Hydrocephalus Conference

Get to Know Our Conference Host City

For those that are traveling we hope you will take a couple days to explore this wonderful host city for our conference and enjoy the world-famous theme parks and, stunning beaches, designer shopping, delightful fairs and so much more.

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Meet our Conference Team!

HA is pleased to announce some of the brightest minds in the field who are generously offering their time, expertise and talent in planning the 15th National Conference on Hydrocephalus

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Book Your Hotel for Conference!

Housing is open for the National Conference on Hydrocephalus which will take place on June 28-30, 2018 at the Irvine Marriott in Orange County, California. Book your hotel!

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Adult living with hydrocephalus

Finding that Perfect Fit

It was truly amazing to be surrounded by people who either have hydrocephalus themselves that know exactly what it’s like to live the way I live,

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Chicago Hydrocephalus Association WALK Chairs

Katie’s Top Ten Reasons You Should Attend Conference

What would it look like if we all worked together as one voice and made hydrocephalus a word that people know and are ultimately interested in curing?

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Hydrocephalus Conference Participants

Us In Hydrocephalus: A Young Woman Finds Community

Robin, living with hydrocephalus, reflects on the power of uniting with a community to learn from each other and empower one another.

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Taurean Nixon

Superbowl Champ to Keynote Hydrocephalus Conference

Mr. Taurean Nixon of the Super Bowl Champion Denver Broncos will serve as the Inspirational Keynote Speaker at the National Conference on Hydrocephalus.

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National Conference on Hydrocephalus

Meet the Medical Chairs of our 14th National Conference on Hydrocephalus!

We are honored to have Dr. Marion Walker and Dr. Michael A. Williams chair our 14th National Conference on Hydrocephalus.

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10 Reasons to Attend Conference!

Our biennial conference is a cornerstone of our commitment to serving our community. You don’t *need* a reason to attend conference but here are some good ones!

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National Hydrocephalus Conference

Countdown to Conference: Tips on making it affordable!

The National Conference on Hydrocephalus takes place June 16 – 19th in Minneapolis, Minnesota. Join us! Here are tips to help make it affordable.

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14th National Conference on Hydrocephalus

LEARN MORE: National Conference on Hydrocephalus

LEARN MORE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016!

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Hydrocephalus Conference

Book Your Hotel for Conference!

Housing is open for the National Conference on Hydrocephalus June 16-19 in Minneapolis, Minnesota. Book your hotel!

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Hydrocephalus Patient Conference

MINNEAPOLIS: We are on our way! 2016 Hydrocephalus Conference

SAVE THE DATE: The 14th National Conference on Hydrocephalus will take place in Minneapolis, Minnesota, on June 16-19, 2016! Our patient-centered conferences empower all of us to understand, seek out and put into place the care, programs and services that will meet our needs now and well into the future.

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Teen dating and hydrocephalus

Dating and Hydrocephalus is a Tricky Subject

TTC Advisory Council Member Wyatt Barris talks about the tricky situation of dating when you have a medical condition like hydrocephalus.

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National Hydrocephalus Conference 2014

13th National Conference on Hydrocephalus: Highlights

At our 13th National Conference on Hydrocephalus in Portland, OR, July 9-11, 2014, we gathered to re-establish our sense of community and educate ourselves about hydrocephalus. Take a peek at our conference highlights!

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National Hydrocephalus Conference 2014

HOT Conference Deal!

Register for the Hydrocephalus Association’s 13th National Conference on Hydrocephalus and be entered for a chance to win 4 full conference registrations to our 2016 Conference!

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National Hydrocephalus Conference 2014

2014 Conference – Parent Track Highlights

The National Conference on Hydrocephalus offers parents an opportunity to connect with other parents, speak directly with experts on various topics about raising a child with hydrocephalus – social, emotional, educational, financial, and medical – and watch their children interact with other children living with hydrocephalus. Join us in Portland, Oregon, July 9-11, 2014.

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Interpersonal Connection…You Really DO Get It.

At the Hydrocephalus Association’s biennial national conference, interpersonal connection sessions allow attendees, like the Rocciola family, to meet lifelong friends who share their journey with hydrocephalus – other moms, dads, siblings, and peers.

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National Hydrocephalus Conference 2014

2014 Conference – Adult Track Highlights

The Hydrocephalus Association’s National Conference on Hydrocephalus offers adult attendees an opportunity to find the information, resources, and support they need to live confidently with their condition. Join us in Portland, Oregon, July 9-11, 2014.

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National Hydrocephalus Conference 2014

2014 Conference Early Bird Rates Extended!

Early bird registration rates for the Hydrocephalus Association’s 13th National Conference on Hydrocephalus have been extended through June 16th! Register today! Visit www.hydrocephalusconference.org.

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Teens with Hydrocephalus

Finding a Voice

Two teens living with hydrocephalus and one sibling share their first conference experiences attending the Hydrocephalus Association’s biennial National Conference on Hydrocephalus.

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National Hydrocephalus Conference 2014

2014 Conference Update – Teen Track Highlights

Highlighting the Hydrocephalus Association’s Teen track for the upcoming 13th National Conference on Hydrocephalus, July 9-11, 2014, in Portland, OR.

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Hydrocephalus Teens Take Charge Advisory Council Member

That Moment You Realize You’re Not Alone on This Journey…

In her monthly blog, Madeleine, a Hydrocephalus Association Teens Take Charge Advisory Council member, shares her first experience meeting other teens with hydrocephalus and how it changed her whole outlook on life.

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Dr. Timothy Vogel Joins the Robert H. Pudenz Lectureship at Conference

Timothy Vogel, MD, will join the Robert H. Pudenz Lectureship scientific research panel at the Hydrocephalus Association’s 13th National Conference on Hydrocephalus, July 9-11, 2014, in Portland, Oregon.

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National Hydrocephalus Conference 2014

2014 Conference Update – NPH Track Highlights

By Jennifer Bechard Johnson, Education Manager There is something for everyone at our 13th National Conference on Hydrocephalus. We are happy to announce that this year’s conference will have a special track of programming dedicated to meeting the needs of the normal pressure hydrocephalus (NPH) population. Here is a preview of what our conference has to […]

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Gold medal Paralympian Adam Page to Keynote the 13th National Conference on Hydrocephalus

Gold medal Paralympian Adam Page will deliver the motivational keynote address at the Hydrocephalus Association’s 13th National Conference on Hydrocephalus in Portland, Oregon, July 9-11, 2014.

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Hydrocephalus Conference Scientific Keynote: Dr. Stephen A. Back

Dr. Stephen A. Back will deliver the scientific keynote address on his work on the development of strategies to promote regeneration and repair of injury to the brain at the Hydrocephalus Association’s 13th National Conference on Hydrocephalus, July 9-11, 2014, Portland, Oregon. Join us!

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Get to Know Our Conference Host City – Portland, Oregon

Some attendees of the Hydrocephalus Association’s 13th National Conference on Hydrocephalus will be driving only a short distance, while many of us will be flying in from all around the country. See what Portland, OR, has to offer as you plan your trip.

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13th National Conference on Hydrocephalus: Community. Clarity. Cure.

The Hydrocephalus Association patient-centered National Conference empowers all of us with the tools and connections to address the medical, educational and social complexities of living with hydrocephalus. Join us in Portland, Oregon, July 9-11, 2014!

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Book your Hotel for Conference!

The Hydrocephalus Association’s 13th National Conference on Hydrocephalus will be held at the DoubleTree by Hilton Portland, Portland, Oregon, from July 9-11, 2014.

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Meet the Medical Chairs of the 13th National Conference on Hydrocephalus

The Hydrocephalus Association is pleased to announce the Medical Chairs of the 13th National Conference on Hydrocephalus – Drs. Nathan Selden, Marion “Jack” Walker, and Michael A. Williams.

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Countdown to Conference: How Conference Changed One Teen’s Life…

The Hydrocephalus Association 13th National Conference on Hydrocephalus will be July 9-11, 2014, in Portland, OR. Madeliene Darowiche from our Teens Take Charge Advisory Council shares why it’s a MUST ATTEND EVENT for members of the hydrocephalus community. We hope to see you there!

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Portland: Here We Come! 2014 Hydrocephalus Conference

SAVE THE DATE: The 13th National Conference on Hydrocephalus will take place in Portland, Oregon, on July 9-11, 2014! Our patient-centered conferences empower all of us to understand, seek out and put into place the care, programs and services that will meet our needs now and well into the future.

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NINDS Director Dr. Landis to Headline HA’s Conference in June

We are honored and thrilled to report that Dr. Story C. Landis, the distinguished Director of the National Institute for Neurological Disorders and Stroke (NINDS), will be a keynote speaker at the Hydrocephalus Association’s 12th National Conference on Hydrocephalus: Getting to The Heart of Hydrocephalus. Dr. Landis will address the importance of hydrocephalus research and how this […]

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2012 Conference on Hydrocephalus, ‘Save the Date!’

by Pip Marks and Karima Roumila We are most excited to announce our 12th National Conference on Hydrocephalus which will take place in Bethesda, MD on June 27th – July 1st 2012! The goal of our biennial conferences is to give individuals, families and professionals the tools and connections they need to address the medical, […]

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