Dr. John Wellons, III, MD, MSPH, Chief of Pediatric Neurosurgery at Monroe Carrel Jr. Children’s Hospital at Vanderbilt writes about the study, “The assessment of bulging fontanel and splitting of sutures in premature infants: an interrater reliability study by the HCRN,” published in the Journal of Neurosurgery Pediatrics, and the meaning of the findings.
For many years, pediatric neurosurgeons have made decisions on the treatment of infants with hydrocephalus by the touch of a hand to the head, a gentle maneuver that implies care and reinforces the importance of touch in the physician-patient relationship. Yet in that simple touch of the soft spot of the head, Read more
The Hydrocephalus Association’s First Annual Vision Dinner, “A Time for Awareness; The Hope for a Cure,” is taking place in New York City at the Apella Alexandria Center. Generously hosted by Vicki and Craig Brown, major benefactors of the Hydrocephalus Association (HA), the evening unites politicians, neurosurgeons, scientists, advocates, and business leaders to raise the public profile of hydrocephalus and to share the current research initiatives and successes around the condition.
Individuals with hydrocephalus frequently have multiple computerized tomography (CT) scans to evaluate shunt function. A CT scan, also called a CAT scan, is a diagnostic tool that combines a series of x-ray views and computer technology to create an image of the body. CT scans provide more detailed information than standard x-rays and can be a lifesaving tool in diagnosing hydrocephalus and in some cases, identifying shunt failure quickly. However, these scans do not come without risk. Read more
In our third installment of the Mentored Young Investigator (MYI) blog series, we showcase 2009 MYI recipient, Joon Shim, Ph.D. At the time of the award, Dr. Shim was a postdoctoral fellow at Boston Children’s Hospital. He is now a Research Assistant Professor at Indiana University. He received an MYI grant for his study, “The role of angiogenesis in hydrocephalus.” Angiogenesis is the process of forming new blood vessels. It is essential for development and repair within the body. However, as a powerful physiological process, it can also, for example, be the transition from a tumor being benign to malignant. For this reason, angiogenesis has been linked to diseases including cancer, autoimmune diseases, age-related macular degeneration and atherosclerosis. The most common pro-angiogenic factor is vascular endothelial growth factors (VEGF). The study had three main aims: (1) quantify the level of VEGF in hydrocephalic patients; (2) Read more
Hydrocephalus Awareness Month begins this Sunday. There is no better way to kick off the month than with gratitude to the recent awareness being raised about hydrocephalus with some of today’s brightest stars. These individuals include Justin Timberlake, Taylor Swift, Alison Sweeney, Dr. Lauren Streicher, Kasey Kahne, and Dick Wagner. Hydrocephalus affects an estimated 1 million individuals in the United States, from infants to seniors. There is no cure and the only treatment requires brain surgery. Despite its prevalence, there is still not a lot of awareness in the general public about the condition. As a result, research dollars earmarked to find better treatment options and a cure are scarce. This leaves individuals living with hydrocephalus to face a lifetime of brain surgeries and other challenges. Support from highly visible celebrities and athletes not only motivates hydrocephalus patients to continue their fight, but also brings greater exposure and more understanding about this life-altering condition to the general public. Read more
By Ashly Westrick, Research Programs Manager
This Research blog series is dedicated to highlighting the current studies of the Hydrocephalus Clinical Research Network (HCRN). The HCRN is a collaborative research network of nine pediatric children’s hospitals conducting important research on hydrocephalus. We hope you enjoy reading about the important work of the HCRN.
Our HCRN blog series continues with a discussion with Tamara Simon, MD, MSPH, an Assistant Professor of Pediatrics and a Pediatric Hospitalist at Children’s Hospital of Seattle. She is the principal investigator for the shunt infection section of the Hydrocephalus Clinical Research Network’s (HCRN) Registry. The results of her most recent study, Read more
Matthew Schwerha, reporting for the Barrington Courier-Review, interviews one of our current Chicago WALK Chairs, Katie Cook, who’s son Conor has hydrocephalus. The Chicago WALK took place on August 18, 2013 at Soldier’s Field. The Barrington Courier-Review is part of the Chicago Sun-Times.com network.
Matthew Schwerha, reporting for The Doings Weekly, interviews Susan Yousif, who’s 2 year-old son Zane has hydrocephalus, at the Chicago WALK, which took place on August 18, 2013 at Soldier’s Field. The Doings Weekly is part of the Chicago Sun-Times.com network.
The Hydrocephalus Association (HA) is pleased to announce that the association is offering funding for an additional research grant in its 2013 grant cycle. This grant will help advance the priorities established in HA’s 2012 research conference, Opportunities in Hydrocephalus Research: Pathways to Better Outcomes. After an extensive review process by our distinguished Scientific and Medical Review Committee, HA has selected Timothy Vogel, M.D., from Cincinnati Children’s Hospital Medical Center, for his proposal, “Role of neural progenitor cells in the development of neonatal hydrocephalus.” Read more
If you’re new to buying healthcare, finding the perfect plan can be like trying to find the Wizard without having a yellow brick road to guide you to the Emerald City. While it might seem overwhelming, the changes made to the healthcare system by the Affordable Care Act aim to make finding a plan that suits your needs a simpler process.
Whether you are transitioning from your parents’ insurance, are in a job that does not offer healthcare benefits, or are simply uninsured, you will now have another option for healthcare coverage. When open enrollment begins on October 1st, you will be able to Read more