The “Tone at the Top”
I want to share with the hydrocephalus community how excited I am right now. We recently completed our first meeting of the Hydrocephalus Association’s board of directors for 2013, and I am so proud to report that our board consists of a group of dedicated individuals who are unequivocally engaged and committed to meeting our mission – to eliminate the challenges of hydrocephalus. Read more
2012 WALKs and Special Events – The Year in Review
by Randi Corey, National Director of Special Events and Volunteer Support
When I was a child one of my favorite parts of Thanksgiving Day was watching the Macy’s Thanksgiving Day parade from New York City on television. One of the tidbits of information they imparted that impressed me, even at that young age, was that the day after the parade they would start working on next year’s parade. Read more
Parade Magazine Features Story on NPH
Parade Magazine features a story on normal pressure hydrocephalus (NPH) and the journey of Jimmy Nowell of Clifton, Texas to find a diagnosis and treatment. Dr’s Mark Luciano and Michael Williams of the HA Medical Advisory Board are interviewed for the article.
To read the full article, click here.
Birmingham Reporter Finds a New Hero
James Phillips of the Daily Mountain Eagle shares a moving story of support for 5-year-old Addox Morrow as Addox’s team prepares to walk on November 11th in the 5th Annual Alabama Hydrocephalus Association WALK.
Click here to read the full article
Delivering on a Promise
In the last year, we have talked a lot about the need for more research on hydrocephalus and the work of the association to raise money and provide funding for that research. There’s good reason for this…we’ve made good progress on our promise to increase the amount of research being done, with the ultimate goal of eliminating the challenges of hydrocephalus.
One strategy for delivering on this promise has been the vision of HA’s board to Read more
Country Music Concert Raising Funds for the Hydrocephalus Association
Performing artist Angie Raulerson and her band, Jaguar Country, will perform Friday, October 26 at 7:00 pm at Central Michigan University’s Plachta Auditorium. The concert is a tribute to the country legends of yesterday. Joining Angie will be Michael Twitty son of country legend Conway Twitty. He will perform some of his father’s great songs in his memory. The concert will benefit the Hydrocephalus Association.
Click here to watch a television interview with Angie.
“Fall back” isn’t the way to start off this season!
by Dawn Mancuso, CEO
As September comes to a close, and we all start thinking about what fall will bring, we often talk about the cooler temperatures, the changing color of the leaves on the trees, the children going back to school, and the shortening number of daylight hours.
This year, we hope you also thought of Hydrocephalus Awareness Month, or HAM as we’ve been affectionately calling it in our offices. The goal of Hydrocephalus Awareness Month is to bring attention to and understanding about the condition of hydrocephalus among a number of key target audiences, such as public policy makers who have an impact on the amount of public funding available for research; the medical and scientific communities who actually dedicate their lives to treating patients and conducting research; and advocates like you and me who can be motivated to share patient stories and experiences with the media, community leaders and others. Read more
What Do We Want? A CURE! When Do We Want It? NOW!
September was Hydrocephalus Awareness Month, a special time to raise awareness nationwide as many eyes turn to our cause as it receives some higher attention nationally. However, we should see every month of the year as our opportunity to raise awareness about hydrocephalus and the one million people living with this condition in the United States today. The current election cycle is an excellent opportunity to raise our voices in the media and, once again, in Congress to make sure that elected officials and candidates alike know we are here and that we have a powerful reason to be heard. Let’s continue educating both the current and possible future politicians about hydrocephalus, reminding them that voting constituents in their areas are affected by this condition. Read more
Tennessee Mom Calls for Research Funding of Hydrocephalus
The Tennessean ran a previously posted story by Mariann Martin of the Chattanooga Times Free Press that focuses on Chara McLaughen and her daughter, Ema.
To read the full article, click here.
Hydrocephalus Association Launches Spanish-language Pages on Hydrocephalus
Hydrocephalus Association launches Spanish-language pages on hydrocephalus
The Hydrocephalus Association proudly announces the launch of our Spanish-language information pages on hydrocephalus. Our launch falls at the midpoint of Hispanic Heritage month (mid-September through mid-October) as well as serves as a celebratory ending to September’s Hydrocephalus Awareness month. Read more
