hydrocephalus research

Hydrocephalus Action Network

A Possible Cut in Hydrocephalus Research Funding from Capitol Hill

Congress is currently debating a bill that could have major implications for hydrocephalus research through the Department of Defense CDMRP program.

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Meet our Conference Team!

HA is pleased to announce some of the brightest minds in the field who are generously offering their time, expertise and talent in planning the 15th National Conference on Hydrocephalus

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Book Your Hotel for Conference!

Housing is open for the National Conference on Hydrocephalus which will take place on June 28-30, 2018 at the Irvine Marriott in Orange County, California. Book your hotel!

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Staff of the Hydrocephalus Association

2016 Year-In-Review

As we close out yet another banner year, we are grateful for all that we have been able to achieve through the support of our caring community.

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Hydrocephalus GivingTuesday Challenge

Historic #GivingTuesday for Hydrocephalus!

We have the chance to raise $80K in one day to support hydrocephalus research as well as programs and resources to support individuals and their families. #GivingTuesday is BIG this year!

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Hydrocephalus Professional Member Society

Why Join the Hydrocephalus Professional Member Society?

Professional members enjoy the benefits of the association working on your behalf to ensure greater coordination of research, identify and reach the patient population and provide training and educational opportunities tailored to the needs of the professional community. Join us today.

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Families Unite with Scientists to Prevent Leading Cause of Brain Surgery in Children

The Hydrocephalus Association’s annual Vision Dinner will serve as the catalyst for a focused research initiative that aims to prevent or minimize the development of hydrocephalus after a brain bleed.

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Hydrocephalus Association Converges on Capitol Hill for Rally for Medical Research Hill Day to Advocate for Increased Funding for the National Institutes of Health (NIH)

The Hydrocephalus Association joins more than 300 organizations to ask Congress to provide robust, sustained, and predictable budget increases for the NIH

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Hydrocephalus Action Network

September 22 is a National Day of Action!

Thursday is a National Day of Action across the country as advocates converge on Capitol Hill at the Rally for Medical Research.

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Team Hydro

Team Hydro’s Commitment to Curing Hydrocephalus Receives National Attention

Featured in Forbes, Team Hydro, now in it’s ninth year, has raised $546,335 for hydrocephalus research.

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NIH Nonprofit Forum 2016

Nonprofit and Government Leaders Unite Around Medical Research

Dr. Jenna Koschnitzky, Hydrocephalus Association Director of Research Programs, speaks at the 2016 NIH NINDS Nonprofit Forum.

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Forbes Features Story on Team Hydro

Forbes features a story on the inspiration behind Team Hydro and their mission to fund hydrocephalus research. Pam Finlayson, a Team Hydro founder and a member of the Hydrocephalus Association Board of Directors, in interviewed with her sons, Peter and Sam.

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Hydrocephalus Action Network

Congressional Action Supports the Hydrocephalus Community

Congress is hearing our message and starting to act on measures that will help our #hydrocephalus community, but we need to keep pushing our priorities.

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Hydrocephalus Clinical Research Network

Hydrocephalus Clinical Research Network Adds Five New Centers

The Hydrocephalus Clinical Research Network (HCRN) adds five new research institutes to the network.

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Hydrocephalus Action Network

Advocacy Webinar: What You Can Do to Increase Funding for Hydrocephalus Research

Join us for our advocacy webinar covering the Congressional appropriations process and what you can do to help protect medical research program funding.

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National Hydrocephalus Conference

Conference Registration is OPEN!

Registration for our 14th National Conference on Hydrocephalus is OPEN! Join us in Minneapolis, Minnesota, June 16 – 19, 2016.

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10 Reasons to Attend Conference!

Our biennial conference is a cornerstone of our commitment to serving our community. You don’t *need* a reason to attend conference but here are some good ones!

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Hydrocephalus Advocate Joins Scientific Peer Review of Research Applications for the Department of Defense Peer Reviewed Medical Research Program

Peer review advocate Barrett O’Connor participated in the evaluation of research applications submitted to the PRMRP sponsored by the Department of Defense.

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National Hydrocephalus Conference

Countdown to Conference: Tips on making it affordable!

The National Conference on Hydrocephalus takes place June 16 – 19th in Minneapolis, Minnesota. Join us! Here are tips to help make it affordable.

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Lance Lee, PhD, Hydrocephalus Association Innovator Awardee

Announcing the 2015 Innovator Award Grantees

2015 Awardees focused on research to better understand why hydrocephalus develops and to identify therapies to prevent or reverse hydrocephalus.

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14th National Conference on Hydrocephalus

LEARN MORE: National Conference on Hydrocephalus

LEARN MORE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016!

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Adult Hydrocephalus Clinical Research Network

Next Steps for the Adult Hydrocephalus Clinical Research Network

The Core Data Project of the Adult Hydrocephalus Clinical Research Network (AHCRN) has enrolled nearly 200 patients since in late 2014.

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Diana Gray HA CEO

Diana Gray Announced as the New Chief Executive Officer

The Hydrocephalus Association (HA) is pleased to announce the appointment of Diana Gray as the new Chief Executive Officer (CEO).

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Hydrocephalus Association Announces New Chief Executive Officer

The largest hydrocephalus patient advocacy organization, the Hydrocephalus Association (HA), selects Diana Gray as the new Chief Executive Officer (CEO) to lead an aggressive growth strategy.

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Dr. Mark Hamilton, Adult Hydrocephalus Clinical Research Network

Upcoming Webinar: AHCRN Update

Join us for our next webinar on the Adult Hydrocephalus Clinical Research Network (AHCRN). Tune in to hear about progress after 1 year of patient enrollment.

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New Research Initiative to be Launched at HA’s Vision Dinner

The annual Vision Dinner held in New York City will unveil the new Hydrocephalus Association Network for Discovery Science (HANDS).

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Identifying Best Candidates For Spina Bifida In-Utero Surgery

A new study found that fetuses with enlarged brain ventricles are more likely to get a second surgery after birth.

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NINDS Nonprofit Forum Hydrocephalus Registry

Partnering with Government to Shape Disease Research

HA played a key role at the annual NINDS Nonprofit Forum, which provides an opportunity for nonprofit leaders to engage in dialogue with NINDS staff.

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UNCP Hopes to Push TBI Research Forward With Help of Recent Grants

University of North Carolina has been awarded a grant to fund a study for neurotoxin action. Lead Scientist Dr. Bahr hopes the recent grants will push forward traumatic brain injury program and Alzheimer’s research.

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Seven States Join Congress in Declaring September Hydrocephalus Awareness Month

Local volunteers joined forces with elected state representatives in Connecticut, New York, Tennessee, Virginia, South Carolina, Colorado and Illinois to proclaim September as Hydrocephalus Awareness Month.

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Hydrocephalus Research

Scientific Networks are Changing the Research Landscape

Together the HA-funded HCRN, AHCRN and HANDS are changing how hydrocephalus research is conducted and accelerating research progress.

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Sample Size in Hydrocephalus Research Studies

Research 101: The Importance of Sample Size

Having a large number of participants reduces the risk of accidently having extreme, or biased, groups. Let’s find out why.

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Hydrocephalus Patient Conference

MINNEAPOLIS: We are on our way! 2016 Hydrocephalus Conference

SAVE THE DATE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016! Our patient-centered conferences empower all of us to understand, seek out and put into place the care, programs and services that will meet our needs now and well into the future.

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Hydrocephalus Association Conference

The Patient Voice in Hydrocephalus Research Studies

Our Patient Partner Committees provide the patient perspective throughout the duration of a research study, making sure the patient voice is at the table.

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Hydrocephalus Research Grant

Hydrocephalus Association Announces a New Grant Opportunity

Innovator Awards on understanding disease mechanisms and the identification and preclinical testing of therapies to prevent or reverse hydrocephalus. Apply here!

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Hydrocephalus Research Webinar

Upcoming Webinar: The Next Generation of Hydrocephalus Researchers Part II

Next webinar: Optimizing the timing of interventions in neonatal hydrocephalus and new research on how brain cells react and recover under pressure.

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Dr. John R. Kestle and Dawn Mancuso

HA Board Member Receives Distinguished Award in Neuroscience

Dr. John R.W. Kestle is awarded the Robert H. Pudenz Award for Excellence in CSF Physiology by Medtronic

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HCRN Researcher Dr. Jay Wellons Demonstrates Importance of Multi-Center Studies

How do surgeons make decisions? How do they stand by those decisions and evaluate themselves? The HCRN set out to answer these questions in their study.

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Hydrocephalus Association Webinar Banner

Upcoming Webinar: The Next Generation of Hydrocephalus Researchers

Join us for our next webinar on the latest hydrocephalus research with two former HA-sponsored Mentored Young Investigators.

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Clinical Trial Randomization

Research 101: An Explanation of Clinical Trials Design

Dr. Koschnitzky continues our Science Facts blog series with an explanation of the various clinical trial designs we find in hydrocephalus research.

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