “What if it isn’t Alzheimer’s or Parkinson’s?” was held on Tuesday, September 10, 2013. Read more
Hydrocephalus affects a wide range of people, from infants and children to young, middle-aged and older adults as well as those children transitioning to adulthood. The symptoms and challenges faced by adults are vastly different from hydrocephalus diagnosed in infancy and early childhood. When hydrocephalus is diagnosed in adults aged 60 and older, it is typically referred to as Normal Pressure Hydrocephalus or NPH. When it’s diagnosed in young and middle aged adults it is called Syndrome of Hydrocephalus in Young and Middle Aged adults or SHYMA. Read more
The Hydrocephalus Association has become the leading non-profit funder of hydrocephalus research, investing millions of dollars in research projects, both bench and clinical, that aim to improve our understanding on the causes, diagnostics, treatment and outcomes of hydrocephalus. As members, we work on your behalf to ensure greater coordination of research, identify and reach the patient population and provide training and educational opportunities tailored to the needs of the professional community. Read more
Long Island Newsday reports on Emily and Russel Fudge, recipients of the Vision Award for Leadership for being part of the initial group of founding members of the Hydrocephalus Association. They received the award at the Hydrocephalus Association’s First Annual Vision Dinner held in New York City on October 10, 2013.
Dr. Barry Jordan of Burke Rehabilitation Hospital will be honored with the Champion of Hope award by the Brain Injury Association of New York State (BIANYS). He has extensive experience in the diagnosis and treatment of brain injuries, including chronic traumatic encephalopathy (CTE), a progressive degenerative disease which can develop into Normal Pressure Hydrocephalus (NPH).
The Brigham and Women’s Hospital Health Blog, Health Hub, features the story of Susan Sontag, diagnosed with Normal Pressure Hydrocephalus (NPH) after a successful recovery from what she was told was terminal brain cancer.