For those that are traveling we hope you will take a couple days to explore this wonderful host city for our conference and enjoy the world-famous theme parks and, stunning beaches, designer shopping, delightful fairs and so much more.
HA is pleased to announce some of the brightest minds in the field who are generously offering their time, expertise and talent in planning the 15th National Conference on Hydrocephalus
Housing is open for the National Conference on Hydrocephalus which will take place on June 28-30, 2018 at the Irvine Marriott in Orange County, California. Book your hotel!
Barrett O’Connor, a Hydrocephalus Association-nominated patient advocate, is serving on the latest panel reviewing applications for medical research at the DoD.
Teens Take Charge Mentor Task Force Member, Madeleine Darowiche, shares the highlights and challenges of her first year away from home at college.
TTC Member Megan Rivkin challenges young people to get involved in advocating and fundraising to increase research efforts and public awareness of hydrocephalus.
Nominate a dedicated Neuroscience Nurse with demonstrated excellence in neurosurgery, specifically with hydrocephalus, for the Mary Decker Mentorship Award!
The Cibulas spent a decade building a house that their sons could grow up in and live in after their parents were gone. It features cutting-edge technology and does not aesthetically announce that anyone disabled lives there.
The Hydrocephalus Association had a successful year of WALKS and Special Events, thanks to the dedication of our WALK and Special Event Chairs. A look back at our 2012 events…
Parade Magazine features a story on normal pressure hydrocephalus (NPH) and the journey of Jimmy Nowell of Clifton, Texas to find a diagnosis and treatment. Dr’s Mark Luciano and Michael Williams of the HA Medical Advisory Board are interviewed for the article.
James Phillips of the Daily Mountain Eagle shares a moving story of support for 5-year-old Addox Morrow as Addox’s team prepares to walk on November 11th in the 5th Annual Alabama Hydrocephalus Association WALK.
Update on the current research initiatives of the Hydrocephalus Association, focusing on a presentation by Paul Gross, Board Chairman, at the Trans-NIH Hydrocephalus Meeting in October. The meeting included representatives from four different Institutes within the NIH – the NINDS, the National Institute of Child Health and Human Development (NICHD), the National Heart, Lung & Blood Institute, and the National Institute of Biomedical Imaging and Bioengineering (NIBIB).
Performing artist Angie Raulerson and her band, Jaguar Country, will perform Friday, October 26 at 7:00 pm at Central Michigan University’s Plachta Auditorium. The concert is a tribute to the country legends of yesterday. Joining Angie will be Michael Twitty son of country legend Conway Twitty. He will perform some of his father’s great songs in his memory. The concert will benefit the Hydrocephalus Association.
September is not the only month to raise awareness about hydrocephalus. Join us in celebrating the launch of our Advocacy Toolkit, a resource to communicate with elected officials and the media.
Hydrocephalus Association launches Spanish-language pages on hydrocephalus The Hydrocephalus Association proudly announces the launch of our Spanish-language information pages on hydrocephalus. Our launch falls at the midpoint of Hispanic Heritage month (mid-September through mid-October) as well as serves as a celebratory ending to September’s Hydrocephalus Awareness month. The Spanish-language pages provide critical information to Spanish-speaking […]
Four years ago, Mia Padron of Long Island, New York, was on a mission to make a difference for the life of her son and all other individuals living with hydrocephalus. Her son, Tyler, who is now 10, was born with hydrocephalus but not diagnosed until he was 23 months old. Those 23 months were […]
David Walters was diagnosed with hydrocephalus at 2 weeks old and has had one shunt revision. He is an active teenager and member of the Hydrocephalus Association Teens Take Charge program. Read his story.
NY State Senator John Flanagan proclaims September Hydrocephalus Awareness Month. Joined by Mia Padron, Senator Flanagan presented the Hydrocephalus Association with a resolution he sponsored to help raise awareness of the hydrocephalus.
Joyce Schwartz shares her 23 year journey of searching for a diagnosis and then treatment for Normal Pressure Hydrocephalus (HA).
~Partners Network ~ Hydrocephalus Support Group Meeting Virginia TOPIC: Overview of 12th HA Conference When: Saturday, September 15, 2012 2:30pm to 4:00pm Where: Rappahannock Regional Library England Run branch 806 Lyons Blvd Fredericksburg, VA 22406 Please R.S.V.P. to Annie Mason by Wednesday March 21, 2012 (540) 898-4568 or Richmondsupport@hydroassoc.biz Find our group on Facebook under […]
Strength. Perseverance. Endurance. Spirit. Do these traits sound familiar? Of course, these are all words that describe individuals touched by hydrocephalus. These words also describe Mark Paulissen and Mary Sodano. Their spirit of adventure and love for bicycling has spurred them onto a journey of a lifetime. Sponsored by Celsius drink company, Mark and Mary have challenged […]
By: Madeleine Daraowiche Hi, my name is Madeleine. I am 17 years old and will be a junior in high school. I have had hydrocephalus since before I was born. I was diagnosed in utero, and had my first shunt placed when I was 15 days old. Since then, I have had six shunt revisions. […]
Tracy Taback raises awareness about hydrocephalus, shares her personal journey, and announces the upcoming Middlebury, Connecticut WALK scheduled for October 6th. To read the full article, click here.
The Brink/The Oregonian reports on the heartwarming story of Fiona Wilcox who returns from a surgery in time for the first day as a freshman at Jefferson High School. To read the full article, click here.
Mark Paulissen and Mary Sodano are preparing to embark on a 2500 mile bike ride journey ride for a cause near to their hearts, hydrocephalus. To read the full article, click here.
Baby Tyler, born in Pittsburgh, PA, receives infusions comprised of stem cell blood from her umbilical cord and placenta as part of a study by Duke University blood and marrow transplant program. To read the full article, click here.
Fog is Lifted After 15 Years of Confusion and Misdiagnosis Milt Newman’s retirement was not living up to expectations due to a slow progression of seemingly inexplicable mental and physical decline. What no one knew was that Milt, then 73, was suffering from Normal Pressure Hydrocephalus (NPH), a treatable neurological disorder in which excess fluid […]
It’s that time of the year – back to school time! Most kids around the country will have returned to school this past Tuesday, September 4th, if they have not already. This can be an exciting yet stressful time for parents and kids alike. While kids may be worried about facing the academic rigors of […]
By: Abby Wood Hi! My name is Abby. I turned 12 years old at the end of August and this is a snapshot of my life. I was born in Albuquerque, New Mexico. When I was born, I was very sluggish and tired. My parents found out that I had hydrocephalus a few weeks later […]