learning disabilities

Hydrocephalus Truancy Issues

Department of Education Considers Modifications to Special Education

Submit your comments detailing why the Department of Education should preserve regulations supporting Special Education.

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Madeleine, Hydrocephalus Association Teens Take Charge blogger

One Key to College Success? Good Relationships!

One of the most important things you can do for yourself in college when you have hydrocephalus is establish good relationships with your professors early.

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American flag framing the White House

The ABLE Act Offers Tax Benefits for Hydrocephalus Families

The ABLE Act allows families with children with disabilities to save for college and other expenses in tax-deferred accounts. A must read with tax season upon us!

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Madeleine Darowiche, hydrocephalus blogger

Adjusting to College as a New Student

In Madeleine’s monthly blog, she shares about adjusting to college life and her plan for shunt failure or other hydrocephalus-related issues.

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Hydrocephalus and learning

Developing an Effective IEP Webinar Recording NOW AVAILABLE

The Hydrocephalus Association’s webinar, Developing an Effective IEP, is now available online! Dr. Andrew Zabel discusses how hydrocephalus impacts learning.

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National Hydrocephalus Conference 2014

2014 Conference – Parent Track Highlights

The National Conference on Hydrocephalus offers parents an opportunity to connect with other parents, speak directly with experts on various topics about raising a child with hydrocephalus – social, emotional, educational, financial, and medical – and watch their children interact with other children living with hydrocephalus. Join us in Portland, Oregon, July 9-11, 2014.

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Congratulations to Our 2013 Scholarship Recipients!

The Hydrocephalus Association is proud to announce our 2013 scholarship recipients.

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Normal on the Outside: A Teen’s Journey with Hydrocephalus

Elizabeth Holthouse, a high school senior, shares her video documentary about her journey with hydrocephalus, called “Normal on the Outside.” The Hydrocephalus Association talks with Liz about her experience making the video and the message she wants to send to the world.

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Have You Encountered Any Challenges in School Due to Hydrocephalus?

We asked on our Teens Take Charge Facebook Page: “Have you encountered any challenges in school due to hydrocephalus? What have you done to overcome them?” Many young adults and parents shared personal experiences with us.

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SAT and ACT Survival Tips

As many young adults in our Teens Take Charge (TTC) program prepare to take their ACTs and SATs, we wanted to take a moment to put your minds at ease with some helpful suggestions, tips and insight from one of your fellow peers, Madeleine Darowiche.

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Teen Voices: Hydrocephalus has Changed My Life

I am amazed at how hydrocephalus has changed my life…but I would not change it. Here is my story. Within weeks of my birth the doctor expressed concerns about the amount of growth of my head. My parents were referred to a neurologist who diagnosed me with communicating hydrocephalus

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Teen Voices: Taking on High School with No Regrets

Starting high school can be tough, especially when you are dealing with a medical condition such as hydrocephalus. Madeleine shares her advice for taking on high school.

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Back To School Time!

It’s that time of the year – back to school time! Most kids around the country will have returned to school this past Tuesday, September 4th, if they have not already. This can be an exciting yet stressful time for parents and kids alike. While kids may be worried about facing the academic rigors of […]

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