Looking Back…Moving Forward: Fresno Says YES to Our Hydrocephalus WALK
This year the Hydrocephalus Association (HA) commemorates our 30th anniversary but did you know that this year our San Francisco WALK will celebrate it’s 20th WALK event? In 1994 a small group of dedicated people affected by hydrocephalus gathered to walk across San Francisco’s Oakland Bay Bridge. Their purpose: to unite the local hydrocephalus community to raise awareness of this life altering, potentially life threatening condition and to raise money for the Hydrocephalus Association’s education and support services. As part of our interview series commemorating our 30th anniversary, Read more
Happening NOW: Veteran WALK Chair Annual Meeting
Randi Corey, our Director of Special Events & Volunteer Support, is wrapping up our Veteran WALK Chairs’ annual meeting that was held this weekend in Charlotte, NC. The meeting was organized with the help of Michael Ticzon, our Special Events Coordinator. This extensive meeting brought together 20+ of our returning WALK Chairs from across the country Read more
So Many Reasons to be Thankful. So Many Ways to Give.
As the season of giving approaches, the Hydrocephalus Association encourages you to give the gift of Hope this holiday by supporting life-saving research and patient education programs for our community. Since the inception of the organization in 1983, we have relied on the generous support of private donors, like you, to fuel our work and to help raise awareness in cities and towns across America. Read more
Chicago WALK Appears in Chicago Sun-Times
The recent Chicago, IL WALK was featured in a recent online edition of the world famous Chicago Sun-Times.
Chattanooga, TN WALK Featured in Local timesfreepress.com
The timesfreepress.com, a local news outlet features the story of Chara McLaughlin and Emma, her three year old daughter living with hydrocephalus and how they hope to make a differenc in the upcoming Chatanooga, TN WALK on October 27th.
The Dekalb Times-Journal Shares Story of a Local Family Dealing with Hydrocephalus who are in Need
The Dekalb T/J tells the story of the Garrett family who’s newborn daughter was diagnosed with both hydrocephalus and hydroencephaly. They are struggling to make ends meet so friends, family and community are coming together to help them meet the demands of medical costs in a fundraiser.
To read the full story, click here.
45 Year Old Cancer Survivor with Spina Bifida Jumps for Charity
thisiskent.com, a UK based online news source featured the story of Jon Clark, a 45 year old cancer survivor with Spina Bifida who doesn’t let these conditions get in the way of his life.
Raising Awareness…From Coast to Coast!
Strength. Perseverance. Endurance. Spirit. Do these traits sound familiar?
Of course, these are all words that describe individuals touched by hydrocephalus. These words also describe Mark Paulissen and Mary Sodano. Their spirit of adventure and love for bicycling has spurred them onto a journey of a lifetime. Sponsored by Celsius drink company, Mark and Mary have challenged themselves to ride 2,500 miles across the country to raise awareness about hydrocephalus and to help raise funds for the Hydrocephalus Association (HA). Their ‘Spirit of America Ride for Hydrocephalus‘ is also their way of paying tribute to Mary’s niece, Madeleine Daraowiche, and the courage she’s shown having undergone seven brain surgeries for her hydrocephalus. Read more
2500 Mile Bike Ride will Benefit the Hydrocephalus Association
Mark Paulissen and Mary Sodano are preparing to embark on a 2500 mile bike ride journey ride for a cause near to their hearts, hydrocephalus.
To read the full article, click here.
Delaware’s Hydrocephalus WALK Highlighted in the Smyrna-Clayton Sun-Times
The Smyrna-Clayton Sun-Times highlights the upcoming Delaware Hydrocephalus WALK which will take place on September 22, 2012 at Smyrna High School.
To read the full article, click here.
