Results of our Facebook post: “What caused your hydrocephalus?”
By Karima Roumila, MPH, Community Programs Director
After posing this question to our Facebook members we received many comments from our community about the causes of their hydrocephalus as well as their age of diagnosis. 61% of the respondents said they or their loved one were born with hydrocephalus, meaning they have congenital hydrocephalus, while, 37% said they acquired hydrocephalus. After viewing the responses, we want to remind our community of the key terms used for hydrocephalus classification, the causes of hydrocephalus and most importantly, provide our community with a list of resources for further information. Read more
Talking to your Doctor
We asked on our Hydrocephalus Facebook community page: “Do you prepare a list of questions to ask your or your child’s doctor before the appointment?”
We were so pleased to see the majority of our community members answered “yes” to last week’s Facebook poll question, as it is very critical to be prepared before a meeting with any healthcare professional.
Remember as you work with your or your loved one’s healthcare team you are in a partnership.
It is important to be an active participant in the decision making process about the necessary care for you or your loved one. Going to a doctor’s visit could make someone nervous, impatient and even scared, so preparing for the visit will help you get the information you need and facilitate the communication between you and healthcare provider. The following are some tips we believe will help solidify your partnership with the healthcare team and help you make better and educated decisions about you, or your loved one’s care. Read more
