Research 101: Generalizability

The concept of Generalizability in research studies is especially important for individuals living with hydrocephalus because there are so many different causes.

Read More

Is an ETV an Option After Shunt Failure?

Is an ETV an option after shunt failure? A recent review of 15 studies reported on the effectiveness of endoscopic third ventriculostomy (ETV) after shunt failure in children. Dr. Jenna Koschnitzky, National Director of Research Programs, summarizes the findings.

Read More

Mixed Emotions: Heartbreak

Jamie Wright, Houston Community Network leader, went to Haiti with a pediatric neurosurgery team from Children’s Memorial Hermann Hospital. This is her experience.

Read More

Realizing I Had Hydrocephalus

Dan Kricke talks about the first time he realized he had hydrocephalus when he was 5 and the various emotions he had along the way to adulthood.

Read More

Telling My Story

Meet Dan, a new guest blogger lending his voice to our adult hydrocephalus community. We are excited for Dan to share different aspects of his journey each month.

Read More

Hydro Queen

Karly Rodriguez wrote this powerful and honest poem one month prior to her ETV procedure, after being diagnosed with hydrocephalus in 2012.

Read More

Looking Back…Moving Forward: The Need to Value Shunt Management

As the Hydrocephalus Association continues our 30th anniversary interview series, Ann Marie Flannery, M.D., shares her thoughts on young adults transitioning to adult neurological care and issues a call to action for society to value the management of shunts and the individuals living with them.

Read More