normal pressure hydrocephalus

Cognitive Therapy for NPH Patients

If you have Normal Pressure Hydrocephalus (NPH) you might find Cognitive Therapy useful. Trish Bogucki explains what it consists of and shares some tips for others who might be in the same boat she was in.

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The Hydrocephalus Association wants to THANK YOU!

By filling out our online surveys, participating in the clinical research networks, and making donations, we are moving hydrocephalus research forward!

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Jeff marathon runner hydrocephalus

Ever Wanted to Push Yourself to RUN?

Ever aspired to run a half or full marathon? Ever thought of running in honor of your loved one living with hydrocephalus? Do you have hydrocephalus and love to run?

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Hydrocephalus Advocates Join Rare Disease Week

HA staff were joined by members of our Hydrocephalus Action Network (HAN) to represent our hydrocephalus community in Rare Disease Week.

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Student Spotlight: Jamie Wright Advocates For Hydrocephalus Awareness

Imagine having a neurological condition that most people have never heard of. Jamie Wright is on a mission to educate others about hydrocephalus.

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Staff of the Hydrocephalus Association

2016 Year-In-Review

As we close out yet another banner year, we are grateful for all that we have been able to achieve through the support of our caring community.

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The Mighty

We’re Partnering With The Mighty!

We’re thrilled to announce a new partnership with The Mighty where stories of individuals living with hydrocephalus will be featured.

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NPH

Like Father, Like Son: An NPH Journey

One man watched his father decline into a state of confusion until diagnosed with Normal Pressure Hydrocephalus. Then he found himself traveling the same road.

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Hydrocephalus Professional Member Society

Why Join the Hydrocephalus Professional Member Society?

Professional members enjoy the benefits of the association working on your behalf to ensure greater coordination of research, identify and reach the patient population and provide training and educational opportunities tailored to the needs of the professional community. Join us today.

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Hydrocephalus Action Network

Election 2016: What Does this Mean for the Hydrocephalus Community?

The incoming Administration and Congressional Members will take office with new policy priorities. On healthcare, some will remain the same, while others will change.

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Election

The Candidates on Healthcare

It is important to know before you vote what each candidate’s position is on healthcare and how it will impact you and your family managing hydrocephalus.

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Hydrocephalus Association Education Days

Hydrocephalus Education Days Provide Connections

Complementing our National Conference on Hydrocephalus, we are proud to host Hydrocephalus Education Days in select cities across the USA.

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Seattle Neurologist Honored for 18 Years of Service to Patients with Debilitating Brain Condition

Dr. Michael A. Williams received the Leadership Award by the Hydrocephalus Association to honor his career dedicated to caring for patients with hydrocephalus.

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Adults living with hydrocephalus

Double Your Impact for Adult Hydrocephalus Research!

Donate now through October 31st and your gift will be matched dollar for dollar by a generous donor who will give up to $100,000 to further research into adult hydrocephalus!

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Chicago Neurosurgeon Announced as Medical Honoree of the Chicago Hydrocephalus Association WALK

Arthur DiPatri, MD, announced as the Medical Honoree of the Chicago Hydrocephalus Association WALK on Saturday, September 27, at the Lincoln Park South Rowing Lagoon.

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Alcyone Lifesciences Inc

Device Currently in Clinical Trials May Delay the Need for Emergency Shunt Surgery

ReFlow System by Alcyone Lifesciences, Inc., currently in clinical trials, may prevent the need for an immediate emergency shunt revision for patients with hydrocephalus.

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Adults living with hydrocephalus

A National Registry Would Shed Life-Saving Light on Hydrocephalus

Support is needed for research initiatives that aim to better understand the distribution and determinants of [hydrocephalus] and to develop new therapies and other interventions.

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Hydrocephalus Action Network

This August It’s All About #CuresNOW!

Have you joined the thousands of advocates around the country speaking out for Hydrocephalus treatments and cures? If not, join the #CuresNOW campaign today!

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Hydrocephalus Community Network

2016 Member Impact Report

I hope you take great pride in all that we continue to accomplish with your support.

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Hydrocephalus WALK in Indiana

Why I WALK – For a Better Tomorrow

The WALK has become so important to me because I know how it feels to be alone and confused after being diagnosed with hydrocephalus.

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Hydrocephalus Action Network

Senate Demonstrates Support for Continued Research for Veterans Living with Hydrocephalus

The hydrocephalus community claimed a big victory on Capitol Hill when we helped ensure Congress did not restrict medical research for veterans living with hydrocephalus.

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Adult living with hydrocephalus

Finding that Perfect Fit

It was truly amazing to be surrounded by people who either have hydrocephalus themselves that know exactly what it’s like to live the way I live,

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Adult with Hydrocephalus

The Power of Sharing

I look forward to going back to the hydrocephalus conference to reconnect with old friends, meet new friends and learn the latest and greatest information…

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Coping with Normal Pressure Hydrocephalus

Ontario man shares his journey with Normal Pressure Hydrocephalus and the support he received to cope with the diagnosis.

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National Conference on Hydrocephalus

Meet the Medical Chairs of our 14th National Conference on Hydrocephalus!

We are honored to have Dr. Marion Walker and Dr. Michael A. Williams chair our 14th National Conference on Hydrocephalus.

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Recognizing NPH, Reversing Dementia

A certain type of hydrocephalus can cause a person to lose the ability to walk and talk normally. And because the symptoms are similar to dementia or Parkinson’s, it’s a condition that can be easily overlooked. But if doctors properly diagnose N.P.H. , they can often reverse it.

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Singer and Brain Cancer Survivor Uses Music as Therapy

Angel Raynoso spent his 30th birthday in the hospital. The day before, he’d had a seizure, was rushed to intensive care and had emergency surgery to relieve pressure on his brain.

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Thousands of Seniors Being Misdiagnosed

Older Americans around the country are being misdiagnosed with Alzheimer’s and Parkinson’s. Normal Pressure Hydrocephalus can display similar symptoms, but is treatable.

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National Hydrocephalus Conference

Conference Registration is OPEN!

Registration for our 14th National Conference on Hydrocephalus is OPEN! Join us in Minneapolis, Minnesota, June 16 – 19, 2016.

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New Computerized Rehab for Brain Injuries

Researchers have shown that computerized cognitive rehabilitation (a program to help brain-injured or otherwise cognitively impaired individuals to restore normal functioning) can improve attention and executive functioning in brain injury survivors including traumatic brain injury (TBI) and stroke.

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TBIs: the Road to Recovery

An expert on traumatic brain injuries explains the recovery and treatment options.

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10 Reasons to Attend Conference!

Our biennial conference is a cornerstone of our commitment to serving our community. You don’t *need* a reason to attend conference but here are some good ones!

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Central Florida Opens Cafe to Aid those with Brain Injuries

The Knights on the Go Cafe was unveiled at a ribbon-cutting ceremony on Monday. It features a harness system for helping people with limited mobility.

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water on the brain is normal pressure hydrocephalus

The Difficulties of Diagnosing Normal Pressure Hydrocephalus

Approximately 10% of those diagnosed with Alzheimer’s or dementia are living with Normal Pressure Hydrocephalus. Why is it so often mis- or undiagnosed?

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Health System Takes Steps to Educate Medical Professionals on Often Misdiagnosed Brain Condition

The Greenville Health System (GHS) Neurological Institute will host a symposium on normal pressure hydrocephalus (NPH), taking bold steps forward to raise awareness and knowledge about NPH to the medical professionals serving as the first line of defense for early and proper diagnosis.

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Lance Lee, PhD, Hydrocephalus Association Innovator Awardee

Announcing the 2015 Innovator Award Grantees

2015 Awardees focused on research to better understand why hydrocephalus develops and to identify therapies to prevent or reverse hydrocephalus.

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Gift of Life Hydrocephalus Research Campaign

The Gift of Life: 2015 Year End Research Campaign

Finding a cure for hydrocephalus will take our commitment, determination, and perseverance—the very things we demand of hydrocephalus patients every single day.

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14th National Conference on Hydrocephalus

LEARN MORE: National Conference on Hydrocephalus

LEARN MORE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016!

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Normal Pressure Hydrocephalus Chicago Med

Chicago Med Raises Awareness of Treatable Dementia

On November 24, 2015, NBC’s Chicago Med aired an episode which highlighted Normal Pressure Hydrocephalus (NPH), often referred to as a treatable dementia.

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GivingTuesday Hydrocephalus Association

Double your Gift of Hope

This #GivingTuesday, for every dollar you donate to the Hydrocephalus Association, a generous donor will match it up to $15,000!

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